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smaub
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/24/2008 8:51 PM (GMT -6)   
My wife was diagnosed with uc around the age of 19. It was a severe case and she was hospitalized for almost a month. She is 26 now and is doing alright but she has never had a remision. She starts going as soon as she gets up atleast five times before she goes to work. I am not an expert on this but i would like to help her. She takes asacol and prednisone. Diets and remedies would help. Thanks.

suebear
Veteran Member


Date Joined Feb 2006
Total Posts : 5698
   Posted 6/24/2008 9:00 PM (GMT -6)   

How nice that you are reaching out to try and help your wife.  First, if she is not seeing a GI she should be.  Managing UC with prednisone is not recommended.  That drug has a long list of long term side effects that should be avoided.  If she has been taking prednisone since age 19 she really needs to find a doctor who will help her get off of that drug.  There are other drugs available to help gain remission.  I would also suggest you get your wife involved in this board or in your local CCFA meetings.  She needs to get educated about the disease since it is a chronic life-long disease.  Meeting others with the disease can be very rewarding and helpful.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/24/2008 9:00 PM (GMT -6)   
Has she ever taken probiotics? Does she have a good doctor? Maybe some rectal medication, I use canasa suppositories twice a day and they work well for me along with asacol. Canasa is a prescription you would have to get the doc to prescribe. My doctor told me to eat a high fiber diet and drink LOTS of water. Not everyone with UC can tolerate a high fiber diet. Something a little strange I read on the website was interesting so I am going to try it. One guy said he was "healed" (put in remission) by eating a can of spinach everyday. Hey, It doesn't hurt to try, spinach is very good for you. Good luck to you and your wife, you will find lots of help on this website,I know it has helped me! Forvia is a supplement (multiviatamin) I heard about specifically designed for people with UC. You can google it and buy it on-line. I know you can't do everything you hear but maybe some things will help or be worth a try.
Take Care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


smaub
New Member


Date Joined Jun 2008
Total Posts : 3
   Posted 6/24/2008 9:33 PM (GMT -6)   
She has a gi doc that she sees and she only uses prednisone when she has a bad flare up but that seems to be to often. She takes 3 asacol 3x daily. We heard about the omega3 in fish oil pills have they helped anybody.

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/25/2008 6:57 AM (GMT -6)   
Hi, welcome to HW Smaub :) I'm so sorry that your wife is dealing with this horrible disease. I agree about the rectal meds. They can really be effective - has she ever tried them?

Another supplement she can try is Bee Propolis. If she has no trouble with bees or their by-products then she might want to give this a go. Look up Bee Propolis online for more info on it. And I have to agree 100% on probiotics. Anyone that has bowel conditions should be using a probiotic. Probiotics are basically good bacteria used to replace the overabundant bad ones that are in the large intestine. It can really help with symptoms and overall health.

I personally can't do Omega3 or fish oil pills. For some reason they don't agree with me. But some on here have used it and it works great.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 6/25/2008 7:17 AM (GMT -6)   
I agree....rectal meds are a life saver for me.  I am also taking bee propolis, fish oil, mucosaheal and a calcium supplement.  I have tried acupuncture, I can't really tell a difference with it.  I am now trying a shake in place of breakfast called absorb plus.  I have been keeping a log of my symptoms as well.  I, like your wife developed UC at 19.  Mine is directly linked to my hormones.....when they flucuate, I get UC symptoms.  Keeping a log or journal may help you keep track of what foods set her off and if it is at all related to hormones.  It can help with what meds/supplements are working for her too.  There is a great log book at whole foods called body minder, that is the one I use and I think it helps a ton.  Good luck to you and your wife....I know it means the world to her to have your support through this.

diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 6/25/2008 10:55 AM (GMT -6)   
smaub,

I would also recommend probiotics such as culterelle, which helps to give formed stools. Also, try to have here avoid anything that contains sugar, avoid milk also and see if it helps.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.

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