June 23 Webcast on: Colitis and Surgery: Why You Shouldn't Wait Too Long

If any of you are hearing that one word from your doctor "Surgery" and you have tons of questions, you might want to listen to the HealthTalk on June 23 regarding the topic: June 23 Webcast on: Colitis and Surgery: Why You Shouldn't Wait Too Long

http://ucstory.wordpress.com/2008/06/23/discussion-on-to-wait-for-uc-surgery/

That decision to pick the "optional" surgery for some is really really difficult, it took me three years, but this information may be helpful?!  We also just posted some new videos on my uc to jpouch blog that are about UC, jpouch and related stuff:  http://ucstory.wordpress.com

mark

Ah man, I'm getting this error when I try to access the webpage sent in my email to listen to the webcast:

The web site you are accessing has experienced an unexpected error.
Please contact the website administrator.

:(

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Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)

Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine

4800mg Asacol (Four 400mg tablets, three times a day)

 

I was finally able to listen to this and it was great. Anyone considering surgery should definitely listen to this webcast.

Thanks again Mark

It was an amazing webcast. I have never listened to or participated in a webcast and this was a real eye opener. They really touch on everything Colitis related. They answer lots of questions right down to how u might feel the day after surgery.. and the days afterwards.. etc etc etc. Its truly a good listen. :O) Thanks got the info Mark.. your blog is great, I love the picture diary and the link to this webcast was also GREAT. :O) Thank you soooo much.

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Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!

No problem, thanks for the message! :) I'm at work and they have myspace blocked here (of course, they're no fun. Hahah) but I will check it when I get home!

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Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)

Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine

4800mg Asacol (Four 400mg tablets, three times a day)

 

I finally listened to the webcast this weekend. It was really informative and helpful. I had my parents listen as well, and now my dad's bugging me to email the surgeon that was on to ask her opinion on my situation--I'm not sure if I'll be doing that...After listening to it, I want to have a laparoscopic surgery even more (I'm mostly worried about fertility issues) but I can only find one near me who does it and I'm not sure if he's experienced.

Thanks for posting it, Mark!

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Female, Age 19, Dx w/ UC August 2007

9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day

Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (2nd infusion 06/26/08), 2.4 g Lialda

Sorry it didn't work for you, I can't explain why not, but here is the link to Health Talk:

http://www2.healthtalk.com/go/colitis/webcasts/colitis-and-surgery-why-you-shouldn-t-wait-too-long

If you can't access that then just try going to the http://www2.healthtalk.com/go/colitis  Health Talk website, and look on the left side for the webcast replay for : Colitis and Surgery: Why You Shouldn’t Wait Too Long 

You should listen, it is really good!  Also, thanks for the links to the photos for the ostomates, that is so GREAT!