New Member...Flaring after years of remission

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myzeb1958
New Member


Date Joined Jun 2008
Total Posts : 1
   Posted 6/18/2008 6:12 PM (GMT -6)   
Please forgive me all for being new at this site...I for the life of me have no clue where and how to update my profile. But more than anything I need to reach out to those who have and understand this disease I have. I was in remission for over 10 years and man, oh man, it has come back big time. To make a long story short in between those 10 years I also had major brain surgery and was handed divorce papers after almost 27 years of marriage....I think the exact words were.....you are such a burden. Well, now with all this stress I know why I am in a full time relapse. I can honestly say walking around bald with stitches from the brain surgery was a heck of a lot easier than now running through the store not making it in time and knowing everyone can smell me as i run by. Not having clean clothes to change into as I leave. This has to be the most humiliating and silent disease. I have isoloated myself and I don't know how to handle all these emotions, fears and worries. Thanks for listening.

Post Edited By Moderator (tjf) : 6/18/2008 5:23:16 PM (GMT-6)


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 6/18/2008 6:26 PM (GMT -6)   
Hi and Welcome!! I added a title to your post. Sorry you are having a tough time right now. Brain surgery? Wow! Are you on any meds?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/18/2008 7:15 PM (GMT -6)   
Hello and welcome.  I'm glad you found this site, it is great.  To update your profile, go to the control panel toward the top and then go to edit profile.  I had the same question recently.  I am sorry for all of your struggles you have been going through.  Just remember this too shall pass.  I hope you start to feel better real soon.  Take Care, Bellski

Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/18/2008 8:27 PM (GMT -6)   
Hello and welcome! We're so sorry you had to find us, but we're very happy you did :) We have a great, caring community - lots of knowledgeable and supportive members.

You're having a horrible time of it... What meds are you on? Have you contacted your doctor about this flare? So many of us feel the same - isolated, embarrassed, defeated - at times. Therapy might be a good option with all you've been through. We're also always here to listen - so vent away!

Take care!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
25mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion:  06/17/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


quincy
Elite Member


Date Joined May 2003
Total Posts : 30842
   Posted 6/18/2008 11:55 PM (GMT -6)   
Hi myzeb1958....welcome to the forum!

Some life events can be extremely tramuatic for one's psyche.....divorce is high on the stress %. I can't imagine hearing from someone I was married that I was a burden.

I do hope you're on medications that can help get your UC flare under control.

If you aren't using rectal meds...please consider them...for they'll help.

Using fibre supplements can help bulk up diarrhea....helping to slow down some of the bathroom episodes.

Where in the colon is your UC...limited or throughout?

I hope you have supports through friends and other family.....

Welcome again,
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/19/2008 8:13 AM (GMT -6)   
I had a 10 year remission too followed by a severe flare. I know how debilitating and isolating it can be. Stay in touch with the board, there are lots of people here who understand what you are going through and will provide you with advice and support.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/19/2008 9:49 AM (GMT -6)   
Hi and welcome, I had a 7 yr remission, it is a battle, emotionally and physically.

what meds have you been on, what are you on now and was does your GI plan to do to help you?

btw, I was completely clueless, when I I got into my last flare.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 

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