confused about the medications?

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jayce
Regular Member


Date Joined Nov 2007
Total Posts : 382
   Posted 6/20/2008 6:12 AM (GMT -7)   
hi- my daughter was put on 6mp back in january, she also is on rifaxamin and doesn't
want to stop it and coloazol- she is holding steady and feeling well except a little more tired than she used to.
I worry about 6mp and it's possible risks, and now that she is feeling well i wonder if we should eliminate it and see if the other 2 drugs are what is keeping her well.my feeling has always been that it was the rectal meds and the rifaxamin and colozol that worked because the bleeding stopped with in a week of starting those and 6mp take s many weeks to begin.
having said all of this her scope showed no sighn of disease right now, i don't know what to do about thie 6mp?
can you return to 6mp if you go off it? thanks for any input.
Mom to 19 year old daughter diagnosed 11/07.
colazal 3 x3 daily
purinethol 6mp=50mg daily
culturelle probiotic 1 daily
chewable vitamin
xifaxan antibiotic 400mg 2x day soon to be weaned


Lonie
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Date Joined Feb 2005
Total Posts : 6447
   Posted 6/20/2008 10:24 AM (GMT -7)   
I really think you need to check with her GI before stopping any meds. 6mp takes a while to take effect and I'd hate to see her stop it and start having symptoms again and then have to go back on and wait for it to take effect again. I haven't been on 6mp so I can't say this is for sure, so really, best to check with her GI.

Carol

Remicade - will have my 22nd infusion on June 12.
Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/20/2008 2:08 PM (GMT -7)   
Ultimately, I guess your daughter will do what she wants. But I really don't blame her for not wanting to change anything. When you've been as sick as we get, and you finally feel better, it's really hard to change anything and take a chance. At this point you have no way of knowing what med or combination of meds helped her, so stopping any of them is a risk.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Silent Lucidity
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Date Joined Nov 2007
Total Posts : 625
   Posted 6/20/2008 3:46 PM (GMT -7)   
6mp and Azathioprine have been in use far longer than the newer immuno-suppressives and are "tried and tested".As long as she's getting regular blood work there's no real need to worry.As previously posted,if the 6mp is keeping her in remission,it's a long road back if she stops taking it.
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


Silent Lucidity
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Date Joined Nov 2007
Total Posts : 625
   Posted 6/20/2008 3:49 PM (GMT -7)   
Forgot to answer one of your questions;yes,she can go back on it if she stops.I'm on my third time now,but will now stick with it for as long as it works,I've learned my lesson the hard way the last few years!
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5151
   Posted 6/20/2008 8:05 PM (GMT -7)   
Any change in meds at this point is best decided by your daughter's gastro. As Silent Lucidity points out, stopping med can result not only in a flare-up of UC, but even worse, can lead to pancolitis UC. Give the regimen some time; 5-6 months may seem long to you though it's really not-- since your daughter was diagnosed less than a year ago. It sounds like you have reason to feel positive about her situation right now & try to relax a bit. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 6/21/2008 5:21 PM (GMT -7)   
Don't you just hate it when your posts vanish for absolutely no reason what so ever?
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 1x BIOCeuticals UltraBiotic 45 + 1x SB FlorActiv twice a day.


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/21/2008 6:19 PM (GMT -7)   
Severin, I have no idea what happened to your posts. Please do feel free to re-post, as your information is almost always helpful.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5151
   Posted 6/21/2008 6:26 PM (GMT -7)   
Judy & Severin-- this post by PLEASE somehow got divided in two! You'll see if you look at earlier pages. (FYI) / Old Hat
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