Restroom Acces Act

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Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 6/25/2008 12:16 PM (GMT -6)   
I get Insights "magazine" and it had an update on the Restroom Access Act (aka Ally's law) and I'm glad to see that it has already been approved for Illinois, Maryland, Minnesota, Tennessee, and Texas.The following states are still under review but I hope it gets passed soon because one of those states are mine :-) : Delaware, Florida, Kentucky, Mass.,Michigan, NY, Ohio, Penn.,Rhode Island, S. Carolina and Virginia.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 6/25/2008 12:26 PM (GMT -6)   
I LOVE this act! Once it was passed in Minnesota, my GI office sent me a card explaining the act. I had it laminated and its in my wallet :)
Sam
19 years old
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 6/25/2008 1:08 PM (GMT -6)   
Woohoo, for Florida; I hope they get this approved soon too because currently around here you can't even use the bathroom in places like CVS pharmacy without buying something!! Frustrating if you have no money on you and you have to go.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/25/2008 2:15 PM (GMT -6)   
I'll poop on their floor, how about that? I'll make sure to shake my leg on the way out to get even more and drag it through the store and throw a dollar on top of it.

jk, but seriously, if I have to go and cannot hold it, it's going to come out and down my leg and onto the floor. It really is in their own best interest.

(sorry I have been on a prednisone fire since last night, meaning I am a bit more spicy than usual).
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/25/2008 2:35 PM (GMT -6)   
Only one person only ever decided to make a stink about me using the bathroom. She cried uncle when I unbuckled my belt and told her I was going to crap right there. I don't need the pred to get spicy.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/25/2008 3:20 PM (GMT -6)   
LOL! Spicy? I like that - because boy have I been quite spicy myself lately.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/25/2008 4:11 PM (GMT -6)   
Unbelievably, Texas was one of the first states to pass this law. Here in Austin, any store larger than a booth usually has public accommodations anyway, so I've been really lucky.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 6/25/2008 7:41 PM (GMT -6)   
im lucky, everyone i know knows about my condition as i dont hold back with information (much to their gasps..hehe).. so when i have to use the bathroom, no matter where it is or if im allowed to, they stand up as my cavalry and get me in there no matter what.

so funny to see... they go on about them having to clean up a mess, she's really sick, get outta the way, try and stop us... etc etc...
and it works everytime.

hehe
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


colitis-owns
Regular Member


Date Joined Jun 2008
Total Posts : 41
   Posted 6/26/2008 1:57 AM (GMT -6)   
wish we could get that in the UK !! the trouble ive had before when shops wont allow to use the loo.
Pan-indeterminate colitis
 
Pentasa 2g bd
Pentasa suppository 1 nightly
Azathioprine 150mg


TraciZ
Regular Member


Date Joined Aug 2007
Total Posts : 255
   Posted 6/26/2008 9:42 AM (GMT -6)   
this is awesome! I wonder if we can petition somehow to get it passed? Then, if only I could get my coworkers out of the bathroom when I'm in crisis!
Tressa 35 (F)
probably pancolitis
Colazal 3X3/day, Lialda upped to 4/day,Phosphatidylcholine 4 (420 mg capsules) once/day
Colazal 3X3/day (not generic)
Rowasa & Canasa as needed
Asacol 12/day


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 6/26/2008 1:20 PM (GMT -6)   
I've been nosing around, how do you find out the status of this in your own state? I would LOVE to know how far along in NY this has progressed.
Kim ~ Mom of Nathaniel aka "Peanut" 18months old
========================
I'm a married 36 yr old mom and here's "The list "
- UC 1997 currently unmedicated was on Colozal from 2001-2007
- Stage 3 CKD (Chronic Kidney Disease) 2007 taking 7.5mg lisinopril
- Anemic - Ferolicit IV bi-weekly
- Ashermans Syndrome - no treatment
- Allergies - water - haven't been tested officially but pine suspected


