Update on Colonoscopy

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Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/24/2008 7:51 AM (GMT -6)   
Well, my proctitis is upgraded to pancolitis now. It's sorta depressing but I keep reminding myself it has probably been like this for awhile since I haven't had the full colon scoped in since 99. I have to say I don't remember much about yesterday. Don't even remember putting my clothes back on, lol. Seems it stopped at the ileum, but it changes how I attack this thing now. I was just worried about the end parts now I have to do some standing on my head to get these enemas deeper when I do them.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/24/2008 8:06 AM (GMT -6)   
Hi D_A,

I was proctosigmoiditis on 05 and dx'd pancolitis Apr 08, I believe my last flare was the culprit.

I cried on the way home after my colonoscopy it is hard news to get. I do not think the e's can reach all the way up, though my GI still has me using them in my current flare b/c it will still help the lower part of my colon. I have thought of standing on my head too and maybe using 2 e's.

For me the main difference is the severity of my flares has increased. I hope that you are able to get your flare into remission soon!
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/24/2008 8:57 AM (GMT -6)   
Hi D_A, I am sorry to hear about the progression. At least your doc will know how to treat it better. Hang in there. Were you just kidding about standing on your head? I'm a bit of an airhead sometimes and don't always know if it is a joke or real. Good luck to you, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, One a Day Women's X 1, Citrucel, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/24/2008 9:14 AM (GMT -6)   
Sorry about your diagnoses. You should certainly look into some oral meds such as Asacol for Pancolitis as the E's are not known for reaching far enough.. ya gotta do 'er from both ends now I guess. :O( I've had Pancolitis since diagnosed and am just getting over my first really bad flare so all is not lost. I was in remission with Asacol for 4 years. :O)

Good luck, chin up.
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/24/2008 9:17 AM (GMT -6)   
yeah, doesn't Quincy's siggy say to treat from both ends? = )
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 6/24/2008 10:09 AM (GMT -6)   
I have a whole cabinet full of Colazal, and have been using 3 lialda a day, on top of the rowasa and cortenemas. I have actually been doing really well the past 3 or 4 weeks.

Yeah, I will just about get in a headstand propped up with my back against a wall bellski. The cortenemas are a little slower to dispense since they are more viscous, but when I use the rowasa and the vitamin E enema I can actually tell what part of my colon the stuff is in and work my body accordingly to get it down to my ascending colon, lol.

My next venture will be a modified fecal transplant. That won't come until Sept unfortunately.
Proctitis DX 1998
Lialda 1x day
Hydrocort Enema As Needed

Post Edited (D_A) : 6/24/2008 9:12:43 AM (GMT-6)

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