Was it Tysabri maybe?
I don't blame you for making the decision you are. I haven't even tried Remicade yet and I'm seriously considering doing the same. I've made a list of questions already to ask a surgeon as well and I think it will really help. Here are some examples if you're interested:
How many j-pouch procedures have you performed? about
how many were laparascopic?
Do you think I would be a candidate for laparascopic surgery?
Do you ever perform the J-pouch procedure in one step and do you think I would be a candidate for this, or is it safer and preferred to do it in two steps?
Could you show me what the scars would look like and where the stoma would likely be placed?
Is there anything that can be done to help minimize adhesions and scar tissue?
I understand that with the j-pouch, most people use the bathroom up to 10 times a day or more after surgery. This is how things are with UC and I’m wondering what difference there would be!? Will there still be pain and urgency?
the risk of incontinence?
How can hernias be reduced after surgery and have you found that they are a common problem?
When do you think I should be able to return to work?
What are the restrictions to follow afterwards, such as how much weight to lift and for how long?
Good luck and keep us posted, I'm really interested to hear what your GI says! I always wonder if they are very reluctant when someone "chooses" to have surgery; I'm afraid mine will give me a hard time and not give me a referral to a surgeon since I'm not deathly ill at the moment.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; oste
openia in hip & lumbar region of the spine from long term prednisone use. Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
4800mg Asacol (Four 400mg tablets, three times a day)