1. how many bm's do you have a day?
I honestly don't know but if I were to guess I would say between 6-8. But it's very different than with a colon and is as fast as urinating. There is no pain or urgency once you have had some recovery.
2. how long can you hold a bm in for if not near a bathroom?
I would say I can comfortably hold it for 2 hours.
3. how long did it take you to be able to leave the house after the jpouch was done? and feel comfortable knowing you could make it to the bathroom in a decent amount of time (and what do you consider decent?)
I left the house immediately and started getting my life back. For about the first 2 weeks post surgery I still did the mental notation of logging bathroom locations in town but one day I realized I didn't need to do that anymore. How liberating!
4. do you still need to know where bathrooms are when you go places?
5. have you had any complications that are affecting you currently?\
No. I see my surgeon once per year for a biopsy. We are still checked for colon cancer in the remaing 1-2cm of rectal cuff. I see my regular doctor once per year for a pap and blood, urine, and mammogram. I was anemic, had no B-12 stores, and had a chronic cough of unknown origin prior to surgery. Within a couple months post surgery all my labs were perfect and have remained so.
6. kind of silly but......what kind of noises does it make when you go? Is it relatively quiet or do you sometimes get quiet and sometimes get loud?
Sometimes there is some gas at the conclusion of a bowel movement which signifies a complete emptying. Sometimes it's completely quiet. I think a lot of it depends upon the types of foods ingested.
7. Do you fart and have gas, is that still the same?
Gas for me is most often odorless and silent and I assume the odorless part is because food doesn't sit in the system long enough to generate a bacterial action. I get the most joy out of passing gas in meetings at work and nobody knows! Most jpouchers cannot pass gas while standing (I can on occasion) but can by sitting or lying down.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free