Lialda and flare up?

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eliztopp
Regular Member


Date Joined Feb 2008
Total Posts : 46
   Posted 6/26/2008 11:09 PM (GMT -6)   
I was switched from 9 Asacol daily to 2 Lialda a day a few weeks ago.  I read in previous threads that a few people were on it.  My doc said it was just like Asacol only i take less pills.  And from what i read from others comments it didn't seem like everyone was told that.  So i wanted to know a little more of what other people were told or read about it.  I only did a few basic things to look it up, i have not had the time to really look into it yet.
 
I am also starting a flare i think.  When i went to the doc i was seeing blood only in a few stolls during the week, and now it seems like a daily thing and some urgency is coming back as well.  The doc said its prob just a hemorid.  but i don't feel like it is, thats how my UC went un treated for about 5 months (diffrent doc) but i have a colonoscapy to check things out on Thursday next week so i guess nothing i can really do until then.  Remicade is the next step if i need it..
 
And i thought things were going so well!! i was feeling great.. starting to try and work of those roid pounds and loosing the moon face. But now i'm moody again (everytime i see blood or look in a mirror i get so disscoraged) I just don't know what to do.  (there needs to be a spell check on this, sorry my spelling is not the greatest)
 
{[lizzielu]}
20 year old college student, dx december 2006
meds: Asacol 400mg 4 pills 3x a day; protonix; prednisone (tapper, down from 40mg started 1/1/08) Lialda 2 pills a day; 6-mp 75 mg; iron supplament; one-a-day;
low residue diet


jasperthedog
Regular Member


Date Joined Mar 2008
Total Posts : 68
   Posted 6/27/2008 8:44 AM (GMT -6)   

I started out with my Dr giving 1 Lialda a day and then because I was flaring so badly, he gave me 4 pills a day.  It is the same formulation as asacol, mesalamine.  The Lialda isn't really working for me though (asacol didn't either) so I am on Remicade now.  I still take 2 Lialda a day now because my Dr. says it can help prevent colon cancer.  Hope this helps.  I guess you'll know more about what's going on with you after your colonoscopy!  Maybe someone with more knowledge on the subject will chime in!

Cara


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 6/27/2008 9:30 AM (GMT -6)   
I was taking 4 Lialda a day for a while. I think it was causing diarrhea. It sure wasn't helping.
UC diagnosed Dec. 2006
Azathioprine 200mg/day
Prednisone 0 ! (After nearly 1 year)
Multivitamin, B complex vit., fish oil, fiber supplement, Nature's Way Primadophilus Optima, Digestive Advantage Crohn's & Colitis


Mommy pooh
Regular Member


Date Joined Apr 2008
Total Posts : 131
   Posted 6/27/2008 10:30 AM (GMT -6)   
I started on 2 Lialda for 4 weeks and thought things were a tiny bit better so my doctor increased my dose to 4 Lialda. He also increased my 6MP from 50mg to 75mg (after 15 weeks of no improvement in my flare on 50 mg). Within 3 days I was only having 2-3 BMs. That was about a week ago. Now I am having 1-2 BMs a day all formed and only tiny spots of blood on the pooh. I am VERY encouraged and hopeful that my flare may finally be coming to an end!! I think it was the Lialda because I was figuring that the increase in 6MP would need time to kick in just like when you start 6MP. I am going to do a Prometheus test in 2 weeks to make sure everything is ok with the 75mg dose of 6MP.
  • 25 years old
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-present
  • Currently taking 1000mg Dipentum, 75mg 6MP, and weaning off Entocort at 6mg, 4 Lialda, Digestive Advantage Chrons/Colitis, and Women's One a Day

 


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 6/27/2008 10:36 AM (GMT -6)   
Had the same issue going from Asacol to Lialda...I up'd the Lialda to 4 per day and my rowasa's to every night for a week or so and now I'm down to 3 lialda and rowasa evry other night.

stogieFL
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/30/2008 1:50 PM (GMT -6)   
I am going through a flare at the current time and my current doctor placed me on 4 Lialda per day. I was on remission for almost 7 years with Asulfidine. I have gone via the Prednisone and have moved to the 6-mp while still on the Lialda. Dr. says that the Lialda doesn't always get you into remission but it works once in remission.

To be honest I am not a big fan Lialda because it does not seem to be doing it's job. That doesn't mean that it will not work for you.
 
Age: 39
Diagnosed UC: Dec 1999
Remission Cocktail: Azulfidine, Prednisone, Paragoric Liquid
 
UC Flare: March 2008
Current Meds: 4 Lialda, 2 Purinethol, 5 mg Prednisone (tapering)
Other ailments: HBP, Gout


barbl
Regular Member


Date Joined Jul 2006
Total Posts : 320
   Posted 6/30/2008 5:50 PM (GMT -6)   
I tried Lialda, what a nightmare! I was in a flare...it went straight downhill from there. Ended up in emergency thought I was having a heart attack. Turns out I was really dehydrated from losing so much blood and fluids.

Dx'D in 1990. Remission 1991 - 1/2005
Both flares were in extremely stressful times in my life
Colonoscopy 10/2005 80% of Colon diseased, or as I like to say "Intestinely challenged"
*****9/2007 dumped my GI who I refer to as "Satan" New GI, new med TOTAL remission with in 2 weeks.
Colazal 9 capsules a day*****


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 6/30/2008 7:56 PM (GMT -6)   
Lialda didn't work for me. I was taking 4 a day. It did give me the most horrendous gas I have ever had! But for other folks, it seems to work fine.

Just goes to show you how each one of us is so different.
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