Its the same for many of us, I have no savings and am having trouble clearing my debt due to this stupid disease. I spend vast amounts of my income on medications, medical visits and loose a great deal of my income as I no sick leave left for hospital visits.
As a partner, its very hard to watch your significant other suffer. In the end, it broke my partner and we divorced in January this year. He just couldn't take it any more.
I am glad you are such a strong partner and are sticking with your wife, its incredible and I have a great deal of respect for you. Yes, this disease DOES take a great deal of the sufferer's life. But talk to your partner, don't hold back. I wish my partner had talked to me and told me how much he was hurting so I could have supported him as much as he supported me.
It sounds like on some level you want your wife to know how much you care and how powerless you feel. Trust me, she will have some idea and one of the things I wish is that my partner had given me the chance to support him, but he felt he had to be the strong one all the time, and in the end, that destroyed everything. Talk to her, tell her how much you want to help, and how powerless you feel.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
- 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
- Participating in the Golimumab trial as of 1st May, 2008;
- 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
- 1x teaspoon of Metamucil 3 times a day;
- 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.