Another update: Boating again yesterday - no thoughts of poo!!! My husband commented that I must be feeling better. I guess some of my actions have changed and I know my moods are better. I've been having, on average, two bms per day. They have been solid and firm! Hooray! I've been eating most of what I want - salads, pineapple, pizza...
I stepped to 15mg of pred yesterday - Saturday. This could be a telling week. Usually under 20mg of pred symptoms start to reappear. Next remi infusion on Tuesday.
I still am very tired. I'm hoping to build some "energy" since my body doesn't seem to be fighting itself so much. I know that physically I am getting stronger... Now if I could only DROP this pred weight...
I still feel "twinges" in the guts. I haven't had any urgency since my infusion. Friday night we ran some errands and I started feeling twinges, but didn't feel I had to GO and it was about
two hours later that I finally HAD TO GO.
I'm taking it all as positive signs! I have big dreams of getting off of some oral meds as being on both Imuran and Remicade scares me - the chance for lymphoma is increase, yet still small. However, I'm waiting for a while (and my doctor's blessing) to start tapering meds beside the pred.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status: close to remission?!?!?
15mg Pred, Asacol 12 per day, Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion on 06/17/08: Next infusion on 07/01/08