Collagenous Colitis or Microscopic Colitis

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lisateacher
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/20/2008 7:27 PM (GMT -6)   
Brand new diagnosis for me, today. How does such a condition as this decide on a Thursday afternoon... at 3:30...between students...to suddenly attack a body? Now my doc has prescribed 6 pills a day for 6-12 months with the hope that it might resolve. A realistic expectation??? I'll do whatever I can to help that be so but I have questions. I understand I am to eliminate caffeine and lactose. What I can't seem to sort out is how to plan a meal! Is there anyone else out there with this diagnosis that can offer suggestions for breakfast, lunch, dinner, snacks...? I need help with good breakfast choices. Well, actually all 'meal' choices. I've been on Weight Watcher for the past year. I try very hard to limit white foods and sugars so as not to tempt fate and tip the diabetic numbers. There just seem to be too many 'factors' for me to sort to come up with eating plans and I would greatly appreciate some help. This is the first time I've been to this site....so I hope there is someone out there with a few suggestions for me. Thanks in advance for your consideration. Keep well.

bap06
Regular Member


Date Joined Jun 2008
Total Posts : 57
   Posted 6/20/2008 7:38 PM (GMT -6)   
Hi there... Sorry to hear about your diagnosis. I wish I could give you specific things to eat, but you'll quickly find that some things will bother you that don't bother others, and vice versa. I will tell you that one of the best things that I did after my diagnosis was to meet with a nutritionist who specialized in colitis. I was having the same problem you are - tons of food that I knew I couldn't (or shouldn't) eat, but didn't know what the heck I should eat. She worked with me to devise daily meal plans, and I really learned a lot from her. I really recommend doing this. Good luck, and search through the site for diet info - I know there have been some recent threads on this subject! Feel better, and hang in there.
*Diagnosed 10/07 (6 months pregnant w/ 2nd baby)
*Asacol (4 pills 3x a day)
Canasa
Prilosec
Calcium, multivitamin, Metamucil


lisateacher
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/20/2008 7:58 PM (GMT -6)   
Thank you! That's a really good suggestion and I'll follow it. I appreciate that. We leave on Sunday for vacation with the family, so I'll be 'winging it' I guess until we return next week at least. The doc put me on ASACOL, also..only I'll be taking 3 pills 2 times a day. I hope it makes a difference soon and I hope it 'agrees with me'?? Not sure what to expect. Yesterday was the first day I ate ANYTHING in 5 days! I'm not particularly hungry. I didn't lose much weight :( . I just want to feel more comfortable and get my body back to processing food 'normally!'. That scope prep was absolutely pure torture for me! I don't want to be a distraction for my family on our trip. Thank you, again, for your recommendation and I will do that.

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/20/2008 9:00 PM (GMT -6)   
A few links to help you, if you haven't already found them:

http://www.mayoclinic.com/health/collagenous-colitis/DS00824
http://www.medicinenet.com/lymphocytic_colitis/article.htm
http://digestive.niddk.nih.gov/ddiseases/pubs/collagenouscolitis/

It is best to stay away from NSAIDs such as: ibuprofen, naproxen, aspirin.

A trip to the nutritionist is a good idea. Make sure that even if you are not hungry, that you are getting appropriate calories - they are very important to help your body heal.

Have a great vacation! (Pack some Immodium just in case - we don't advocate using it often, but it's good to have along if you should need it on vacation.)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
25mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion:  06/17/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


lisateacher
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/20/2008 9:20 PM (GMT -6)   
Thank you so much for the links and for taking the time to send your message. I appreciate it a lot.
I am switching off of Advil and will try Tylenol if needed.
I take a recently prescribed anti-inflammatory, Arthrotec, for a painful arthritic hip that has plagued me for 14 years. This is the first medication EVER that has actually made it possible to go thru a day...pain free! in 14 years. I am not willing to trade it off. Absolutely NOTHING has ever helped til this med. I hope it is not a contributing factor in my new diagnosis....but, time may tell. The only other med I take is a thyroid pill, Levoxyl.
I am hoping to have a great time with our sons and their pregnant wives on this vacation. Thanks again
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