Bladder Complications in UC?

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seconder
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Date Joined Jun 2008
Total Posts : 610
   Posted 6/26/2008 11:52 AM (GMT -6)   
Every time I see my doctor about uc, he asks if I have any urinary problems or bladder complications.  I don't.  But he asks every time.
 
He's also said he's concerned about fistulas.  I've never read anything to suggest that uc patients need to be overly worried about intestine-bladder fistulas. 
 
Is he confusing crohns and uc?

suebear
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Date Joined Feb 2006
Total Posts : 5698
   Posted 6/26/2008 12:44 PM (GMT -6)   
Ask him/or her why the repeated questions on bladder/urinary problems?

While fistulas are more commonly a problem for those with Crohn's about 20% of UC patients will have an abcess and abcesses can lead to fistulas.

Maybe your GI is not convinced you have UC? My GI was convinced that I had Crohn's although he based that assumption on the fact that he couldn't get me in remssion and he never lost a UC patient before. I was his first UC patient to evict my colon and I think that he found that depressing to his skill and maybe ego as a GI.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


seconder
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Date Joined Jun 2008
Total Posts : 610
   Posted 6/26/2008 1:12 PM (GMT -6)   

Thanks for the response, Sue.  Good information to know.

I've never questioned the uc diagnosis.  It fits my symptoms and colonoscopies/ biopsies very well.  I wonder if he does. . . .  This is my GP and not my GI.  The GI is quite sure it's uc, but I don't see him very often -- as little as possible.

We had another follow-up and more bloodwork this week (about two weeks after the last one) and again I asked about surgery and again he stonewalled (after initially bringing it up some six months ago).  I do feel like I'm rubbing his ego the wrong way with this extended flare.

I guess I could ask him about the bladder questions.  (That would be too easy!)

Thanks again!

 


Old Hat
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Date Joined Feb 2007
Total Posts : 5191
   Posted 6/26/2008 8:21 PM (GMT -6)   
In recent years some UC meds have reportedly caused UT problems-- maybe that's what your doc is reading in the professional lit & just wants to reassure himself that you're not getting any such side effects or possible complications. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

seconder
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Date Joined Jun 2008
Total Posts : 610
   Posted 6/29/2008 9:43 PM (GMT -6)   
That's good to know, Old Hat. Thanks for the info.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 6/30/2008 3:44 AM (GMT -6)   
Is he thinking interstitial cystitis? There is a connection with UC apparently (as per the urologist I saw when I got checked out for it .. don't have it).
q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


UC Dude
Regular Member


Date Joined Aug 2005
Total Posts : 438
   Posted 6/30/2008 5:40 AM (GMT -6)   
seconder said...
Every time I see my doctor about uc, he asks if I have any urinary problems or bladder complications. I don't. But he asks every time.


He's also said he's concerned about fistulas. I've never read anything to suggest that uc patients need to be overly worried about intestine-bladder fistulas.



Is he confusing crohns and uc?



Are you on Asacol?
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 6/30/2008 7:55 AM (GMT -6)   
My GP had asked me about urinary issues.. he explained that when my colon is inflamed it may cause pressure on the bladder. That explains why I have to pee so often !! Even during my very first trip to the ER before I was diagnosed.. they thought I had a bladder infection because I had lower abdominal pain and was peeing frequently <and pregnancy test came back neg>. Wasn't until I kept complaining and had a scope done they realized it was UC.
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


seconder
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Date Joined Jun 2008
Total Posts : 610
   Posted 6/30/2008 8:18 AM (GMT -6)   
All good to know.  Thanks.
 
I was on Asacol but I've since switched.
 
It just seems odd to me that he's preoccupied with potential bladder problems in the absence of any complaint, especially when he doesn't seem terribly concerned with joint pain, eye problems, or unrelenting, mind-numbing fatigue that keeps me in bed all weekend so I can make it through the work week. . . . 
 
