hello everyone...i had a question and anyone who can respond, it will certainly be appreciated.
my mom has ulcerative colitis and she just had her 3rd infusion of remicade a few weeks ago. She has been in a longggg flare, dating back to jan-feb. She just had her 3rd infusion and she is having slightly less rectal pain then before, but its clearly still there. The main issue is the # of bm's she has a day 10-12 roughly, and this causes the rectal pain. (BEFORE STARTING REMICADE, HER LAST COLONOSCOPY INDICATED ULCERS EVERYWHERE)- THere is no bleeding in the bm's, small very small soft stools.
She is also feeling restless every couple days, her shoulders hurt, feet hurt. and this may surely be from all of the bm's and lack of energy. Her weight has been consistently falling, not to much, but slowly & surely.
Currently she is on 12 asacol a day, 10 mg of prednisone and tapering it down (finally a few more weeks left,hopefully she can get completely off of it!!), also on rowasa enemas, and donnatal (this has helped with her stomach cramping that she was getting after the remicade).
I don't know what to really do considering her symptoms are not improving much. I'm hoping that remicade will certainly help her, shortly!! She will go in for her 4th infusion in the second week of august.
Has anyone been in a similar situation or have any advice for my mom? Anything will be appreciated.
Thank you so much.