New to UC - Need Info on Diet

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Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 8:40 AM (GMT -6)   
Hi All,
Compared to most members, I'm new to UC (diagnosed in Jan '08 after two months of bleeding/diarrhea).  My doctor continues to tell me that diet doesn't make a difference, because my inflammation is so low (I have proctitis, so by the time the food gets to the rectum it isn't even food anymore according my doc).  I don't know what to believe, because some things I clearly cannot have (alcohol, coffee w/caffeine, etc.)  Plus, I'm not convinced that I only have proctitis - it may have moved up higher in the colon.
 
So I have some questions about diet for you experienced UC-sufferers, since I haven't had it long enough to detect any definite patterns of aggravation from my diet. 
 
  1. What diet guidelines do you follow?  Do you do soft foods?  Peel your veggies?  Cook down your fruit?  Follow a low residue diet?  Low fat?  Low sugar? 
  2. If you're in remission, are there any foods that you would never eat because you know they'd start a flare-up? 
  3. If you're having a flare-up, what foods are especially soothing to get you back into remission or close to it?
  4. Are there any proctitis sufferers who have gotten any relief from diet changes (just in case I really do only have proctitis)?

Any advice you can give me would be much appreciated.  I've read too much about all this stuff, and now I'm more confused than when I started.


Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 1X daily, Fish Oil.
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Vitamins
 
 


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 679
   Posted 6/29/2008 8:58 AM (GMT -6)   
I don't know why doctors say diet doesn't make a difference! Even if you're healthy...diet makes a difference, if you're diabetic...diet makes a difference and diabetes is a disease that we know about, but with UC noone knows exactly what the cause is and yet they say "diet doesn't make a difference", do you see the logic?

Anyway, my rant is over now...I'm ok...lol

Everyone is different but for me I avoid sugar, just about everything I eat has zero sugar in it, I also avoid milk, cheese and breads, sodas, etc.

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/29/2008 9:06 AM (GMT -6)   
I too have Ulcerative Procti***. My doc told me high fiber diet even when I was flaring. He told me I could eat or drink whatever I want. I'm not so sure he knows what he is talking about sometimes, I may switch doctors soon. Overall, I feel better when I eat healthy and not too much. I still drink coffee, it helps me to not be so tired. I was told to drink a lot of water which I am getting better at.(still not good enough) One thing that I have noticed makes me go more and very soft stools, (I never have had much diareah with my UC), is cole slaw. I love cole slaw and sometimes I eat a ton of it. It probably isn't agreeing with me but I seem to be drawn to it. lol Anyhow, everyone is different, some foods affect one and not the other. You have to test yourself, keep a food/symptom journal to see. The thing that makes me flare is stress. I don't think the food has as much to do with mine. And I stress out easily and can't seem to get away from stress. So, I have to work on that. Some foods I've read that are good to eat are spinach (canned), and bananas. Also, many people with UC peel their fruit. Good luck to you, I hope this helped a little. Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 6/29/2008 9:51 AM (GMT -6)   
Diet and UC symptoms are different for everybody. I would try keeping a food diary for a while and see if certain foods make a difference. I kept one for a month when my current flare started, and diet does not make much of a difference for me.
 
Personally, I stay away from spicy and fried foods. I don't eat nuts and limit my corn consumption. I don't drink soda or milk, but I can handle cheese. I sometimes peel my fruits and veggies. These are just precautions. Overall, I just try to eat healthy. For me, if I'm going to be in a flare, then I will be in a flare no matter what I eat or don't eat.
 
Also, it is better to eat multiple smaller meals rather than a few big meals--it is easier for the digestive system to break down smaller meals.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (2nd infusion 06/26/08), 2.4 g Lialda


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/29/2008 10:18 AM (GMT -6)   
Kiss520- There are no easy, quick-fix answers, or "get out of jail free" cards when it comes to UC. Everyone is different with varying degrees of severity. No one person can tell you what will work for you. I do believe, however, that diet plays a significant role in treating UC symptoms. I don't believe that food directly causes UC, but I do believe that food feeds the source of the problem.