He always goes through a very long list of questions about my bladder and always asks if I've seen stool in my urine.  It's strange.
 
Thanks for the responses.  I do appreciate it.

Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 6/30/2008 9:37 AM (GMT -6)   
I have never had any bladder problems except during an antiobiotic caused flare. It was the worst flare of my life and the only one that caused me any pain. I had to urinate way too often. wake up at night and go. I felt I always had to go. It was strange. I would tell my GI and he wouldn't say anything about it. It was a real annoyance. I was certain it was b/c of my horrible flare somehow.
It could have been from an bladder as well or my colon applying pressure, but now that I think about it I think my body may have been doing what it needed to do if the antibiotics caused an overgrowth of a bad bacteria and my body was working overtime to eliminate it. I don't know, but I know that flare was the worst by far...
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


jayce
Regular Member


Date Joined Nov 2007
Total Posts : 401
   Posted 6/30/2008 10:06 AM (GMT -6)   
this bladder thread comes at such a weird time, my daughter just asked me if i thought any og the medications should be causing her any urinary frequency and urgency.
she has an appointment thurday with the gastro, in the meantime she had a urinalysis -results not ready yet.
does coloazal maybe cause symptoms? or 6mp?
Mom to 19 year old daughter diagnosed 11/07.
colazal 3 x3 daily
purinethol 6mp=50mg daily
culturelle probiotic 1 daily
chewable vitamin
xifaxan antibiotic 400mg 2x day soon to be weaned


quincy
Elite Member


Date Joined May 2003
Total Posts : 30999
   Posted 6/30/2008 11:28 AM (GMT -6)   
stool in the urine....is he thinking you might have a fistula?

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/30/2008 11:40 AM (GMT -6)   
He's mentioned before that he's generally concerned about fistulas in his uc patients. I haven't read anything to support the idea that uc-ers need to be especially worried about bladder-intestine fistulas and there's no evidence that I have one. As Sue pointed out, it's possible to have an abcess that becomes a fistula but I don't know why the intestine near my bladder would be a specific site of concern if the problem is general in nature.

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 5191
   Posted 6/30/2008 7:36 PM (GMT -6)   
The answer to PLEASE is YES-- the 5-ASAs can cause UT problems, including frequency & urgency. In the past couple of yrs gastros have realized that they should have patients on 5-ASAs get urinalysis 2-3 times annually. 'Til your daughter's test results come in, advise her to drink plenty of water, stay well-hydrated. That can be a problem in hot weather & this being her 1st summer with UC, she may not make the connection. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 6/30/2008 7:53 PM (GMT -6)   
I used to get bladder infections all the time. Everyone in my family does. However I am the only one in my immediate or extended family that has IBD.

I'm not sure why your GP is so fixated on this. If your GI is sure it's uc, I'd go with his opinion as he is the expert, not the GP.

You can find out if you have a bladder infection with a home test kit. You can usually find them at any drug store. Like all home tests, it isn't 100%, but it should be pretty close.

Next time out, I guess you can ask him why he is so concerned and why this is such a big deal to him.

princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 6/30/2008 10:33 PM (GMT -6)   
I have bladder pain occasionally and have not found the exact cause but assume it's UC-related. Do you have deep ulcerations? I find it odd he would ask those things if you did not have deep ulcerations or Crohn's. Weird.  I don't know if I would want to stick with that doctor personally, unless you have a history of fistulas, Crohn's or deep ulcers it doesn't really make sense.


Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08, 6MP started 6/24/08


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/1/2008 12:04 PM (GMT -6)   
Hm, I used to get bladder infections/ UTIs quite frequently and severely- usually I just wake up one morning in severe pain and peeing blood clots. It's been almost a year since my last one I'd say, but I always wondered if there might be a connection.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 7/1/2008 9:39 PM (GMT -6)   
I've never had a baldder infection, so I don't think it's part of my history.

I'll have to ask him what he's thinking.

Meanwhile, interesting thread. Learn something ne every day.
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