Family Cottage w/only one bathroom...

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glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 6/23/2008 7:23 AM (GMT -6)   
Ugh, my family has a summer home on a lake that my DH & I used to go to almost every weekend before I had UC.  Now that I have UC, we haven't been there in 3 years.  There are always other family members there so I'm basically sharing one bathroom with 4 or more people (sometimes as many as 10). 
 
Are there any super duper anti diarrhea meds that would stop me up for a weekend? lol.  I'd love to be able to take my DD to the cottage for 4th of July weekend.  The way my UC works is that first thing in the morning, I HAVE to go and there is no holding it.  The anxiety kills me every time I hear someone enter the one bathroom so it's like a double whammy (the urgency and the anxiety). 
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 6/23/2008 7:36 AM (GMT -6)   
I'm sorry you are dealing with this stressful situation. I haven't been able to stop things moving, but when I have been in this situation I just get up in the morning and take my shower first thing. That way I have first pick at the bathroom and I can get everything out of the way. Then I try to make regular trips to the bathroom when family is engaged in conversation or outside. It is tricky and it is stressful, which only makes your UC worse. And there is always the "mercy flush". Good luck - try to enjoy your trip!
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 10mg (tapering), Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/23/2008 8:17 AM (GMT -6)   

I was just diagnosed with UC but have had IBS for many years.  I always have luck with Imodium taken 2 hours before going anyplace.  As for sharing a bathroom - you have to get up earlier than rest, move around and your turn will be first!  I found that works when traveling with my husband and only one bathroom.

Be sure to eat what you know will give you the least amount of problems too!

Good luck and have fun!

Elaine


68 year old female
diagnosed IBS about 20 years ago,
colonoscopy one year ago diagnosed as colitis
which cleared up by itself using Imodium when needed,
flareup (with rectal bleeding and diarrhea)- 2 months ago, colonoscopy showed mild
UC rectal and little above.
Taking Canasa 1000mg. once a day - just started.
Other medication...
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax for anxiety
Lipitor
multi-vitamin
calcium w/D
Tylenol for arthritis
 


LilyPirker
New Member


Date Joined Jun 2008
Total Posts : 19
   Posted 6/23/2008 8:44 AM (GMT -6)   
I agree, getting up earlier and getting first take on the bathroom will help. As well, it doesn't hurt to have a conversation with your family....as I am sure most of them know already but giving them an understanding what you go through will help. You will be suprised just how understanding and patient people can be. I had the same conversation with friends when we went to the cottage as well as they were really good about giving me my time in the morning.
Just remember to pack plenty of air freshener :)

Diagnosed with UC in 2000

Medications:  Asacol 800mg tablets 5/day, Salofalk enema nightly


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/23/2008 8:48 AM (GMT -6)   
Hi, I feel for you.  My advice is this: Don't eat much, eat and drink only what doesn't bother you as much.  The shower is a good idea in the morning.  If you tend to be gassy and don't want anyone to hear, run the shower while you go.  Other times, run the water.  Go to the bathroom when the others are outside.  Use the immodium if it works for you, try it before you go.  Try to relax and not stress.  Bring air freshener and some bathroom cleaner, that way you can keep everything nice and clean for everyone, just keep it in the cabinet in the bathroom.  If you think you have to go bad and there is some errand that needs to be run, offer to go and then go use a public restroom when possible.  Good luck, hopefully they all love you and know what you have and will not even care.  Try to have fun.  Bellski

Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: symptoms have subsided for the most part
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1, Canasa (sometimes) Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/23/2008 8:48 AM (GMT -6)   

Just as a comment.  I never had "smelly" bms (not more than usual) until I started using Canasa.  I think the medications make it worse.

My family and friends always understood and let me come in to "go" even when they were showering behind the curtain. 

