Our remicade/insurance blessing

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Regular Member

Date Joined Jan 2008
Total Posts : 20
   Posted 6/16/2008 11:12 AM (GMT -6)   
As you all know, I'm newly wed.  We have had a tough "honeymoon" phase of our life together.  We got married April 19th and spent a week in beautiful La Jolla California.  Came back and she got sick and had to drop out of nursing school for the second and last time.  So less than a month after we got married, we spent a week in the hospital.  She has a disease call colitus.  Anywho, we consulted with her doctor and he decided to put her on remicade.  Basically remicade is a infusion that she has to take at a doctor office or hospital.  She has to do this once every 8 weeks, but the initial set up is once every week for a few months.  Remicade costs $6,500 per infusion.  Now, she hasn't been able to work at all because of being sick and although people think bankers make money, we dont.  Needless to say, it has been stressful.  Finally we got to the point to where she had to have the treatment today.  It was our understanding that it would be cheaper at the doctors office than at the hospital, but she couldn't go to the doctor so we sucked it up and went to the hospital.  I just knew that we were going to get a couple thousand dollar bill because we do have insurance, but they'll only pay 80%.  I got a text this morning as she was checking in at the outpatient part of the hosptial that says "OUR INSURANCE IS GOING TO PAY 100%!!!!"
I can not tell you how much this was a blessing from God and how we both probably cried.  Just thought I'd share with y'all

Regular Member

Date Joined Apr 2008
Total Posts : 499
   Posted 6/16/2008 11:19 AM (GMT -6)   
I am thrilled for you.....It is a blessing frm God and I pray she will get better with this treatment. Thanks for sharing the good news. Good luck and take care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 6/16/2008 11:35 AM (GMT -6)   
what a relief!!!!!! That is great news! I think I get 100% covered as well or just a copay.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 6/16/2008 1:58 PM (GMT -6)   
That's awesome! I just started Remicade, too--I have no idea how much insurance will cover though.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 3.6 g Lialda

Regular Member

Date Joined Jan 2008
Total Posts : 20
   Posted 6/16/2008 2:19 PM (GMT -6)   
It was such a blessing and a shock. This past week has been very stressful. I just got back from my first infusion. I had no problems. Everything went so smoothly. I am so excited. Hopefully I will start seeing some improvement. Any little improvement will be a huge accomplishment!

Regular Member

Date Joined Jan 2008
Total Posts : 20
   Posted 6/16/2008 3:32 PM (GMT -6)   
FYI, jellybean forgot to log me out and post under her own name on that last one. haha.

Forum Moderator

Date Joined Mar 2003
Total Posts : 10407
   Posted 6/16/2008 4:30 PM (GMT -6)   
Oh, I'm so happy for you! I know how worried you'd been about this. Now, try to find out why the coverage changed so you can be sure to re-create that situation each time. I hope and pray the Remi works as well for her as it has for me.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Regular Member

Date Joined Oct 2007
Total Posts : 320
   Posted 6/16/2008 5:47 PM (GMT -6)   
Really hope the Remicade works its magic for you and you get to enjoy your honeymoon period far more with far less stress :-)
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 6/16/2008 7:15 PM (GMT -6)   
uofmcamaro and jellybean - many congratulations on your recent wedding!
jellybean - i hope the remi works for you and quickly too! let us know how you fair in the next few days and weeks.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring
Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
30mg Pred until I get set up for Remicade
Co-Mod for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

Regular Member

Date Joined Jun 2008
Total Posts : 99
   Posted 6/17/2008 8:11 PM (GMT -6)   
Ok, so I am already seeing improvement since I had my infusion Monday. I usually run to the restroom about 6 times throughout the night. I woke up this morning at 2am and realized I had not had urgency to use the restroom since I went to bed! Then I actually had a BM w/o blood. I know that is some specific information, but I am just so excited! yeah
-Dx with UC at 17 years old and I am now 22 years old with a serious flare up.
-Medications I am on:
Doctors are about to try me on Remicaide
Celexa ( Anxiety)
-Syptoms: 6 BM/day, heavy rectal bleeding, severe back and side pain, abdominal cramping, fatigue, low blood count,nausea,rectal pain 

Veteran Member

Date Joined Mar 2008
Total Posts : 1766
   Posted 6/17/2008 10:05 PM (GMT -6)   
That's awesome, Jellybean!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 2.4 g Lialda

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