Definitely call your doc.
Have you had problems coming off of pred in the past?
I understand being scared and the confusion. This disease just puts our emotions through the wringer.
Have you tried any rectal meds? Canasa? Rowasa? or steroid enemas? It may take the addition of rectal meds to get you off of the pred.
Good luck! Let us know what you find out.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status: close to remission?!?!?
20mg Pred, Asacol 12 per day, Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion: 06/17/08