Along with you, my doctors told me changing diet would not affect my symptoms. Then I happened upon a glint of info that caused me to research further to find fungus/yeast potentially being a cause of many of our health problems, particularly IBD's (UC, Crohn's), some cancers, high cholesterol, etc. See this research link on UC particularly:

http://www.ncbi.nlm.nih.gov/pubmed/17203803

Anyway, if you google 'fungus colitis candida' you can come up with your own readings. For me, an antifungal diet and natural antifungals were the only things that took virtually my symptoms away, after 8 years of UC (which started as proctitis, by the way). I know fungus is my issue for the rest of my life, as when I eat too many grains, sugar, processed foods, it bothers me. I also believe that probiotics are instrumental in me keeping healthy, as well. Which leads me to think there are others out there who may have fungal issues if they are finding probiotics are helping them. Bacteria and yeast work together in harmony in your gut, under ideal conditions, but when you take antibiotics, all bacteria (good and bad) is killed off. The good bacteria, which was keeping your yeast in check, is now gone, allowing yeast overgrowth to occur. Replacing the good bacteria with probiotics helps restore your bowel flora. As well, foods we eat (wheat, corn, peanuts) are commonly contaminated with mycotoxins (fungal by-products) and water-damaged/mildewy homes or places of work can also contribute to fungal problems. Is there anything safe in the world anymore !! :) Take care. Hope you find your answers.

Kim

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 12:54 PM (GMT -6)   
Hi Kim - I'm definitely not thinking there are any quick fixes or cures that apply to everyone. I've tried eliminating foods, eating more of other foods, etc, etc, and nothing seems to work; so I'm just wondering what's been working/not working for others. I haven't read anything about the antifungal diet, so I'm anxious to start researching that and see what it might mean for me. Thanks very much for the suggestions and the link to the website.

I've never been into processed foods much, but I do love my breads and sweets. How much do you limit your intake of these foods? For example, do you eat bread once a day? Once a week? How often do you have sweets?

Thanks again for your help.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 1X daily, Fish Oil.
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Vitamins
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30705
   Posted 6/29/2008 2:38 PM (GMT -6)   
Hi...what exactly are your symptoms at this time?

What does your diet consist of...let's say for breakfast, lunch, supper, snacks..etc? in general.

q
*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 2:49 PM (GMT -6)   
Right now I'm on a liquid diet, because I just got out of the hospital but here's what I would typically eat in a day:

Breakfast - 2 pieces toast with butter and honey (sometimes Pepperidge Farm, sometimes fresh), tea with Stevia
10:00 - banana
Lunch - Sandwich or pasta, some fruit
3:00 - 3-4 cookies and a cup of tea with Stevia
Dinner - some kind of protein, serving of veggies, a carbohydrate, and a little wine (not lately, though)

My symptoms are diarrhea with blood and some nasty cramping. I seem to be doing better today than yesterday, but I don't know what's making the difference because I'm doing so much stuff all at once (liquid diet, new meds, etc.).

Kim - I did a little research on candida, and I don't seem to have the most common symptoms (except for the UC, of course). Will still ask my doctor if its something for which I should be tested. Very interesting info... thanks again.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 1X daily, Fish Oil.
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Vitamins
 
 


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/29/2008 2:54 PM (GMT -6)   
If you like, you can read more on fungus, as well as a diet to follow (the actual one I did and had success with) at www.knowthecause.com under the FAQ section. Read some of the past newsletters there, as well. You can also watch the TV show the host does daily on the website. I followed it very strictly at the beginning. Now, I follow a version of it, only having yeast-free bread now and then ( a few times/week maybe), as well as my sweets now and then, sometimes more now than then, I'll admit. I am still human, after all. :) I still try to avoid corn/corn products and peanuts because of the fungus factor. I was an avid bread lover, and now I don't miss it.

