Leukoencephalopathy is rare. It's also very ugly and slowly fatal. I'm pretty brave about
drugs, but that's why I said it's a good drug to stay away from. I wouldn't take it ever.
My GI's staff said they will be using it only for rare cases of really difficult Crohn's disease, but the docs don't feel it's appropriate for UC when surgery is a viable option. The risks are low but terrible.
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.