Is Aloe (A.M.P.) a crock?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/27/2008 4:30 PM (GMT -6)   
I added this question to another thread, but I'm sure its getting lost in there.  Has anyone tried this aloe (A.M.P.) that's advertised on the internet?  It sounds like a miracle remedy, which makes me think its a load of bologna.  I'm fairly new to ulcerative colitis (proctitis), so I don't know what alternative stuff works and what doens't. 
 
Any experiences you've had would be helpful...
 
Kiss
Ulcerative Proctitis - Diagnosed by colonoscopy January '08
Rowasa (Mesalamine) 60 ML 2X daily
Cortenama (Hydrocortisone) 100 ML 1X daily
Tried Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Fish Oil, Vitamins
 
 


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 6/27/2008 4:41 PM (GMT -6)   
I gotta tell you - one of my friend's dad has IDB and he has been in remission for 10+ years. She asked him the other day how he managed to get into remission and he said he drank aloe every day in the morning and he went into remission and has been symptom-free since. I am sure it will work for some and not for others but I am about to try it. I don't feel like it can hurt.

34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 10mg (tapering), Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 6/27/2008 4:44 PM (GMT -6)   
I list below what all alternative meds I tried. Aloe and fish oil were the two that worked the best for me. Aloe worked at night for me and slowed my BMs. Although it didn't help to get me into remission it did make an obvious impact to lessen my symptoms.

http://ucstory.wordpress.com/2008/06/25/alternative-medicine-for-uc/

Finding the right aloe is the trick, and its now been some years since I've used it but I think its worth trying once you find the brands and such that come best recommened.

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/27/2008 5:13 PM (GMT -6)   
Interesting replies.  The stuff online is in pill form and is unbelievably expensive.  I think the liquid kind is significantly cheaper and more readily available, so maybe its something to try in addition to my meds.

Ulcerative Proctitis - Diagnosed by colonoscopy January '08
Rowasa (Mesalamine) 60 ML 2X daily
Cortenama (Hydrocortisone) 100 ML 1X daily
Tried Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Fish Oil, Vitamins
 
 


Mark & Megan
Regular Member


Date Joined Jun 2008
Total Posts : 89
   Posted 6/27/2008 5:34 PM (GMT -6)   
Yes, I would try the liquid. I tried the pills and didn't have any reaction and it was super pricey. I would also suggest you consider fish oil pills. Things like Aloe, Fish oil, flax seed, help lessen internal inflamation. If you can get that inflammation down you can hopefully break the cycle that causes UC and get some remission.

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/27/2008 6:57 PM (GMT -6)   
I will definitely try the liquid when I'm a bit more stable. I've heard that it can CAUSE diarrhea, so I need to get to a better place before I try it. I used to do fish oil, and I probably shouldn't have stopped. The problem with proctitis is that by the time your food gets all the way down there (to the bottom of the colon/rectum), its not even food anymore and its properties may not have any effect. SO frustrating!
Ulcerative Proctitis - Diagnosed by colonoscopy January '08
Rowasa (Mesalamine) 60 ML 2X daily
Cortenama (Hydrocortisone) 100 ML 1X daily
Tried Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Fish Oil, Vitamins
 
 


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 6/28/2008 10:48 AM (GMT -6)   

Kiss,

I read Listen to Your Gut, by Jini Patel Thompson, a lady who has managed her IBD without drugs.

She talks about aloe vera.  She recommends George's Roadrunner Aloe Vera because it's supposed to have the thing that can cause diarrhea removed from it.

It didn't cause me to have diarrhea; however, that's never been a problem for me anyway.  The best thing is, it's really cheap!  I bought a large bottle for around $6. Bad news, it didn't seem to help me.  But, everyone's different. 

HTH,

Beth

 


40 mgs of Pred
50 mgs of Imuran
3 Lialda
1 Canasa at night
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/28/2008 2:28 PM (GMT -6)   
Beth - where did you find that brand? Did you have to order it?
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 1X daily, Fish Oil.
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Vitamins
 
 


checkerjane91
Regular Member


Date Joined May 2008
Total Posts : 61
   Posted 6/28/2008 6:31 PM (GMT -6)   
Kiss520,
 
I found it at the local health food store.  Here's their website that's on the bottle.  I haven't been to the site, but I assume it tells you more about the product and perhaps you can order it there.
 
 
BTW - Thanks for your reply to my food induced pity party post!
 
I share your frustration with proctitis.  I was first diagnosed with proctitis and started taking Canasa suppositories.  I also tried natural alternatives and it was always hard to know if they were doing what they were supposed to do since the inflammation was only like 7 cm up for me.  I always wondered since it was so low in my colon if I was wasting my money buying oral stuff.   
 
Beth
40 mgs of Pred
50 mgs of Imuran
3 Lialda
1 Canasa at night
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 8:25 AM (GMT -6)   
Beth - I actually read that you can make an aloe vera enema, which I would imagine is for people who have symptoms that are quite far down (like ours).  I don't know if I'm ready for that step yet.  I already have to do three medicine enemas a day, so my tush isn't interesting in any more action. nono
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 1X daily, Fish Oil.
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Vitamins
 
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 6/29/2008 9:51 AM (GMT -6)   
Aloe has always worked on small blips for me. As soon as I saw an increase n bm's or had a bit of pain I would do a couple of shots of aloe (can be aloe juice or gel mixed with tea found at GNC)

It never helped me for big problems though.

Also I once did a trial for a drug made from aloe. It was amazing. I was 80% healed in two weeks. My Gi was amazed that it worked better for me than pred ever has. I'm not sure what ever happened to it. The trial was about 7 or 8 years ago. Hopefully someday it will be available.
Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, September 22, 2018 12:03 AM (GMT -6)
There are a total of 3,005,625 posts in 329,243 threads.
View Active Threads


Who's Online
This forum has 161787 registered members. Please welcome our newest member, melzissa.
272 Guest(s), 1 Registered Member(s) are currently online.  Details
wednesday77