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Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/17/2008 10:02 PM (GMT -6)   
I just got put on one a day of them. Is that a bad as it seems to me? I've never heard of an enema a day for meds. I was on 12 asacol a day, but I was getting enough side effects he canked it down to 6 and that wasn't working enough. Now I'm on 3 a day and the enemas, and I did a prednisolone burst a few weeks ago. It all just has me feeling...pitiful.

kmach33
Regular Member


Date Joined May 2008
Total Posts : 21
   Posted 6/18/2008 2:15 PM (GMT -6)   
I was recently put on the enemas and take one nightly. It definately isn't enjoyable, but the suppositories alone weren't cutting it for me. I really didn't do much to help myself until this past year and no matter how much it stinks to do or makes you feel pitiful, if it can make you feel better it's well worth it and you won't mind doing it. Also, from alot of the other posts and meds people are on that i have read here, it seems like there's quite a few people that take enemas nightly.
23yr old male, diagnosed October 2003
Medication:
9 Colozal/Day, 100mg 6-MP, 1000mg Canasa, Rowasa Enema nightly
Supplements:
1200mg fish oil/omega3 capsules/3x daily, 2 probiotics capsules/daily, 1mg folic acid


quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 6/18/2008 2:16 PM (GMT -6)   
Pitiful in what way? That you have UC?... That you have to use meds?...That you have to shove meds up your butt more than once?

The enema is retention...not the kind that make you have a bm.

You use them at night....follow the directions.

3 Asacol a day aren't enough....

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 6/18/2008 6:06 PM (GMT -6)   
I know what you mean. I refused Rowasa for 9 months, because I was nervous about it and didn't like the thought of it. It freaked me out. Then, I got desperate enough to try them. They're not that bad. It's a small amount of fluid and it is possible to retain them at least for a short amount of time. I used them for a week (even though the GI told me to do 2 weeks). It helped! (I'm not better, but it definately helped.)
 
You see, the problem with oral meds is that they may not disintigrate in the correct spot and the suppositories only effect the rectum. The enemas can go all the way through the rectum and get to the trouble spots.
 
My new, awesome GI told me that even if you put it in for a short time, there will still be some benefit.
 
It's hard, but try to get over your hesitations.
Tressa 34 (F)
Not sure of my dx- currently UC, maybe Crohn's.
Colazal 3X3/day
Lialda upped to 4/day,
Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa at night X 14 days
Canasa BID


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/18/2008 6:22 PM (GMT -6)   
Ulcerative colitis blows. There's nothing redeeming about it, and no reason to pretend there is. . . .

I have a standing script for Rowasa, and I've been thinking about using them again, but I've never gotten much relief from retention enemas. It was also never that easy for me to fully comply with them.

Bleeding-wise, my trouble has always been pretty high in the colon. That may have an effect too.

munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 6/18/2008 7:14 PM (GMT -6)   
no, one a day for the enemas are not bad. You should do them nightly, then as you progress and if your Doc thinks it's ok, you can go to every other night, then spread it out more eventually. They really help alot. They're really not that big of a deal. Just do it when you are going to bed for the night. It may be hard to retain in the beginning, butt..........you will get better at retaining them.  Good Luck


*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once every 5th day. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin....
 


Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/19/2008 12:24 AM (GMT -6)   
Retaining isn't really an issue, I just don't like it really. And the thought of bringing enough of these on person to Afghanistan kinda isn't helping. And does anyone else get really discomforted if they miss a meal? I've been noticing lately if I miss breakfast or lunch it really bothers my stomach. That and alchohol as a general issue?

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 6/19/2008 7:05 AM (GMT -6)   

missing meals is a definate no-no for me.  My stomach gets really "talkative".  Rumbly and uncomfortable.  As for the enemas.....Can you ask for the cortifoam, it is much smaller, totally helped me and way easier to take.  I am not sure why you are going to Afgan.  but the enemas are very bulky to travel with, the cortifoam would be much easier.  With that said, if your inflammation is not restricted to your rectum, the cortifoam will not do as much good as the enemas.  I take 2 enemas (rowasa) nightly.  At the same time.  Once you get used to it, it is not a big deal.  Worst part is the gas I have the next morning.  Good Luck with both your trip and your UC.  I hope you find something that works for you and that you are comfortable with.


diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/19/2008 6:27 PM (GMT -6)   
Well I have a decent bit before Afghanistan, I'm hoping to have my meds under control before then. And pretty much my entire system is affected. And as for missing meals, right now I have some manner of control over it, but deployed I know I don't. In Iraq I was going over a day without food, now I don't think my body would allow it.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30704
   Posted 6/20/2008 12:04 AM (GMT -6)   
I'm curious how you could be deployed to go to Afghanistan with a bowel disease? Do "they" know you have it?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/20/2008 1:17 AM (GMT -6)   
Yes they do; hell, a military doctor diagnosed it. I was told I can deploy as long as I'm on oral meds. And although I'm on the enemas no ones yet to mention anything contrary to me being able to go. From what I've seen in my time in, Med Boards tend to be sought out. The infantry tends to go on the logic that if you look ok then you can still do the job.

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 6/20/2008 7:08 AM (GMT -6)   
Oh my, I would think this would disqualify you from active duty entirely. Here is another example of people not understanding what you have to go through. That sucks, and I wish you the best of luck with everything. Stay safe and God bless you.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


Scottjk7890
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/20/2008 10:49 AM (GMT -6)   
Thank you, and it kinda does actually. I found UC on a list of things under advisement for a medical review board. As long as they don't hear anything essentially no one does.
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