Once I got my fungus problem under control (I starved it following the strict diet) and my symptoms disappeared, I was able to introduce foods back into my daily meals. It is not a matter of just eliminating foods that seem to bother you when it comes to fungus. Fungi love sugar, yeast, grains and moist, warm places. You must follow a very strict low-carb diet if you have a fungal/yeast condition. Fungi don't just remain in your gut. They can become systemic, poke holes in your gut, cross mucous barriers, alter cell DNA, and travel throughout your body into other organs where they can do damage.

I still cannot tolerate yeast and too much sugar bothers me. Processed foods (come in a box, wrapper or can) generally don't have too much good in them for me and I find I need to read all labels to see what hidden ingredients may bother me. You will get used to it after awhile...knowing what to avoid once you realize what bothers you. I know the path I must take to stay well. The junk food I once loved doesn't entice me anymore, especially once I realized it was making me sick. Keep researching. If you decide to try a antifungal diet, know that you may feel worse for a few days before you start feeling better as the toxins are dying off and leaving your body. That would, however, be an indication you were on the right path. Good luck. I will be on vacation for a few weeks (heading to Newfoundland), but if you want to email me personally for more info, I'll check my email from time to time. Take care.

Kim

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 3:25 PM (GMT -6)   
Kim - Thanks so much for all the info and for offering your support. I'll be sure to keep your email handy in case I decide to pursue this diet. You've been a big help. Have a wonderful vacation!

Katie
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 1X daily, Fish Oil.
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Disgestive Advantage (Colitis), Symex DuoTabs, Vitamins
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30705
   Posted 6/29/2008 4:14 PM (GMT -6)   
Kiss...curious why you're doing the enemas twice daily...plus the cortisone enemas...could be a bit too much 5ASA...kind of a fine line sometimes...unless you're on the 2g dosage.

Were you in the hospital for UC? Did you happen to have any inflammation around the cecum?

What is exactly the liquid diet you're on?
 
It's good you're feeling a tad better today than yesterday.
 
How many times a day are you going to the bathroom?

q


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1201
   Posted 6/29/2008 4:38 PM (GMT -6)   
Is it possible you have fructose malabsorption? Maybe the fruit or honey is giving you D, as well. I find I get like that if I eat certain fruit. Dunno. Just a stab in the dark.

I never thought I had a fungal problem either, until I experimented with the diet and got well. A test the doctor prescribes won't find it. I was tested for everything under the sun, and my doctors never found anything to suspect fungus. There is more than just "candida" fungus out there. Glad you're feeling better today :)

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 6:10 PM (GMT -6)   
Kim - The fructose thing is a possibility. Last week I started eating a small plate of strawberries and was running to the toilet before I even finished them. Did your doctors specifically test for Candida and not find it? I've read that there are tests for it... ?

Quincy - Just following doctor's orders with the enemas. What can too much do to me? Will there be adverse effects?

I was in the hospital for UC - lots of diarrhea (10-12 times a day) with lots of blood and horrible cramping (we're talking labor pains). In addition to a saline/glucose IV, I was put on a "full liquid" diet in the hospital, which means broths, strained cream soups and cereals, juices, sherbet, etc. None of this stuff seemed very healthy for me, but the cramping and bleeding decreased significantly. Then I left the hospital, starting eating regular food again, and was having all the same symptoms about 36 hours after starting the regular food. So I put myself back on a liquid diet at home in addition to all these new meds. Today I added in a couple soft foods, like a piece of bread, a couple ravioli, and a couple pierogies. God knows what's going to happen in a couple hours... (fingers crossed)...
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 6:13 PM (GMT -6)   
I should also add that I had a CT scan and they found nothing wrong with any other organs. I guess that's something to be happy about.

