I had my first infusion almost two weeks ago. I've had a tiny improvement--little less blood and fewer BM's (only a couple days w/in the last 10 days have been "normal flare" days). It depends on the person when Remi will start working--hopefully it'll start really soon for you!
The tiredness is definitely Benadryl (sp?)--I slept through most of my infusion and when I came home.
Judy--How long ago did you start Remi and are you still on it?
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (1st infusion 06/08), 2.4 g Lialda