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bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/26/2008 5:25 PM (GMT -7)   
I really have enjoyed having this website to go to and get so much information and support from people who know and really understand.  I know someone (my father-in-law) who might have lung cancer.  (Don't know yet) Anyhow, I was just thinking what a great resource this has been and then looked and noticed there is no forum on here for lung cancer.  Is that because it is not as common?  I thought it was more common than UC.  Anyhow, if it's not on here, does anyone know of a forum like this but that includes lung cancer.  Hopefully tests will show it is not cancer, but just in case, please let me know your thoughts. 
Thanks, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 6/26/2008 5:43 PM (GMT -7)   
Hi Lori! I will ask Peter, our admin, whether he has ever considered a lung cancer forum. Will let you know what I hear. Keep us posted on your f-i-l.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10407
   Posted 6/26/2008 6:14 PM (GMT -7)   

In the meantime, I Googled and got this result:

http://www.google.com/search?q=lung+cancer+support+group&rls=com.microsoft:*:IE-SearchBox&ie=UTF-8&oe=UTF-8&sourceid=ie7&rlz=1I7GGLR

Hope one of the resources included may meet his needs.


Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/26/2008 7:33 PM (GMT -7)   
Thanks Tabitha and Judy. I appreciate the help, The search you did looks helpful. I'll keep you posted.
Lori (Bellski)
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


Admin
Forum Administrator


Date Joined Jan 2003
Total Posts : 9747
   Posted 6/30/2008 11:17 AM (GMT -7)   
bellski,
I have considered adding new topics, including Lung Cancer, in the future. Thanks for the suggestion.

Peter
Peter Waite, Founder/Editor
HealingWell.com - Community, Information, Resources
www.healingwell.com


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 6/30/2008 11:37 AM (GMT -7)   
My mom just got diagnosed with lung cancer about a month ago. She doesn't smoke, etc so it was quite a shock! There are lots of resources locally (such as hospital support groups), but there don't seem to be that many online groups...especially for family members of lung cancer patients.

i would certainly participate on a lung cancer board and I know my mom and some of the other lung cancer patients she has met would participate as well!
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Asacol 2 pills 3 x/day, Canasa supps
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 6/30/2008 12:40 PM (GMT -7)   
Hey Bellski,

Check out this link to inspire.com

http://www.inspire.com/groups/lung-cancer-alliance-survivors/

I also go to inspire for my kidney disease. I like the way this forum is set up, it's more real time but I feel lucky just to connect with other people.

hope everything turns out ok.
Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 6/30/2008 12:43 PM (GMT -7)   
Maybe healingwell could have a "other diseases" forum. Each thread could just list the name of the disease in the title.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/30/2008 5:01 PM (GMT -7)   

Bellski,

My husband has lung cancer for about a year now and the best forum and website I have found is ....

http://cancergrace.org/

Dr. West from Seattle is a wonderful oncologist and person.  He will answer any question quickly and professionally. 

I hope it is not lung cancer but if it is - be sure to be proactive in helping him with his decisions for treatments, etc.  Unfortunately, lung cancer is VERY common!!

Elaine


68 old lady
New UC (with rectal bleeding and diarrhea)- 2 months ago, colonoscopy showed mild
UC rectal and little above.
Using Canasa 1000mg. once a day
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax
Lipitor
 
 
 
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/30/2008 5:09 PM (GMT -7)   
Thanks to all of you for your replies. Elaine, How is your husband doing? My father in law has a cat scan Tuesday, two x-rays showed the spot on the lower left lung the size of a quarter and it wasn't there last year at his check up. If the cat scan has bad resuts or if he needs a biopsy, they are headed to Mayo, my family is huge on Mayo. My in-laws used to get there anual checkups there and they lived 6 hours away. Thaks again, I will check out those sights you mentioned, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 6/30/2008 6:10 PM (GMT -7)   

My husband is doing well.  He has cancer in both lungs - but small tumors that shrunk about 50% with 37 radiation treatments and 4 chemo treatments.  He lost his hair which has grown back.  He had no severe side effects - just a little neuropathy pain in lower legs which is getting better.  Last ct scan - three months after treatments finished showed STABLE condition.  He is considered Stage IV because of being in both lungs.

If your father-in-law's ct scan shows only the one tumor or "spot" he will need a biopsy to be sure it is cancer or a short waiting time to see if it grows.  My husband had a PET scan that lit up but still biopsy is the only way to know for sure.  If it is confined to one lung - one place - nothing else involved  - that is great.  Possibly he could have surgery and a cure.

Elaine


68 old lady
New UC (with rectal bleeding and diarrhea)- 2 months ago, colonoscopy showed mild
UC rectal and little above.
Using Canasa 1000mg. once a day
Probiotic Primal Defense
Prilosec for GERD
Inderol for hypertension
Xanax
Lipitor
 
 
 
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/30/2008 6:42 PM (GMT -7)   
Thanks Elaine for your input. People that personally go through these things really become experts as they grow through it. I hope you and your husband have better health days ahead. Take Care, Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/2/2008 1:54 PM (GMT -7)   
Good News. The cat scan my father-in-law had showed that the spot was a shadow, nothing to worry about. They did say though that they were concerned that the esophosus looked like there was a thickening of the esophogus wall-he goes in tomorrow for a test-has to drink barium I think. Thanks again for all of the help. Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 7/2/2008 3:46 PM (GMT -7)   
Lori,
 
I am glad to hear that your FIL's cat scan turned out well.  I will keep you guys in my prayers and hope for the same outcome on tomorrow's test!
 
Beth
40 mgs of Pred
50 mgs of Imuran
3 Lialda
1 Canasa at night
 
 


snoopylvr4
Regular Member


Date Joined Jul 2005
Total Posts : 25
   Posted 7/3/2008 8:33 AM (GMT -7)   
bellski--try healthboards.com for other peoples posts about lung cancer. My mom had it&I got some good info.
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