Quincy - Didn't hear anything about inflammation of cecum. I don't even know where that is! I need to beef up my UC vocabulary, I think. ;-)
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 


winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 6/29/2008 6:56 PM (GMT -6)   
The only thing i have found that i seriously cannot have even a little bit of EVER is fried food. I keep a food journal and im sure that these wonderful little deep fried samosas they sell at the farmers market has started 2 flares for me. So now i dont ever eat anything fried. I also stay away from sugars, soy, oats, processed foods, caffeine, breads etc. I mostly eat brown rice farina, well cooked veggies and fish. I eat agave nectar and flax oil in my farina and its pretty good. I do eat small bits of dark chocolate now and again, and seem to be fine if i just have a little bit, its when i go overboard of any one thing that i notice problems the next day...
Winni, 25

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 1x every other day.
30 mg pred,and tapering. 50 mg 6 mp- as of 5/11/2008
supplements:calcium, aloe gel, pro-biotics, bee propolis, omega 3 oil
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/29/2008 7:51 PM (GMT -6)   
I think I have issues with fried stuff, too. In fact, I had two fried chicken tenders right before my hospital stay. :-(

Do you think overeating even healthy food can cause problems? Seems like I have to eat VERY small portions...
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 


winni
Regular Member


Date Joined Jul 2006
Total Posts : 179
   Posted 6/29/2008 8:09 PM (GMT -6)   
yes, i have found if i don't get too stuffed i feel waaay better.
Winni, 25

Diagnosed UC july 2006.
medications: colazal 9 daily, cortifoam 1x every other day.
30 mg pred,and tapering. 50 mg 6 mp- as of 5/11/2008
supplements:calcium, aloe gel, pro-biotics, bee propolis, omega 3 oil
osteopenia from all this prednisone.
http://www.myspace.com/harshrealmbro


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 6/29/2008 8:18 PM (GMT -6)   
My diet rules of thumb: if I'm bleeding I use a low residue diet. When I'm flaring, but not bleeding I start adding more foods back in. When I'm in remission, I eat anything I want - within reason!

Larger meals tend towards larger bms. Smaller meals, with snacks work best for me. I tend to ignore my better judgement at times and pay for it.
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
15mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion on 06/17/08:  Next infusion on 07/01/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Midnitenz
Regular Member


Date Joined Mar 2008
Total Posts : 31
   Posted 6/29/2008 8:36 PM (GMT -6)   
Hello Kiss520
Nice to meet you.
I'm one of those "believers" that diet has a huge part of healing and also your mind set..Everyone is different though.
Depending on "where you are" in pain/etc ..depends.
I was diagnosed with severe UC 9yrs ago - last flare was 2002 (due to stress).
And now I dont suffer any problems.
My theory is : if it burns going in - it will burn going out....if its bubbly going in - it will be bubbly coming out. you getting my drift here?????
I always looked at what I was eating and broke it down in my head - how would that break down in my system.
Fruit - always took the skin off - and stayed away from the real acid types like oranges etc.
Bananas are great - small finger ones have the most potassium.
But look into your foods - for example - alot of people do not know there is fibre in LETTUCE.
Not saying you have to be a rocket scientist here - but like I said - everyone is different - I preferred to find out how I could control it - instead of just "upping meds"
I didn't eat HEAVY food - and pizza. HUGE no no - when I found out that the doh alone takes up to 6weeks to digest in your system - I felt sick - that was like purposely putting a brick in my bowel. (lol)
Even at your lowest point - always put a smile on your face and believe in yourself 100% that you WILL get there ..Keep a diary and write it all down - that is how I figured alot out.
If you want to drink alcohol - distilled ones are the best - not wine etc......
Keep smiling and keep strong - you will get there mate....without a doubt.

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/30/2008 11:00 AM (GMT -6)   
Dakotagirl - The low-residue diet is interesting and maybe something I try.

