OT: Possible message board feature/use of technology

Would this rating system be useful?
1
Yes - 50.0%
0
No - 0.0%
1
Maybe - 50.0%

 
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doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 698
   Posted 6/13/2008 8:05 PM (GMT -6)   
I just had an idea that I thought would be an interesting use of technology,
 
On the message board, as in Healingwell, us users could sign in and give a "personal rating" to each message we read if we felt like we could relate or felt that it described the type of experience/condition/UC that we personally had.  (or if we felt it was nothing like what we experience personally)
 
Obviously, this would only make sense to rate certain types of messages - those having to do with either specific symptoms, combinations of symptoms, or of things that helped (or hurt) a person.  Or to bring people to the table who have a similar constellation of symptoms (ie spondylitis, uveitis, proctitis, pancolitis, headaches, breathing problems...)  Or similar age of onset, family history or not, food allergy etc...This information could also be gathered by a questionnaire that each member fills out. 
 
But the idea is this:  to establish a network for each poster (imagine a family tree or hierarchy) of relations between us posters, based on the statistical correlation of our ratings.  We could discuss things further with these newly found "group" members.  Then (hypothetically) we might get insight into bettering our condition, in the hopes of comparing apples with apples, and not apples with oranges.
 
I know we often discuss how there may be different types of UC or that people may have different causes medically which led to them having UC, or maybe even some of us consider UC as somewhat of an umbrella like description of this inflammation that could have different causes for different folks.
Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 698
   Posted 6/13/2008 8:10 PM (GMT -6)   

Another related idea I wanted to put out there (but didn't want to muck up the above one) is similar but more broad, it has to do with electronic medical records.

I know here in the US, up until present, medical records are a disaster.  If you do not request them and keep your own records, they are archived and/or destroyed.  I know I have heard that Google has something to do with electronic medical records.  I know there is a lot of understandable fear about this kind of idea (just think of insurance companies looking up your record, and privacy concerns).

But if lab results and the like were posted to a database (and stripped of all identifying contact info), it seems like researchers could Query the database and look for correlations among symptoms or even based on bloodwork results.  Obviously the database would have to label each record with any known diagnosis as well.

 


Diagnosed with Ulcerative Colitis 6/2006 at age 26 after sudden E.R. visit
~Pancolitis (Mild to Moderate)
 ~I had Mono in 2000
On Colazal 3x3/day; Folic Acid 1mg; Calcium/Magnesium/Zinc combo
In remission about 2-3 months after E.R. but not back to normal!
 
~Interested in finding a cure/making sense out of U.C. and philosophical and psychological aspects of UC and "Stress" and Personal Development issues with Chronic Illnesses. 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/13/2008 8:12 PM (GMT -6)   
Interesting idea, doors. It doesn't seem to fit into the mission of HealingWell (or probably the limited bandwidth, either), but might be a viable idea for a new site. Let us know if you procede with this idea!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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