Remission, YEAH!!

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fitmom00
Regular Member


Date Joined Mar 2008
Total Posts : 113
   Posted 6/24/2008 4:56 PM (GMT -6)   
FINALLY! I've been in this horrid flare since early Feb, with no end in sight. about 3 weeks ago I started the CortEnemas in conjunction w/ the Canasa & Lialda. It seemed to get worse! My doc signed me up for the Colal-Pred clinical trial and said I have to get off of everything except the Lialda for two weeks before the trial. Whaddyaknow - within about 5 days of being off of everything, I was in remission!! I've heard of people that had bad reactions to the rectal treatments. I have to wonder if I was one of those and just didn't know it? I've been doing Canasa, or Rowasa since March and then the Steroid enemas afterwards. I'm not suggesting that anyone stop taking them!!!! I'm just curious if my remission is related. I feel human again, it's so amazing. I had forgotten what it was like. I am so thankful for this board and everyone who takes the time to read and answer our endless questions. It's such a mysterious disease and we're all kindof groping in the dark for what our individual "answer" will be, whether it's a diet, a medication, an herbal supplement, etc. Thank you all for your support. It makes it easier knowing you're there now for the next flare - which is hopefully years and years away! :)

Renee
In Remission since June 08!
4 Lialda/day

dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/24/2008 6:58 PM (GMT -6)   
Wow! I hope the positive things continue! Great news :)
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
20mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion:  06/17/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/24/2008 7:07 PM (GMT -6)   
That's awesome--enjoy yourself!
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 2.4 g Lialda


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/24/2008 7:13 PM (GMT -6)   
Congratulations! I am thrilled for you! Thanks for sharing the good news.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/24/2008 7:32 PM (GMT -6)   
SWEET!!!

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 6/25/2008 6:23 AM (GMT -6)   
I gotta say.....great news!!! And I am a little tiny bit jealous!!!
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 574
   Posted 6/25/2008 7:16 AM (GMT -6)   
Good for you your right you forget what it's like to feel normal enjoy it while you can long may it last.
  
  Diagnosed 22.5.08 with Lft sided U/L
  Meds Predfoam 20mg 2x day
  Mesalazine 400mg 2x day


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 6/25/2008 7:58 AM (GMT -6)   
I'm so happy for you! It's a little amazing to me to think that after all the meds and trying different "cures" that just stopping did it for you. I can't seem to wrap my brain around that one, but I'm so glad to hear that it worked and I hope that it continues!

Did you stop the lialda too?
Tressa 35 (F)
probably pancolitis
Colazal 3X3/day, Lialda upped to 4/day,Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa & Canasa as needed
Asacol 12/day


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 6/25/2008 8:00 AM (GMT -6)   
Also, did you have bleeding as one of your symptoms?
Tressa 35 (F)
probably pancolitis
Colazal 3X3/day, Lialda upped to 4/day,Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa & Canasa as needed
Asacol 12/day


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/25/2008 8:51 AM (GMT -6)   
Congrats that is wonderful news!

I take everything w/a grain of salt here, our bodies are so different, we each have to find the right 'cocktail' of meds or whatever that works for each of us. Some people do have bad reactions to things, unfortunately!

Stay well and enjoy!!!
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/25/2008 9:07 AM (GMT -6)   
THat so awesome! I was flaring horrible last year and I had to stop and wanted to stop imuran and asacol and slowly reached the best remission i a have ever had after I tapered prednisone. I took my remission for granted so I hope you don't do the same. Eat well and live a healthy lifestyle and im sure you'll do better than ever. How was your flare? Do you think you owe a lot of this to the lialda? I have never tried this, but am curious.
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/25/2008 9:08 AM (GMT -6)   
Some people just can't tolerate the traditional rectal meds (myself included) so I'm glad that you may have found your culprit. I will cross my fingers for you and hope that your remission stays true for a long long time!
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


fitmom00
Regular Member


Date Joined Mar 2008
Total Posts : 113
   Posted 6/25/2008 12:15 PM (GMT -6)   
Thanks everyone for your support!

Tressa, I am still taking my Lialda. That was the only thing that I was allowed to continue for the trial. I stopped the Canasa, Rowasa & Steroid Enema.

What was my flare like?
Yikes. I think I have a schizophrenic colon (sounds like a good name for a rock band...) Anyway, my flare changed so many times, it was odd. In Feb, it started with lots of bleeding and mucous and MEGA urgency - you know the kind, the "don't leave the house" kind. Then it turned into straight-up D, then the blood stopped and just the urgency 20 times a day. Then the blood came back and urgency let up a bit, but then came the PAIN! The cramps were awful. Then the pain turned into nausea (or maybe caused it). When I started vomiting and having fevers, that's when I said, forget this, I'm doing the clinical trial.

Towards the end, the steroid enema DID seem to make me stop bleeding, but - this sounds awful - I wasn't real excited b/c the same symptoms were there, it just wasn't "red" anymore.

One thing I did differently was to start taking Immodium. A lot. I was scared to take it b/c of the toxic megacolon, but my doc said to go for it. I took it for about a week, every day, a couple of times a day. It was beautiful. Obviously, that didn't cure me, but I wonder if it let my colon REST enough to heal itself? I haven't taken Immodium in 2 weeks now and all is good!! One thing I'll mention is if you're going to take Immodium (at your docs approval) use the Immodium ADVANCED. The regular one gave me horrible gas pains.
Renee
Diagnosed w/ UC in August 2007
Current status: Flare

4 Lialda/day, steroid enema at night, Wellbutrin XL

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