Parasitic worms and I.B.D. - Article in NY Times

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UCinGV
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Date Joined Mar 2007
Total Posts : 400
   Posted 6/29/2008 6:24 AM (GMT -6)   

Jay25CA
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Date Joined Jul 2004
Total Posts : 114
   Posted 6/29/2008 12:36 PM (GMT -6)   
Has anyone tried this worm therapy?

bellski
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Date Joined Apr 2008
Total Posts : 499
   Posted 6/29/2008 12:43 PM (GMT -6)   
It sounds interesting, however, my first thoughts were....probiotics.....They bring the good bacteria back. I think that sounds similar. I would rather try that than worms. It is interesting though.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


bbc
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Date Joined Mar 2008
Total Posts : 1580
   Posted 6/29/2008 2:13 PM (GMT -6)   
I've spoken with the principal clinical investigator Dr. Joel Weinstock about a year ago...from what I remember there is much promise and much more work to be done before/if it will be available to the general public via rx.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 6/29/2008 2:26 PM (GMT -6)   
One of the members at the CD forum did the pig whipworm therapy about 3 yrs ago, you have to get a form from the company that sells them and have your doctor fill it out before they will consider selling it to you...so this therapy has been available to the general public for some time now...I don't recall what the poster at the CD forums outcome was with this treatment, but I know I've read that it works for some but not all (like anything eles so far)...they place whipworm larve in a capsule that you swallow and they get released into your intestines to eat up bad bacteria, sort of along the lines of taking a good probiotic.

You could post over at the CD forum to enquire about it, I'm sure someone with more info will respond.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


tums
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Date Joined Apr 2008
Total Posts : 128
   Posted 6/30/2008 5:39 AM (GMT -6)   
My doctor wanted me to try Azathioprine which I am doing however not seeing much off a difference in it although I mentioned the worms which he said he found quite interesting and would look at that if aza didn't work. I told my brother who is a doctor about it and he said it would be highly unlikely I would get it as it isn't licensed here in the UK so don't know if my doctor was just saying that and thinking the Aza would work so we wouldn't need to go down that road.
32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 100mg started 4/08
Steroids 5mg per day


BalS
Regular Member


Date Joined Mar 2005
Total Posts : 312
   Posted 7/10/2008 7:29 AM (GMT -6)   
Hiya,
I thought you might be interested in how the worm therapy has progressed from weinstock's original reasearch to Hookworm therapy
 
Bal
UC - Flare-up since Dec2004
3000iu Vit E Enema
3x3 tablets Colazide 
10mg Predinisolone enema
2  Predfoam - 20mg
Asacol - none now - became immune to them after 2 yrs
 
 
 


BalS
Regular Member


Date Joined Mar 2005
Total Posts : 312
   Posted 7/10/2008 7:40 AM (GMT -6)   
just as an additional information.
Prof. prichard's study of hookforms for crohns was started in 2006
http://www.nottingham.ac.uk/public-affairs/press-releases/index.phtml?menu=pressreleases&code=SCI-130/06&create_date=20-jul-2006
i've spoken to one person who took part, he has gone back to work and is off steriods.
This prompted me to try 10 hookworms in January 2008. I'm lot better than I was in January but I still do my steroid enemas.
Bal
UC - Flare-up since Dec2004
3000iu Vit E Enema
3x3 tablets Colazide 
10mg Predinisolone enema
2  Predfoam - 20mg
Asacol - none now - became immune to them after 2 yrs
 
 
 


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 7/10/2008 8:22 AM (GMT -6)   
I'm thinking of trying this. . . .

BalS
Regular Member


Date Joined Mar 2005
Total Posts : 312
   Posted 7/10/2008 8:51 AM (GMT -6)   
Those of you who wish to try it in the UK, you can get in touch with Dr Paul Fortun at University of Nottingham, he is planning to start UC trails with Hookworms where every paticipant is given hookworm larvaes.
UC - Flare-up since Dec2004
3000iu Vit E Enema
3x3 tablets Colazide 
10mg Predinisolone enema
2  Predfoam - 20mg
Asacol - none now - became immune to them after 2 yrs
 
 
 


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2105
   Posted 7/10/2008 1:43 PM (GMT -6)   
If this home fecal transfusion thing doesn't work when the baby gets here, this looks to be a possible venture.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 3 day
Starting Immuran
Hydrocort/Rowasa/Vitamin E Enemas rotated
Probiotis/MSM/GreenTea/VitD+Ca/SuperDHA


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 7/14/2008 12:58 PM (GMT -6)   
Very expensive....
Male 36yrs old. Indeterminate Colitis 6 yrs.


Fish Oil
Lialda
Protonix
multi vitamin


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/14/2008 10:48 PM (GMT -6)   
pb4 said...
One of the members at the CD forum did the pig whipworm therapy about 3 yrs ago, you have to get a form from the company that sells them and have your doctor fill it out before they will consider selling it to you...so this therapy has been available to the general public for some time now...I don't recall what the poster at the CD forums outcome was with this treatment, but I know I've read that it works for some but not all (like anything eles so far)...they place whipworm larve in a capsule that you swallow and they get released into your intestines to eat up bad bacteria, sort of along the lines of taking a good probiotic.

You could post over at the CD forum to enquire about it, I'm sure someone with more info will respond.

:)

I was not aware pigworm therapy was even FDA approved for use with the general public, but only in FDA trials and studies...

Post Edited (bbc) : 7/14/2008 9:59:55 PM (GMT-6)

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