ElaineNY


68 year old female
diagnosed IBS about 20 years ago,
colonoscopy one year ago diagnosed as colitis
which cleared up by itself using Imodium when needed,
flareup (with rectal bleeding and diarrhea)- 2 months ago, colonoscopy showed mild
UC rectal and little above.
Taking Canasa 1000mg. once a day - just started.
Other medication...
Probiotic Align
Prilosec for GERD
Inderol for hypertension
Xanax for anxiety
Lipitor
multi-vitamin
calcium w/D
Tylenol for arthritis
 


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 6/23/2008 9:40 AM (GMT -6)   
Some of us have had success using a probiotic called, 'culterelle' which helps to give you formed stools. Other things like avoiding foods that are high in sugar 'may' help as well. Another good idea that someone mentioned is to eat less, but particularly less starchy foods and breads -- also avoid milk. These are things you can hopefully experiment with before your trip, to see if anything works for you.

Good luck,

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


CavsFan
Regular Member


Date Joined Jan 2007
Total Posts : 95
   Posted 6/23/2008 9:46 AM (GMT -6)   
Not eating much helps tremenously.  But, at the same time, don't NOT eat and let your stomach get so empty because then when you do put something in your stomach you'll be in the bathroom instantly.
 
But as for stopping the diarrhea, Imodium, for me works to the point of constipation.
 
Also, this may sound odd, but in thinking about your problem this came to mind - I'm allergic to milk so when I do want to eat something milk-based I take a lactaid pill and that stops me from going to the bathroom for DAYS, I swear.  So maybe try a lactaid pill during the week sometime to see if it works and maybe you can use that on the weekends when you're at the cottage.

PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 6/23/2008 10:00 AM (GMT -6)   
I have no new suggestions other than what has already been mentioned. Just wanted to say Good luck and hope you do get to go. I live with one bathroom in our house so I've just gotten used to it and my family is understanding of it.
Kim ~ Mom of Nathaniel aka "Peanut" 18months old
========================
I'm a married 36 yr old mom and here's "The list "
- UC 1997 currently unmedicated was on Colozal from 2001-2007
- Stage 3 CKD (Chronic Kidney Disease) 2007 taking 7.5mg lisinopril
- Anemic - Ferolicit IV bi-weekly
- Ashermans Syndrome - no treatment
- Allergies - water - haven't been tested officially but pine suspected


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/23/2008 10:22 AM (GMT -6)   
two words.....bathroom radio........when you have to go and you know it will sound like a symphony of destruction, turn it up and just say, OMG! I totally love that song.

Bring a bathroom radio, some new towels, scented candles, crossword puzzles and magazines, make it a 'spa bathroom'. Make a joke and say, well I'll be spending so much time in there might as well make it nice, feel free to enjoy yourselves too.

Also, I am at the point now, w/family they all know and ya know what, everyone poops. I still have a hard time going where ppl can hear me though, especially friends of friends, if we are visiting somewhere and the only bathroom is in the kitchen and everyone is there and it's like please, oh please, just get out of here and let me go!!!!!
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/23/2008 10:33 AM (GMT -6)   
How about if you take a port-o-pot along with you, I have one in the back of my minivan so that I can leave the house period...you could try that, maybe keep it in the room you sleep in?

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 6/23/2008 11:07 AM (GMT -6)   
Thanks for all of the suggestions.  My issue isn't the embarrassment of smelling up the bathroom or being too loud, it's someone being in there when I need to go.  Yes, I can get up earlier and make sure I have first dibs on the bathroom but that doesn't do me any good if a few hours later someone is in there and I have to go.  I cannot hold it when I have to go so if someone is in there, it's big trouble for me. 
Female, Age 37
 
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03
Diagnosed with UC 2/03
_____________________________________________________________
Current Meds:
75mg 6-MP
Entocort
Cortenema as needed
Ferrex Forte
Acidophillus
Sacchromyces Boulardii 


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 6/23/2008 11:19 AM (GMT -6)   
hi glamourgirl,
i have the SAME issues you do when it comes to anxiety of hearing someone go in the bathroom. all of a sudden i'll need to go. i also talk with my family when we're all sharing one toilet so they know i'll knock if i REALLY need to get in there.

but ditto what pb4 just wrote. get yourself a nice camping porta potty. they even have some that flush so you could just leave it in your room for such an emergency. i find that just having something like that around gives me less anxiety, and then i'm able to wait for the real toilet. :) would be worth a try!
29, happily married, stay at home mom to 2.5 year old son. due to have another boy 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Prayer! asacol, probio, ground psyllium husk, prenatal, folic acid, cal-mag

may you live all the days of your life.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/23/2008 11:55 AM (GMT -6)   
I was going to suggest a make-shift toilet or something of the like. But this potty pb4 mentioned sounds good! I'm sure that if there are as many as 10 people up there, that someone else might find it useful too!

