I got deep vein thrombosis (DVT) during a flare

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burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 6/15/2008 1:04 AM (GMT -6)   
Hello All!
I am new to this forum. So happy to have found this friendly and helpful site.
I was DX with UC in July 2006. Achieved remission after using Salofalk enema nightly for 6 months. I had a bad cold in November 2007 and it triggered off a flare till the present.
I had more than 10 diarrhea for 3 days in February. I was so dehydrated and my blood pressure was so low that I passed out after a D. My hubby sent me to ER. I was sent home after a couple of hours of V.I. in the hospital.
After that I was so weak and tired that I stayed in bed almost 24 hours a day. One week later I found my left leg was swollen from the toes to the thigh. Ultra-sound exam confirmed that I got DVT. Blood clots were found in my left leg and I couldn't walk. I had to go the hospital for injection everyday for 5 days. And I have been on Warfarin since then. I would need Warfarin for a total of 6 months.
I also went to see a vascular surgeon. He suggested me to wear compression stockings for 2 years to prevent my vein from further damages.

Well, I am a newbie but I'd like to tell you my story. I've learnt a lesson in a hard way. I shouldn't have stayed in bed doing nothing for so long.

AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 191
   Posted 6/15/2008 3:42 AM (GMT -6)   
Poor you that sounds terrible, to have DVT to worry about on top of everything else,anyway d'ont be too hard on yourself,I been so bad before that I've spent two weeks in bed,I was in hospital last friday having an iron infusion and I heard a docter saying that having UC can make you more prone to DVT because the blood is more sticky,
and they would have to moniter him while he was having warfarin as obviously it thins the blood so can make you
more prone to bleeding.Do wear the socks I think there wonderful and always where them even for a short flight .
Hope youre feeling better soon ,Ana

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/15/2008 9:02 AM (GMT -6)   
Welcome to HealingWell, burnabygirl. I'm so sorry to hear of your problems. There is an associaton between DVT and UC, unfortunately, and we do have some other members with this issue.

Doctors always forget to tell us about the less frequent effects, and that's why we need one another. Your story will serve as a caution for others, so at least you won't have suffered totally in vain. We need to be especially careful to get up and move around a bit for a few minutes every hour. If we can't walk around, pressure stockings are a good idea, although I find them so hot here in our Texas climate. They always put them on me when I have surgery and then send me home in them.

Thank you for sharing your story with us!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 6/16/2008 12:10 AM (GMT -6)   
Thanks to Ana and Judy.
I just got off from Prednisone completely on June 1 after having it for 2.5 months. I started to have bloody diarrheas and bad cramps again last Thursday. I called my GI's office and was given an appointment for June 26.
I have started a fluid diet (Ensure, Genisoy, Gatorade, congee, banana and yogurt) since last Friday. There are no more cramps now. The diarrheas with blood continue, though.
I wonder if anyone of you has tried a fluid diet during a flare to give your colon a good rest.
Meanwhile I am using Salofalk (5 ASA) enema and taking Salofalk tablets (2x4 times a day). But they don't seem to help.

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/16/2008 7:28 AM (GMT -6)   
I tried all kinds of diets during my nearly five-year flare, but found that diet had little effect on me. Other than limiting fiber and fatty and spicy foods, no other diets seemed to make a difference at all. I know there are others here who use liquid diets when flaring, hopefully they will respond.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

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