New friendly member with a couple of questions :)

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lardossen
New Member


Date Joined Jun 2008
Total Posts : 7
   Posted 6/15/2008 6:24 AM (GMT -7)   
Hello!
I was diagnosed with UC about 2 years ago. I'm 28. I quickly went into remission just as I went travelling (although at the time I thought it had gone away permanently!) so I don't know too much about my problem. I was given some steroids at the time which did the trick but the side-effects were not pleasant.

I'm now living in Germany and recently, I think due to stress (there is usually a correlation for me), I've had another flare-up.
The doctors are helping here but not very good at answering my questions (not their fault - I need to learn better German), and I'm feeling a bit frustrated and alone with my problem.
I'm happy I've found this forum and that there are other people out there I can relate to finally!

I've always been fairly skinny, and now I'm finding it really hard to put weight on despite going to the gym and weight training regularly.
Does anyone else here find that their stomach seems to bloat periodically while the rest of the body loses/fails to gain weight??
Please someone say yes!
What food/situation makes that happen?!?!?!?

And is UC stress-related?

I always try to make the best of any situation and don't want to have a 'disease' on my shoulder like a chip, and will not feel sorry for myself either - I'm adament I can lead a normal life but am I jumping the gun??
Any tips on how to help with the mind-over-matter aspect would be great!!

And for any knowledgeable body-builders out there - is drinking protein drinks, weight-gainers, taking creatine and carnitine good or bad for you?
I've been trying them recently but I can't tell if they are having an effect due to my recent flare-up, which may be related directly to them or to my stressful situation (moving city and job, leaving girlfriend).

So confused!

Thanks for reading...

Post Edited (lardossen) : 6/15/2008 7:37:07 AM (GMT-6)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/15/2008 7:29 AM (GMT -7)   
Welcome to HealingWell, lardossen. It must be really difficult dealing with a chronic disease when you have trouble communicating with your doctors!

I don't experience stomach bloating, but I have seen others here complaining of that, so it isn't that unusual. Weight gain is a frequent pattern for many people with UC, but not all. Be sure you're eating a balanced diet and enough protein. Sometimes that takes extra attention if you're limiting your diet because of the disease. Also, your body is using a tremendous amount of calories just trying to heal itself, so your calorie needs increase. Try eating five or six smaller meals during the day to see if that helps. Finally, if you're having serious diarrhea, it's hard for your body to absorb the nutrients and this can cause weight loss.

UC is not caused by stress. Many of us do find that stress will make our symptoms worse.

The hardest hurdle, as you've already found, is dealing with the fact that you have a chronic disease. At this time, the only cure for UC is surgical removal of the colon, which actually most people say isn't as bad as you might anticipate. But short of that, there are medications that can help control the disease and put you into long-term remissions. Some medication or combination thereof will give most of us a pretty normal life. So you don't have to think of yourself as a "sick" person; instead think of yourself as a person who is learning to live with and manage a chronic condition. Your positive attitude can only help you.

I invite you to read back through threads and check out the links with general information on UC that are on this page. We're here to offer support to one another, and to share what has worked for us. Be aware, though, that tends to be different for each person. It helps us learn patience.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/15/2008 7:35 AM (GMT -7)   
Welcome! I personally don't have all of your answers. I just wanted to say that I feel that stress is a big trigger for my symptoms. Everyone is a little different though. Good luck to you. Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30096
   Posted 6/15/2008 11:31 AM (GMT -7)   
Hi..Welcome to the forum!

Where exactly in the colon is your UC.....throughout or limited?

What meds are you on at this time?

There are a few bodybuilders on the forum, I'm sure they'll offer their suggestions/experiences.

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/15/2008 11:51 AM (GMT -7)   
lardossen said...
Does anyone else here find that their stomach seems to bloat periodically while the rest of the body loses/fails to gain weight??
YES! It seems as if everything I eat shows up in my stomach and not even an ounce in the rest of my body! Argh, I'm do crunches every night in hopes to flatten my stomach.
 
If you're trying to gain weight, you may want to try Boost or Ensure. A nutritionist recommended them to me last year when I had lost a lot of weight; they're basically just nutrition drinks.
Female, Age 19, Dx w/ UC August 2007
Seasonal allergies
9 Asacol, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (1st infusion 06/08)


gymratin
New Member


Date Joined May 2008
Total Posts : 7
   Posted 6/15/2008 1:28 PM (GMT -7)   

i have taken many supps, including everything you listed. i usually take in about a 100 grams of protien throughout the day through prot powders - no probs there.

as far as the bloating- sometimes i experience bloating and cramping but from what i gather you're not talking about bodyfat in the midsection, correct? just bloating.

 


gymratin
New Member


Date Joined May 2008
Total Posts : 7
   Posted 6/15/2008 1:52 PM (GMT -7)   
btw comedy dork - word of advice - you cant spot reduce bodyfat. eg- doing a million crunches wont give you a leaner flatter stomach.
crunches build your abdominal muscles, but if you have a layer of fat covering them - you will not see the results you want.
the key is to do a cardiovascular exercise to burn fat
to sum it up crunches, set up, etc. do NOT burn fat that has accumulated at your midsection - this is a common misconception fueled by countless infomercials selling ab lounges, rockers, etc
i am a apex certified personal trainer (part time) hope this helps

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/16/2008 1:09 PM (GMT -7)   
gymratin, I don't think I actually have much body fat--I'm only 5 ft and 80 lbs right now (ugh I cannot gain weight w/ this DD)! It's just that my stomach inflates when I eat; it's completely flat if I haven't eaten much, had diarrhea, etc. I've always had this problem and crunches seemed to help some when I was diligent about them in high school.
(sorry for kinda hijacking your thread, lardossen)
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 2.4 g Lialda


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/16/2008 6:31 PM (GMT -7)   
Bloating in the abdomen area is not uncommon with bowel diseases. During my first flare, my abdomen was SO inflamed that I had to buy pants in a larger size despite the fact that I had LOST weight. Also, while your colon is in a fragile state, foods that cause gas can cause that extra bloating that is so uncomfortable. Problem is: almost everything seems to cause gas!

For your body building - stick with a smart, nutritious, well balanced diet. If you are going to use supplements, watch out for artificial sweeteners which can cause IBDers extra troubles - bloating included. As you know, lean protein is key to building muscle - and it's key to help heal your body.

We're glad to have you as a member of our forum! It's bittersweet - we hate that others have this disease, but we're so happy to find others who KNOW what we're going through!
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring
 
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
30mg Pred until I get set up for Remicade
 
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 6/16/2008 6:47 PM (GMT -7)   
I experienced alot of bloating with my first flare up. Now that I am in remission, I get occasional bloating. It's quite uncomfortable but it does goes away. What meds are you on?
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema 2 x a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin....
 

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