Midnitenz - I have one question about fiber - is it for someone like me who has lots of diarrhea? I read that fibrous foods are not easy to break down, but don't I need fiber to bulk up my stool? I bought Metamucil caplets and have taken a couple, but now I'm worried that that was a mistake. I was also just read a book that said to decrease my fiber intake to slow diarrhea. I'm so confused... All of your diet logic makes perfect sense. I'd never even TRY anything spicy/super-heavy/carbonated anynore. The info about pizza dough is unbelievable! I had no idea.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 


seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 610
   Posted 6/30/2008 11:36 AM (GMT -6)   
Food choices are really individual, and a food journal is a really good idea.  Fitday.com offers a free one and it's pretty useful.
 
I'm of the opinion that food may make some symptoms worse but it will not provoke a flare.
 
For example, an orange will cause me the worst butt burn I have ever had.  If I eat oranges in any form, I know that's what will happen.  Fried foods will have me rush to the john with exacerbated diarrhea.  But I can eat the spiciest food around (and often do) without any problem at all.  I had Thai Saturday that made my eyes water, and I broke out in a sweat eating it.  No change.
 
 

Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/30/2008 12:10 PM (GMT -6)   
Seconder - That's so crazy about the spicy food. I've never heard of anyone being able to do that! Thanks for the tip about fitday.com. I do keep a journal in a spiral notebook, and it has been helpful. I think I'm just going to do that for the time being to indentify my own triggers before moving on to any formulated diets like low-residue, etc. I hate the idea of eliminating large groups of food unless I absolutely have to.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 


neondream
Regular Member


Date Joined May 2008
Total Posts : 47
   Posted 6/30/2008 1:20 PM (GMT -6)   
I'm so surprised that alot of doctors say food doesnt really make a difference. When im flaring i eat alot of chicken, rice, pasta, and steamed veggies. I really like the V8 fusion juice that has veggie and fruit juice, because I feel like I'm lacking alot of vitamins. I also try to limit my wheat intake while flaring and do rice pasta. I try to stay away from foods that are too acidic, but when i have fruit i leave off the skin. I don't know if this has really helped me, but i figure the softer food, the better. Have you had any food allergy testing? Fried foods are my enemy. Salad is terrible for me too. When I'm not flaring I may treat myself to one piece of pizza, or a small french fry every once and a while but it usually comes right back out if its not just a tiny portion.
20. Female. California.
Diagnosed left sided Ulcerative Colitis at 15, first symptoms at age 11.

Flaring! :(
40mg prednisone daily.
(reduced to 30mg, got worse. now taking 40mg going on 4 weeks )
Prevacid, Multi Vitamin, Digestive Advantage Chrons and Colitis, Iron Supplement

Allergic to- 6mp (gave me pancreatitis), Asacol


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/30/2008 2:25 PM (GMT -6)   
Neondream - I haven't had any food allergy testing done. I've done some testing on my own through elimination diets, but that doesn't seem to be the problem. Right now I seem to have no taste for fruit, even thought I've always loved it. Any kind of meat seems to bug me right now - even chicken. I totally agree with the "softness" factor. That really does seem to help. Another good source of nutrients that I'm using now is Ensure. Juices are kind of tough of me, but the Ensure is pretty soothing.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 


stogieFL
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/30/2008 4:02 PM (GMT -6)   
I have a always wondered how is it that you actually monitor what foods effect your colon and the UC? Maybe someone can shed some light on this for me because I was under the impression that it took hours (like over 8 hours) before anything reaches the colon to irritate it. I have been in that situation in which you feel like something you are currently eating makes you run to the bathroom, but how if it hasn't even been digested in your stomach? Maybe liquids can get there quick enough but not solids, so are you monitoring 12 our 24 hours from the meal?
 
Age: 39
Diagnosed UC: Dec 1999
Remission Cocktail: Azulfidine, Prednisone, Paragoric Liquid
 
UC Flare: March 2008
Current Meds: 4 Lialda, 2 Purinethol, 5 mg Prednisone (tapering)
Other ailments: HBP, Gout

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