I've been following this site for about 18 months now and found some great advice and help, although only decided to join today as I need some extra help. I live in the UK and was diagnosed with Proctitis in Sept 2006 and originally put on Pentasa 4 x 2 a day along with vitamin supplement,mebeverine,zinc,vit c,aloe vera,bro-biotic and prednisolone when flaring although my consultant is reluctant to use steroids.
Pentasa worked reasonably well until Dec 07 and until this point I had 4 or 5 minor flares. At the end of Dec 07 I had flare which resulted in 7 weeks off work and meds were changed from Pentasa to colazol (balsalazide)3 x 3 a day and tapered down to remission, currently 2 x 3 a day. The wierd thing is I always seem to flare after visiting friends and family in Devon where the water is very soft,we visited 4 weeks ago and I took my own bottled water with me,but did drink boiled water from tap in tea etc and although I didn't flare whilst there I have felt as though i've been fighting with my body ever since, does any one else have issues with change of water or is it in my head?
I've had 3 reasonably good months until now! I joined a slimming world group last Wednesday as since being diagnosed with Proctitis I have gained around 14lbs.I lost weight during my first flare and since being put on meds I have gained this amount,I find this bizarre as most other people seem to lose weight with this disease from what i've read.I decided slimming world would be ok as I can choose what I can eat
Since being diagnosed I have not been able to eat any fruit containing pips so opted to buy melon and grapefruit to see how it would go.I had 2 segments of grapefruit on Thursday and have been bleeding since Saturday,the diet also seems to base around low fat dairy ie.yogurt etc and I have eaten more than I normally would,could this be inducing a flare or is my body just needing time to adjust to new foods?Today I have gone sick from work as I am so sore,I'm not trying to lose loads of weight I just want to feel comfortable in my clothes again, this disease has taken over so many aspects of my life including my appearance that I just want to feel comfortable before my holiday in August.
Sorry its such a long thread but I have many questions and I am confused. I hope someone can help.