Posted 6/29/2008 4:38 PM (GMT -6)
Is it possible you have fructose malabsorption? Maybe the fruit or honey is giving you D, as well. I find I get like that if I eat certain fruit. Dunno. Just a stab in the dark.

I never thought I had a fungal problem either, until I experimented with the diet and got well. A test the doctor prescribes won't find it. I was tested for everything under the sun, and my doctors never found anything to suspect fungus. There is more than just "candida" fungus out there. Glad you're feeling better today :)
Posted 6/29/2008 6:10 PM (GMT -6)
Kim - The fructose thing is a possibility. Last week I started eating a small plate of strawberries and was running to the toilet before I even finished them. Did your doctors specifically test for Candida and not find it? I've read that there are tests for it... ?

Quincy - Just following doctor's orders with the enemas. What can too much do to me? Will there be adverse effects?

I was in the hospital for UC - lots of diarrhea (10-12 times a day) with lots of blood and horrible cramping (we're talking labor pains). In addition to a saline/glucose IV, I was put on a "full liquid" diet in the hospital, which means broths, strained cream soups and cereals, juices, sherbet, etc. None of this stuff seemed very healthy for me, but the cramping and bleeding decreased significantly. Then I left the hospital, starting eating regular food again, and was having all the same symptoms about 36 hours after starting the regular food. So I put myself back on a liquid diet at home in addition to all these new meds. Today I added in a couple soft foods, like a piece of bread, a couple ravioli, and a couple pierogies. God knows what's going to happen in a couple hours... (fingers crossed)...
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 

Posted 6/29/2008 6:13 PM (GMT -6)
I should also add that I had a CT scan and they found nothing wrong with any other organs. I guess that's something to be happy about.

Quincy - Didn't hear anything about inflammation of cecum. I don't even know where that is! I need to beef up my UC vocabulary, I think. ;-)
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 

Posted 6/29/2008 6:56 PM (GMT -6)
The only thing i have found that i seriously cannot have even a little bit of EVER is fried food. I keep a food journal and im sure that these wonderful little deep fried samosas they sell at the farmers market has started 2 flares for me. So now i dont ever eat anything fried. I also stay away from sugars, soy, oats, processed foods, caffeine, breads etc. I mostly eat brown rice farina, well cooked veggies and fish. I eat agave nectar and flax oil in my farina and its pretty good. I do eat small bits of dark chocolate now and again, and seem to be fine if i just have a little bit, its when i go overboard of any one thing that i notice problems the next day...
Winni, 25

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 1x every other day.
30 mg pred,and tapering. 50 mg 6 mp- as of 5/11/2008
supplements:calcium, aloe gel, pro-biotics, bee propolis, omega 3 oil
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro

Posted 6/29/2008 7:51 PM (GMT -6)
I think I have issues with fried stuff, too. In fact, I had two fried chicken tenders right before my hospital stay. :-(

Do you think overeating even healthy food can cause problems? Seems like I have to eat VERY small portions...
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 

Posted 6/29/2008 8:09 PM (GMT -6)
yes, i have found if i don't get too stuffed i feel waaay better.
Winni, 25

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 1x every other day.
30 mg pred,and tapering. 50 mg 6 mp- as of 5/11/2008
supplements:calcium, aloe gel, pro-biotics, bee propolis, omega 3 oil
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro

Posted 6/29/2008 8:18 PM (GMT -6)
My diet rules of thumb: if I'm bleeding I use a low residue diet. When I'm flaring, but not bleeding I start adding more foods back in. When I'm in remission, I eat anything I want - within reason!

Larger meals tend towards larger bms. Smaller meals, with snacks work best for me. I tend to ignore my better judgement at times and pay for it.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
15mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion on 06/17/08:  Next infusion on 07/01/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate

Posted 6/29/2008 8:36 PM (GMT -6)
Hello Kiss520
Nice to meet you.
I'm one of those "believers" that diet has a huge part of healing and also your mind set..Everyone is different though.
Depending on "where you are" in pain/etc ..depends.
I was diagnosed with severe UC 9yrs ago - last flare was 2002 (due to stress).
And now I dont suffer any problems.
My theory is : if it burns going in - it will burn going out....if its bubbly going in - it will be bubbly coming out. you getting my drift here?????
I always looked at what I was eating and broke it down in my head - how would that break down in my system.
Fruit - always took the skin off - and stayed away from the real acid types like oranges etc.
Bananas are great - small finger ones have the most potassium.
But look into your foods - for example - alot of people do not know there is fibre in LETTUCE.
Not saying you have to be a rocket scientist here - but like I said - everyone is different - I preferred to find out how I could control it - instead of just "upping meds"
I didn't eat HEAVY food - and pizza. HUGE no no - when I found out that the doh alone takes up to 6weeks to digest in your system - I felt sick - that was like purposely putting a brick in my bowel. (lol)
Even at your lowest point - always put a smile on your face and believe in yourself 100% that you WILL get there ..Keep a diary and write it all down - that is how I figured alot out.
If you want to drink alcohol - distilled ones are the best - not wine etc......
Keep smiling and keep strong - you will get there mate....without a doubt.
Posted 6/30/2008 11:00 AM (GMT -6)
Dakotagirl - The low-residue diet is interesting and maybe something I try.

