All good advice above!!! I was curious about
your kidney disease, what disease do you have? I also have kidney disease, Minimal Change Disease or if I don't respond to meds soon, they think I may have FSGS, which is an eventual kidney transplant.
There is a forum at inspire.com it is in the Nephcure section that is mostly for FSGS and MCD but since I am not sure what you have, it may be a good place to go for info and/or empathy.
So sorry you are dealing with all this. Please keep us posted!
When I found out I might need a kidney transplant I had quite a few people offer their kidneys and I was grateful and let them know in a joking way that now I have a waiting list and since I want the best one I will have to have some kind of obstacle course for them to pass. Though who knows if any would be a match??
I wish you my very best!!! Take Care, stay strong. We can't control the things that happen to us, only how we deal with them.
Also, ask your Doc about Rowasa enemas. I have pancolitis and am on steriod e's but only b/c I cant take Rowasa.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs. Do you have edema? If so, check your blood protien level!