When I'm in a similar situation, I always pack extra TP and can find a spot in the woods, or behind a vehicle, if necessary.

Just remember that "it'll be okay!" and have a good time :)
 
**Removed my messed up sig...

Post Edited (dakotagirl) : 6/23/2008 7:47:41 PM (GMT-6)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/23/2008 1:11 PM (GMT -6)   
I was in a similar situation at a ski lodge. Everyone told me to kick them out of showering, brushing their teeth, whatever, if I had to go. That really reduced some of my anxiety. With my mom, I will poop even if she is in the shower. Just two weekends ago I was visiting family and had to kick my dad out of the shower so I could poop. He understood. She doesn't care. We can't see each other and really, we can't hear each other. I also would just go out in the woods if there is a place no one would see you. Finally, I keep a trash can w/ a trash bag in my car. You could keep one in your room. If you use it just tie it off and chuck it in the dumpster like you would dog poop!

With more distant relatives or friends I could see where it would be embarassing though.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/23/2008 1:17 PM (GMT -6)   
I have the same problem. We go up to the in laws cottage alot and sometimes we have as many as 15 people there and only 1 bathroom. I keep telling them that I am going to invest in a port a potty! So I get up earlier then everyone else, have my coffee and then do my thing. That way the morning urgency is taken care of. Plus by getting up early I get to see things that the others miss such as deer, fish jumping, wild turkeys etc. You can also get a camp toilet. Put it in the garage, woods or wherever and use it in emergencies.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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LightenUp
Regular Member


Date Joined Jun 2008
Total Posts : 20
   Posted 6/23/2008 3:17 PM (GMT -6)   

Isn’t it crazy, the things we have to think about? Where’s the loo? Is there air freshener? What time do I have to get up to a) get uninterrupted loo time, and b) get my 4-5 bm’s done in enough time to make it to work? Will there be enuf TP!!!???

 

I swear if this disease wasn’t so tragic, it would make us all experts at logistics.

 

Although my sister is visiting next weekend from PA, I’ve had to be the one to decide what weekend events we can and can’t participate in, which sucks when I’m in the middle of a flare. So it’s “no, we can’t do the nature trail walk…” and “no, we can’t spend Sunday on a boat – yes, I know it has a bathroom…”.

 

What a life.


Darryl, 58, Male, FL
Dx w/UC in 2000
Meds: (None seem to work so far, including Remicade)
> Colazol, 6/day
> Methotrexate, 1 shot/week
> Prednizone, tapered to 7.5mg March to May 2008 now back to 20mg/day
Good news? Never seem to have complications from any meds.


Silent Lucidity
Veteran Member


Date Joined Nov 2007
Total Posts : 625
   Posted 6/23/2008 4:50 PM (GMT -6)   
The Port-A-Potty thing was exactly what I had in mind.I stay at my Grandmothers a lot,and when I'm flaring we keep a large potty(like a kids,but big enough for my adult butt!)in my bedroom.I haven't needed it yet,but it's reassuring to know it's there.

You could get some sort of screen for privacy,that would also make it less dominant in the room.Get a little bedside type table,with a bowl of water and soap for a makeshift hand basin,and voila,an improvised En-Suite WC!

With the possibility of so many guests,I would imagine it could get used quite a bit when you're not there too,a win win situation!




Edited for typo!
Procto-Sigmoiditis dx 1995.First Colonoscopy in ten years,on 29th Feb 2008,revealed moderate to severe Pancolitis.
Current meds;200mg Azathioprine daily.Pentasa 2 x 500mg 4 x daily.
Got Ryche?

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