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/26/2008 8:44 PM (GMT -6)   
Hmm maybe go to your state governments website and put in Ally's Law in the search?
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


sdaless
Veteran Member


Date Joined Jun 2005
Total Posts : 1396
   Posted 6/30/2008 1:02 PM (GMT -6)   

I work in Philadelphia but live in New jersey how would that work?  Also is this only for Chron's Disease?  I looked it up on Google and didn't see UC//

sTacy


Current meds are:
 
Asacol 6 pills a day
Lexapro 20 mg once a day
Ativan .5 mg when needed
Canasa when needed
 
 
 
 


UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 6/30/2008 3:18 PM (GMT -6)   

Just pressed the "submit" button on an e-mail to Governor Bob Riley of Alabama about Ally's Law. Maybe we will get this law for Alabama. I wish I would have saved it. I explained briefly what UC is was since as you all know most people have never even heard of UC. Then, part of it said "my body gives me two to five minutes to get to a toilet. Some people don't even get that long. Due to the damage of the disease, we cannot 'hold it.' It is physically impossible. The results are the same whether we reach the toilet or not or not. It involves diarrhea, blood, mucous and break-out-in-a-cold-sweat pain. Imagine being in a public place and being told toilets are for employees only and having to stand there and soil yourself in front of everybody while being doubled over in pain. It happens to some of us every day." I told him he has probably never even heard of any of this because so many of us are embarrassed to talk about it. But that we are out here. Lots of us.

It's not just for Chron's. It includes overactive bladder and any disease where one needs quick access to a bathroom. There is a video and everything it covers on chronsandme.com

I hope I didn't do the wrong thing.


Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 6/30/2008 3:45 PM (GMT -6)   
Amen!

I guess it's time for me to put pen to paper and write to the folks here in Washington state.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 6/30/2008 3:50 PM (GMT -6)   
Pen and paper? What's that? :) I think it's a great idea for us to contact our government to try and get this act passed in all the states. It would make our life as well as other "plumbing" conditions much more easier to handle in public situations.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7(?)~waiting for epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


UC since'76
Regular Member


Date Joined Dec 2006
Total Posts : 77
   Posted 7/1/2008 12:10 PM (GMT -6)   
on chronsandme.com I read some more and one of the stipulations to us getting to use the restroom in states where the law is passed is that there have to be at least three employees working at the time we use the restroom!!!!Why? I can think of all kinds of ways this could be a disaster. Does anyone know the reasoning behind this stipulation of Ally's Law?
Ulcerative Colitis since about 1976
Pan colitis since at least 1994
 
Never had a flare until MD gave massive dose of Magnesiun while hospitalized for bronchitis.
 
During subsequent hospitalization for the flare, GI looked me straight in the eye and said "don't ever stop using Asacol."
Insurance company thought otherwise so I'm on no meds.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/1/2008 1:07 PM (GMT -6)   
I think it is because business owner's have a concern about having a customer out of sight in areas that are employee only. There could be merchandise or files or something. If it is out of the normal area a staff member may have to walk the customer to the bathroom and show them where it is. That happened to me in a bank. It was urgent, they let me go, but the employee restroom was on another floor, past the vault. Someone had to walk me there and wait outside until I was done. If they only had one employee that would be impossible. I guess if they had two it would have left the other one with a long line. So I guess that is why they chose three. Another example is I used to work in a gift shop that had one bathroom down a long hallway. Often I worked alone. I would have been really sketched out to walk a strange guy down that hallway to the bathroom. I think it is a bit of a safety issue for the employees. But in my opinion it is WAY better than nothing. Once people start hearing they have a legal obligation to do something and are more educated about our issues, they are a lot less likely to say no in the first place. I have been VERY lucky and used tons of employee bathrooms all over. Hopefully this will just help get more on board.

I didn't like that it said in a "retail establishment." What will define retail? Will coffee shops and bars be retail? What about banks? What about the gazillion office buildings?
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.

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