UC Meds and Breastfeeding

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New Member

Date Joined May 2005
Total Posts : 1
   Posted 6/27/2008 1:47 PM (GMT -6)   
My doctor has started me back on Asacol after I stopped it myself as soon as I found out I was pregnant. I heard it was safe to take during pregnancy but since I haven't had a flare in years and was only taking it as maintenance thought I would be fine without it. Throughout my pregnancy I had no issues but one month after giving birth I started having UC symptoms that I haven't had for years. Now I am breastfeeding and have reluctantly started back on Asacol. It is considered category "B" and safe while nursing but they warn of the possibility of the nursing infant getting diarrhea. I have seen an increase in his BM's but nothing of concern. I am more curious to know if other women have any experience nursing while on UC meds? My three month old seems to be more cranky lately and not sleeping nearly as well. I realize it could be any number of normal baby developmental issues but since it seems to correspond with exactly when I started the Asacol, so I am feeling a little paranoid. I found almost nothing online. If anyone could shed some light, I would really appreciate it. 

Mommy pooh
Regular Member

Date Joined Apr 2008
Total Posts : 131
   Posted 6/27/2008 2:30 PM (GMT -6)   
Wish I could help. I was on Dipentum all throughout my pregnancy. Everything was great and I was flare free. I wanted to breastfeed, but after 2 weeks my milk had not come in and my daughter was down to 6 pounds and we had to start formula. I have no regrets and she's a happy, helathy 17 month old now. I wasn't worried with the thought of breastfeeding while on Dipentum and neither was my GI or OBGYN.
  • 25 years old
  • Ulcerative Colitis since Sept. 2004
    • 1st flare Sept-Nov 2004
    • 2nd flare Aug. 2007-present
  • Currently taking 1000mg Dipentum, 75mg 6MP, and weaning off Entocort at 6mg, 4 Lialda, Digestive Advantage Chrons/Colitis, and Women's One a Day


Regular Member

Date Joined Jun 2005
Total Posts : 133
   Posted 6/27/2008 3:42 PM (GMT -6)   
while pregnant and nursing i took 12 asacol a day along with prednisone, gastrocrom and colestid. My OB said that around 5 % or less gets passed through the milk and even less than that is absorbed. both of my kiddos did fine. They actually both have constipation. how that has happened to any child of mine is beyond me! take a deep breath, God is in control.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.

New Member

Date Joined Jun 2008
Total Posts : 8
   Posted 6/27/2008 5:00 PM (GMT -6)   
I was just diagnosed and was breastfeeding. I decided to stop nursing (I'm on a different drug), but my specialist told me he would trust it if his wife was nursing. Here is a number I called for information. They were great. They give free advise when taking any prescription medication while nursing. The number is 1-888-944-1012, and the website is www.padis.ca.
I'm in Canada, and they actually phoned me back with the info which was really nice. Hope that helps, and good luck!

Veteran Member

Date Joined Nov 2006
Total Posts : 731
   Posted 6/27/2008 6:43 PM (GMT -6)   
hello and welcome

i was diagnosed when my nursing son was around 6 months old. so that is a lot different than 3 months, but we had no issues and i nursed him until he was over 2. i checked with my OB, his pediatrician, and my GI and all felt it was safe. he always gained plenty of weight and was very happy and healthy. now that he's 2.5 he's still very healthy and happy, he quit nursing when i got pregnant, and there was no drastic change in his BMs when i went on the meds or when he quit nursing.

and you can see in my signature that i also had to take pred for a while to get my flares under control.

if you are concerned with baby's sleeping habits or other behavior, i'd say give it some time. (as you said, 3 months is a very normal time to have developmental things going on that interrupt sleep.) i had a whole 6 months of no meds at all with my son and his sleep habits would often change. just when we thought we knew what was going on, it would all of a sudden be different! :)

you could also get in touch with a local la leche league group if you want more personal support. they'll be able to get drug info for you as well as offer common sleep (or other) issues in breastfed babies.

and just remember that you know your baby best. no matter what other people have experienced, only you know how your baby behaves and if you should be concerned with any changes or if they're just a new little phase.

hope you start feeling better soon!!
29, happily married, stay at home mom to 2.5 year old son. due to have another boy 9/17/08
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-Prayer! asacol, probio, ground psyllium husk, prenatal, folic acid, cal-mag

may you live all the days of your life.

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