Midnitenz - I have one question about fiber - is it for someone like me who has lots of diarrhea? I read that fibrous foods are not easy to break down, but don't I need fiber to bulk up my stool? I bought Metamucil caplets and have taken a couple, but now I'm worried that that was a mistake. I was also just read a book that said to decrease my fiber intake to slow diarrhea. I'm so confused... All of your diet logic makes perfect sense. I'd never even TRY anything spicy/super-heavy/carbonated anynore. The info about pizza dough is unbelievable! I had no idea.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 

Posted 6/30/2008 11:36 AM (GMT -6)
Food choices are really individual, and a food journal is a really good idea.  Fitday.com offers a free one and it's pretty useful.
 
I'm of the opinion that food may make some symptoms worse but it will not provoke a flare.
 
For example, an orange will cause me the worst butt burn I have ever had.  If I eat oranges in any form, I know that's what will happen.  Fried foods will have me rush to the john with exacerbated diarrhea.  But I can eat the spiciest food around (and often do) without any problem at all.  I had Thai Saturday that made my eyes water, and I broke out in a sweat eating it.  No change.
 
 
Posted 6/30/2008 12:10 PM (GMT -6)
Seconder - That's so crazy about the spicy food. I've never heard of anyone being able to do that! Thanks for the tip about fitday.com. I do keep a journal in a spiral notebook, and it has been helpful. I think I'm just going to do that for the time being to indentify my own triggers before moving on to any formulated diets like low-residue, etc. I hate the idea of eliminating large groups of food unless I absolutely have to.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 

Posted 6/30/2008 1:20 PM (GMT -6)
I'm so surprised that alot of doctors say food doesnt really make a difference. When im flaring i eat alot of chicken, rice, pasta, and steamed veggies. I really like the V8 fusion juice that has veggie and fruit juice, because I feel like I'm lacking alot of vitamins. I also try to limit my wheat intake while flaring and do rice pasta. I try to stay away from foods that are too acidic, but when i have fruit i leave off the skin. I don't know if this has really helped me, but i figure the softer food, the better. Have you had any food allergy testing? Fried foods are my enemy. Salad is terrible for me too. When I'm not flaring I may treat myself to one piece of pizza, or a small french fry every once and a while but it usually comes right back out if its not just a tiny portion.
20. Female. California.
Diagnosed left sided Ulcerative Colitis at 15, first symptoms at age 11.

Flaring! :(
40mg prednisone daily.
(reduced to 30mg, got worse. now taking 40mg going on 4 weeks )
Prevacid, Multi Vitamin, Digestive Advantage Chrons and Colitis, Iron Supplement

Allergic to- 6mp (gave me pancreatitis), Asacol

Posted 6/30/2008 2:25 PM (GMT -6)
Neondream - I haven't had any food allergy testing done. I've done some testing on my own through elimination diets, but that doesn't seem to be the problem. Right now I seem to have no taste for fruit, even thought I've always loved it. Any kind of meat seems to bug me right now - even chicken. I totally agree with the "softness" factor. That really does seem to help. Another good source of nutrients that I'm using now is Ensure. Juices are kind of tough of me, but the Ensure is pretty soothing.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 

Posted 6/30/2008 4:02 PM (GMT -6)
I have a always wondered how is it that you actually monitor what foods effect your colon and the UC? Maybe someone can shed some light on this for me because I was under the impression that it took hours (like over 8 hours) before anything reaches the colon to irritate it. I have been in that situation in which you feel like something you are currently eating makes you run to the bathroom, but how if it hasn't even been digested in your stomach? Maybe liquids can get there quick enough but not solids, so are you monitoring 12 our 24 hours from the meal?
 
Age: 39
Diagnosed UC: Dec 1999
Remission Cocktail: Azulfidine, Prednisone, Paragoric Liquid
 
UC Flare: March 2008
Current Meds: 4 Lialda, 2 Purinethol, 5 mg Prednisone (tapering)
Other ailments: HBP, Gout

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