julee--20 years for a cure?! I don't think I can wait that long--I was think maybe 10 years if Remicade works! One of the GIs told me that they're not really working on a cure for IBD, just treatments...I haven't spoken to a psychologist about
it b/c we don't have money right now for one--my medical bills this past year have been ridiculous!
Bennie--I know what you mean--I feel like I'm just waiting around for this to fail. And when/if that happens, I'll be furious that I didn't get surgery earlier!
summerstorm--I can't remember, did you get a j-pouch? Are you able to anything and everything with a j-pouch? (I really miss spicy foods )
suebear--I do feel like my life's controlled by UC. I'm tired even when I'm in remission, I'm stuck in the house during a flare (as in I'm so tired I can't even go to the grocery store), I don't know what career to pursue b/c I don't what I could handle if I was in a flare, etc. etc.
Paul L--good luck w/ considering surgery!
kb5--When I first starting researching surgery, the infertility rate after surgery really scared me (48%)! But it could be another 10-15 years (or never) until I have kids, so I don't know if I want to wait that long! I do wonder if laparscopic surgery would make a difference in in/fertility rate.
Beth--Yeah, the whole no reversing surgery part is a bit scary. Have you decided what treatment you're going to try next?
I think I just need to make a long pro/con list before my next appt.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 2.4 g Lialda