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Haroon
New Member


Date Joined Jun 2008
Total Posts : 6
   Posted 6/24/2008 12:09 AM (GMT -6)   
I was first diagnosed with UC back in Nov 2005. GI ran there tests and said it should hopefully never return. So I never thought twice about UC. In Apr 2008 it returned and I also got Pyoderma(some kind of secondly thing to my UC). Both times when I got UC I had just quit smoking. The doc said that nicotine is related to my UC? Anyways now Im taking Mesalamine 2 pills 3 times a day and I'm getting really bad shakes and dizzy spells. I don't know if its from the medicine or if I'm just weak from the hospitalization (maybe someone out there can help me with that?) I would like to know more about how to deal with UC. How often should I expect it to interfere with my life? Should I continue to take my medicine even though I don't have any signs of UC? Should I be on a special diet? Can I still eat meat? Any special vitamins/supplements I should start taking? And any other advice will greatly be appreciated. The internet has given me a complete medical break down of what ulcerative colitis is , but the sites all have different diets, precautions and things I should or shouldn't do. They have confused me a great deal!!

Thanks,
Haroon

Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 6/24/2008 12:44 AM (GMT -6)   
It has been shown to be the Carbon Monoxide rather then the niccotine that has the most effect on UC.

Yes, it is very normal to get a flare up of UC around 1 to 2 months after quitting smoking.

The shakes and dizzy spells are not so good. Have you spoken to your GI about this? There are some side effects to Mesalazine and you may well be allergic to it. The other possibility is you are lacking in one of the various vitamins or minerals. You can get a full blood count and a vitamin/mineral essay done to see if there is a problem there.

Ulcerative Colitis comes and goes as it wills. Taking your medication as a preventative is the best way to both reduce the chances of a flare, and if you do flare, reduce the severity. Most people stop taking their medication and end up flaring badly, many of the regulars on this forum managed to get their Pancolitis (full colon UC) this way.

Diet is considered to not be a factor in UC by the Gastro specialists, but many of us on this forum with the disease argue with that to various degrees. I believe that diet exacerbates the symptoms and can produce a gut environment that impedes colonic healing. There are others who will argue black and blue that eating this or drinking that causes their flares. Most people on this forum will tell you that the three biggest bad things are Sugar, Soda Pop/Softdrink and finally milk and milk products (due to the lactose).

In nearly all cases yes, you can eat meat. You may however need to change how much and which meats you eat. Many of us find that white meats like chicken and fish go down really well, where as things such as steak can vary from difficult to painful. Finally processed meats are out. Full stop. No arguments. Unless you can get real bacon, ham etc from the farm, you will find all processed meats these days are LOADED with artificial colours, flavours and worst of all, packed with preservatives.

Many people on this forum take a standard multivitamin. I don't believe they are necessary and that they are many people's way of getting around the impeded diet many UCers are forced to live with (in most cases). My take is that if you can eat a healthy BALANCED breakfast, lunch and dinner with a good mix of FRESH vegetables, meats and fruits you will be able to get all the vitamins and minerals your body needs. If however you are on prednisone it IS a good idea to increase your dietary intake of foliate (or take a foliate pill).

UC is different for all of us. Some things work, other things don't. You have to work it out the best combination of medications, herbal remedies, lifestyle changes and dietary changes for yourself.

I would suggest going back through the posts on HealingWell and read the Colitis posts that are of most interest to you. You will find just how much it differs for each of us, and you will probably learn a hell of a lot.

Good luck!

--Sev
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 3x Garlic oil capsules & 7mL Olive Leaf Extract twice a day.

Post Edited (Severin) : 6/24/2008 12:50:04 AM (GMT-6)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30373
   Posted 6/24/2008 12:49 AM (GMT -6)   
Hi...welcome to the form!

You've got a lot to deal with while being in only a second flare...
Where on the body is the pyoderma?

It's possible the 5ASA med can make you dizzy...it is one of the possible side effects. You're not on a high dosage, but some people are very sensitive to salicylates.

It could be from your recent time in the hospital...what meds did they put on there?

Has the 5ASA helped you at all regarding some of your symptoms?

Where in the colon is your UC...limited or throughout?

Are you at least eating fairly normally? High enough in protein to get your strength regained?

It's easy to get confused with all the info out there....

Hang tough, you'll learn how to deal and how it'll affect your life soon enough....it's definitely a process.

When did you start taking the meds?

Are you able to get in with your doc to discuss options regarding meds?

Welcome again,
quincy
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/24/2008 7:07 AM (GMT -6)   
Information overload. . . . Everybody's different.  Probably best to try to live life and not become dogmatic about the whole thing.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30373
   Posted 6/24/2008 1:39 PM (GMT -6)   
it'll take a while for it all to get figured out.....unfortunately, experience is the best teacher of what works best for you.

Some thrive on regimented schedules...others thrive on the freedom they allow themselves.

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Haroon
New Member


Date Joined Jun 2008
Total Posts : 6
   Posted 6/25/2008 6:28 PM (GMT -6)   
Thanks for shedding some light on this whole thing. I've been taking the meds since Apr 24 and will see the GI on July 1st.

Thanks again so much,
Haroon

Haroon
New Member


Date Joined Jun 2008
Total Posts : 6
   Posted 6/25/2008 6:35 PM (GMT -6)   
Oh sorry about about not answering the pyoderma question. I have 12 on my back. 2 on the center of my chest ( half dollar size). 5 on my scalp and 3 on my face
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