I am sorry to hear that, it is very scary. My last two tests showed high enzymes for my liver and I have to do a third, so I don't really know what is going on too much either. I will opt for remicade before surgery, I need to know that I have tried everything.
That is great that your family is so supportive and that you are there for your Gma. Sounds like you really take care of everyone else and I am sure that they will totally be happy to be there for you if you go the surgery route and let them take care of you.
For your Gma also check into local agencies to see what things she is eligible for, for instance I used to work for a company that would go grocery shopping, clean, 'babysit' elderly w/dementia, take them to appointments and/or just be there with elderly for a few hours a day. I would go to their homes and these people did not have money, I think it was funded by the state of NH or medicaid or something.
Just a thought of something to look into. Unfortunately there are no handbooks on programs that are available out there and it is very difficult to find info sometimes, but there are things out there than can help.
I really hope that everything goes well for you and please keep us posted, as I am also interested b/c I think I am going down the same road (kind of).
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!