I don't have Colitis apparently, what next?

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LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 6/18/2008 9:52 AM (GMT -6)   
After my latest bleeding episode I have been told I have an Ulcer and Small Piles - by leading Gastro in the UK - Prof Jay Arnold. He works with my Tatler Top 5 Gastro Mr Chopada. They both agreed that I have a rapid transit (IBS) so the blood colour is difficult to use as an indicator of where it is coming from.
 
In the last week I have had black stools and taken Flagyl and Anti Acids which have cleared it up. He also did a OGD, Flexi Sig, Barium MRI Scan with dye to check for Chrohns, Colitis, Cancer etc, he did blood work and stools tests every day (5 days in private hospital).
 
So what do I do? I am scared to come off the Asocol as suggested having seen what it has done to others?
 
Also he has taken a biopsy of the Ulcer and I am worried it might be something else, although he says it is 100% Ulcer.

Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Prescribed: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: One or sometimes two BM's a day often linked to anxiety and stress (IBS). In remission since October.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/18/2008 10:02 AM (GMT -6)   
Discuss with your doctor your fears of coming off of asacol (I have the same fear). See what he says. Especially if asacol works for you. Maybe you could compromise and just cut back on it? Try not to worry abut the biopsy. I know waiting is the hardest part but your doc seems optomistic, so that is good. Hang in there, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1198
   Posted 6/18/2008 10:30 AM (GMT -6)   
I am not worried about the biopsy as he has confirmed it's an Ulcer and I doubt be would say that 100% without being certain of what one looks like.

I had another flexi sigmoidoscopy and he said there was no Coltis, and no UC. My previous Colitis didn't come up as IBD under a scope so maybe it was just infective?

I am so confused.

God Willing it will be OK.


Diagnosis in October 2007: Non Specific Colitis (possible UC but not confirmed) (Mild inflammation on Rectum, Plus some patchy inflammation on Right side of Colon).

Medication Prescribed: 800mg Mesalazine (Asacol) 3 times a day  

Symptoms: One or sometimes two BM's a day often linked to anxiety and stress (IBS). In remission since October.


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/18/2008 5:40 PM (GMT -6)   
You might taper off the Asacol veeeeeeery slowly. Like drop one pill this week, wait a month and drop another. That will feel safe to you and give your body a chance to adjust.


Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.

Post Edited (Judilyn) : 6/19/2008 6:30:40 AM (GMT-6)


murf28
Regular Member


Date Joined Jan 2003
Total Posts : 78
   Posted 6/18/2008 10:24 PM (GMT -6)   
Just a word of caution. I had my first colonoscopy in 2001 because of cramping and some blood in stools. At that time I was found to have some mild inflammation in the rectum. IBD was not even mentioned and it was sort of shrugged off as no big deal. Because of that I let my symptoms get out of control without seeking medical attention. I ended up in the ER in April of 2002 with severe UC affecting the entire colon. I spent a good 10 days in the hosptial trying to get it under control and had a 3 year flare.

I don't mean to scare you. It is good news that you have no signs of UC, but please, please, please seek medical attention if any symptoms arise.

In response to your original question I would taper slowly off the meds. Good luck to you!

quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 6/18/2008 11:58 PM (GMT -6)   
Judy...I'm not seeing who is on pred?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 6/19/2008 12:09 AM (GMT -6)   
LondonRed....When will you get the biopsy report?

It sounds as though you might have what's called Solitary Ulcer Syndrome....but in saying that you do have patchy right side inflammation...wonder if you treat the ulcer with rectal meds...if the right side inflammation will go down.

The asacol will help deal with the right side inflammation.

Did the doc suggest you go off the Asacol?

quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/19/2008 7:30 AM (GMT -6)   
Yikes! Thanks, Quincy. I meant to say Asacol. I'll edit.

You sharp-eyed woman, you!
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


quincy
Elite Member


Date Joined May 2003
Total Posts : 30998
   Posted 6/19/2008 11:30 AM (GMT -6)   
LOL..not really...more like confused...had to reread each post a few times wondering where it said pred and finally asked ;-)

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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