I've actually been taking the enemas nightly for many, many months now. Maybe 6 months? I had tried a few times to take them every other night but usually started to get flare symptoms. So for the past 4-6 months I"ve been taking them every night. Had just went up to 2 enemas a day a few days ago because of the flare I have now.
Just started the Prednisone yesterday. I'm on 40mg for a week, then 30, then 20, then 15, 10, 5 - 6 week course. I'm going back to the doc today, they wanted to see me to run some tests (xray or CT scan or something) since I was still having issues with abdominal pain all weekend and can't really eat.
My inflamation is up the left side of my colon, so the supp's won't work for me anymore (they used to 14 years ago when it was only inflamed at the very bottom - proctitis at that point only). I went many, many years (10??) with just asacol - then Colazal - keeping me in remission. It seems though that the past few years this isn't enough anymore. My disease seems to be changing a bit the longer I have it.
I've only had to take Pred once before, about 13 years ago. It knocked out my flare and put me into about a 5-7 year remission. I'm just hoping this time it clears up my symptoms and allows me to eat again! :)
I'll keep taking the enemas nightly as I normally would for maintenance. I didn't take it this morning as I woke up with horrible stomach cramps and had to run to the bathroom - I had at least kept most of the enema from last night in for around 7 hours at that point. I just think if I can get the stomach spasms to calm down things might get a little better.
Does anybody know of anything you can take to help those pains? The doc never gives any suggestions. I have Levsin but it does nothing when the pains are this bad.