I think I'm now colitis free...

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Numb78
Regular Member


Date Joined Sep 2007
Total Posts : 63
   Posted 6/17/2008 6:05 PM (GMT -6)   
Well hello all, I thought that I would give the latest update on my year long flare...

After trying all the colitis meds right up to Remicade nothing was working for me so I started to talk to the docs about surgery... In the last few months I have been to the ER many times for pain and dehydration and on the last trip I was admitted to the GI ward. Well 2 days after I was admitted I woke up with the most unbelievable blinding pain I had ever had in my entire life, on top of that I was vomiting some real nasty black stuff. The GI doc was paged immediately and a CT scan was ordered. Sure enough during the CT scan they discovered that my bowel had actually perforated and believe me this is an unbelievable pain that I don't ever want anyone to experience. So given that the surgery was no longer an option and it was time to say good-bye to the old colon and colitis.

So now I'm learning to live with the ostomy bag and waiting for the pathology results to confirm 100% that it was colitis and not Crohn's. After I get better I guess I have to make the decision whether or not to have the J-pouch option. I probably will have the J-pouch but after being sick for so long I don't know if I'm ready to run back for another operation as soon as I'm feeling better.

I guess my point is that on one hand I'm a little upset that I had to go through the surgery but after being in a very bad flare for a year I think this will give me some of my life back. I have lost so much weight and been through too much, as of right now I'm 6' tall and weigh 130lbs, I spent the last year chained to a toilet, not working not doing anything. I can't wait until I'm feeling better and able to get back into life. I am almost happy that the surgery had to be done on an emergency basis as I didn't have any time to think or worry about it.

So if there is anyone out there who is about to have the surgery or wants to ask any questions please feel free. I'm going to be home sitting on the couch recovering for quite some time!!
29 year old male, diagnosed after bad flare in Summer 2005, quickly brought into remission by pred and salofalk. 2 years symptom free after that!!
Currently in a flare since summer 07 - I desperately miss remission!!!

Current Meds: 40mg of prednisone after IV steriods during hospital stay, 4000mg salofalk, calcium supplements, Pantoloc, Buscopan, Clonazopam, Cortenema
Started 100mg Imuran Jan 15/08 - no noticeable effect yet... aside from nausea, vomiting, fatigue...
Started Remicade May 21/08... results yet to be seen, but hopefully this will do the trick..


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/17/2008 6:24 PM (GMT -6)   
I wish you the best speedy recovery. I hope things start to look up for you. Thank you for sharing your story. Do what the doctors say and take it easy.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/17/2008 7:47 PM (GMT -6)   
Take care of yourself, and remember it takes quite a while to recuperate from major surgery. Sorry you didn't get to make a decision, but congratulations on being UC-free!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/17/2008 8:18 PM (GMT -6)   
I will pray for you that it was in fact UC and not Crohn's (don't worry it wasn't) and you're 100% now IBD free!!! :-)
On another note you'll be able to delete all those nasty meds in your sig yeah

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/17/2008 11:06 PM (GMT -6)   
I really hope you don't have Crohn's and good luck w/ recovery!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 2.4 g Lialda


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 6/18/2008 3:51 AM (GMT -6)   
Take care get lots of rest and think about all the things that you will be able to do when you are better.
  
  Diagnosed 22.5.08 with Lft sided U/L
  Meds Predfoam 20mg 2x day
  Mesalazine 400mg 2x day


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/18/2008 8:10 AM (GMT -6)   
Congratulations on your new found health! You can now take the time to enjoy life again and all it has to offer. You don't need to make any decisions soon to move forward with more surgery. Many ostomates waited a year or more before having the jpouch surgery. The important thing now is to concentrate on your recovery and work at getting your life back. Enjoy!

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 6/18/2008 2:25 PM (GMT -6)   
You've been through sooooo much pain and suffering, and it's good to see you're optimistic about your future after surgery. I truly understand you feeling the way you do about being forced to have surgery, but you had no choice.

I hope your recovery is smooth. Keep us updated as to how you're doing...for it's important for all of us to know.

Be well,
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/18/2008 7:41 PM (GMT -6)   
Best of luck in whatever path you take! I hope your recovery continues to go smoothly :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
25mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion:  06/17/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5185
   Posted 6/18/2008 8:32 PM (GMT -6)   
Ghastly experience! I wonder, was it toxic megacolon that got you so sick? Best wishes for steady recovery! Take it one day at a time; like Suebear says, you don't have to schedule j-pouch surgery right away. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])
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