Teresa, you do need to contact your doctor tomorrow when his office
opens. Occasionally, UC is accompanied by serious liver disease that needs to be treated as well, so this needs to be ruled out.
A little explanation of the terms that have been used:
Pancolitis means that your entire colon is inflamed and affected by the disease. Others of us have left-sided, procto-sigmoiditis or proctitis, all of which involve the left side, or lower end, of the colon to varying degrees.
Your doctor said you have unspecified colitis, which means they haven't fully determined the cause. It could be ulcertive colitis or it could be Crohn's disease. The most important difference for you to know about
this is that UC is limited to you colon, while Crohn's can affect any part of the GI system, from mouth to rectum.
I'd suggest talking with your GI to see what his treatment plan is. Simply putting you on very high doses of Prednisone every few months isn't really a plan. He should have some plan beyond that if the Asacol fails to maintain your remission, as they usually like to minimize the Pred usage whenever possible.
My only other suggestion is that you consider a good probiotic to replace the beneficial colon bacteria that are lost from the colitis and courses of antibiotics. Some of the ones a lot of people her use are Culturelle, VSL## and Primadophilus Reuteri.
I hope you're soon feeling better.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC ForumPlease remember to consult your health care provider when making health-related decisions.
Posted 6/15/2008 7:40 AM (GMT -7)
Teresa, I too agree that you should go to the doctor to get it checked out. Hang in there. Keep in touch to let us know how you are doing. It will be alright. Take Care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications: Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins: Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that I found this website!"
Currently it is Monday, November 11, 2019 7:42 PM (GMT -7)
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