waking up to go to the bathroom at night??

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Liadan87
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/30/2008 3:42 PM (GMT -6)   
Hi. I've been diagnosed with UC for a little over 2 years now and this is my second time with a severe flare. My doctor put me on prednisone a few weeks ago and (aside from all the negative side effects it gave me) I am feeling better generally but what is really frustrating is how many times I have to wake up at night to use the bathroom!! it's really annoying and I haven't been getting any sleep in weeks! I don't know if it's from the prednisone or not (though I think it's not because the last time i had a flare-up I had this same problem and i wasn't on prednisone).
has anyone had this problem too? does anyone know any suggestions to what can make me stop having to wake up at night to go to the bathroom?
thanks.

JEG
Regular Member


Date Joined Apr 2008
Total Posts : 112
   Posted 6/30/2008 4:03 PM (GMT -6)   
i had that same problem and i just had to wait until the prednisone kicked in. my flare lasted 2 mos and i was up 2-3 times a night the whole time. hope the pred kicks in soon and you can get some sleep!
3x3 colazol a day (brand name)
1000 mg canasa bedtime
3 entocort a day
15 mg prednisone daily
2 cortifoam enemas daily
prenatal vitamin
iron supplement
30 weeks pregnant with our first child...it's a girl :)


stogieFL
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 6/30/2008 4:08 PM (GMT -6)   
I had night sweats and was in the bathroom a few times a night but it was god sent because my cramps dissapeared within 24 hours of starting the treatment not to mention that my energy level went through the roof. It goes away as your start tapering down on the prednisone.
 
Age: 39
Diagnosed UC: Dec 1999
Remission Cocktail: Azulfidine, Prednisone, Paragoric Liquid
 
UC Flare: March 2008
Current Meds: 4 Lialda, 2 Purinethol, 5 mg Prednisone (tapering)
Other ailments: HBP, Gout


Lisa E.
Regular Member


Date Joined Jun 2008
Total Posts : 47
   Posted 6/30/2008 4:09 PM (GMT -6)   
Me, too. My flare has been going on for well over a month and I finally got away from the night poops about a week ago. I know how frustrating it is because sleep is so important. There's nothing worse than having a flare and not being able to sleep. I definately feel for you. I wish I could offer a solution, but I really don't know of any. I'm sure this is just common sense but try having larger meals earlier in the day and a light supper. My old boss always used to say "Have a breakfast fit for a king and a dinner unfit for a pauper." He was a health nut and swore by his mantra!! LOL

Good luck to you,
Lisa E.
41 - Female/Long Island, NY
Dx - 6/23/08 - Pancolitis
Asacol - 2 pills/3X per day
Asadopholous pearls - 1X per day
Culturelle - 1X per day
Fish Oils
Prednisone - 40mg/decreasing 5mg every 4 days.  Haven't started taking because of surgery concerns.
 
Added Bonus - found a mass on my left kidney during an abdominal CT.  Waiting on surgery to remove my kidney.


Bum Deal
Regular Member


Date Joined Jan 2008
Total Posts : 34
   Posted 6/30/2008 4:15 PM (GMT -6)   
I think a lot of us have been there - until my meds kicked in I was practically on autopilot during the night, I'd actually wake up running to the bathroom, it happened so often (if only my brain could have dealt with the whole thing while I was asleep :-) ).
It might not work for you, but I found that if I lay in a certain position (for me, it was on my right side), I tended not to get the urge so much. If I so much as moved an inch from this position, I'd be heading for the bathroom again, but after a while my body learned to stay in this position and I got a bit more sleep. From what I've read from other people, a lot of us seem to have a bit more trouble when we lie on our left for some reason. I'm a good way towards remission and I still favour my right hand side or lie on my back.
Give it a try anyway - you might get an hour or two more sleep (which I bet sounds like a luxury right now).
 
Good luck,
 
DW

Male 30 Years Old.

Diagnosed Pancolitis June 2007

Currently 20mg Prednisolone, 9 tablets Asacol, 50mg Imuran (started Dec 07), 75mg Mercaptopurine (following allergic reaction to Imuran)


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 6/30/2008 4:48 PM (GMT -6)   
For me, I end up getting out of bed whenever I get gas. Because sometimes it's NOT gas....which sucks. Sometimes I just shove a panti liner in the back of my underwear and just take a chance. For some reason, it mostly happens in summer. I seem to be ok the rest of the year. I wonder if perhaps I am a lighter sleeper in the summer due to more sunlight.

Liadan87
New Member


Date Joined Jun 2008
Total Posts : 2
   Posted 6/30/2008 5:24 PM (GMT -6)   
Bum Deal said...
I think a lot of us have been there - until my meds kicked in I was practically on autopilot during the night, I'd actually wake up running to the bathroom, it happened so often (if only my brain could have dealt with the whole thing while I was asleep :-) ).
It might not work for you, but I found that if I lay in a certain position (for me, it was on my right side), I tended not to get the urge so much. If I so much as moved an inch from this position, I'd be heading for the bathroom again, but after a while my body learned to stay in this position and I got a bit more sleep. From what I've read from other people, a lot of us seem to have a bit more trouble when we lie on our left for some reason. I'm a good way towards remission and I still favour my right hand side or lie on my back.
Give it a try anyway - you might get an hour or two more sleep (which I bet sounds like a luxury right now).
 
Good luck,
 

That is true for me too! and here I thought i was the only one with that problem. I always try to sleep on my right side too and if i move just an inch suddenly i get cramps and i'm running to the bathroom. i do try to stay in the same position for as long as possible but then my right side gets numb and i just have to move (which leaves me very conscious during the night and also interferes with my sleep). but thanks for the advice. I really do hope that this stops really soon.

bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 6/30/2008 6:18 PM (GMT -6)   
When I wass flaring there were some nights I had to get up like 7 times I'm guessing, some of the times was gas too. I hope you start to feel better soon. Good luck.
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Cymbalta 20 mg X 1,         Canasax X 2 Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 6/30/2008 6:59 PM (GMT -6)   
I was having the same problem, but not nearly as severe (I was only waking once in the night to poop). Try to eat dinner as early as possible without sending yourself to bed absolutely starving. I wish I had more to offer, but that's the only thing that helped me.
Ulcerative Proctitis (10cm) - Diagnosed by colonoscopy January '08
Current:  Rowasa (Mesalamine) 60 ML 2X daily, Cortenama (Hydrocortisone) 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil, Disgestive Advantage (Colitis).
Previous:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins
 
 


Severin
Regular Member


Date Joined Oct 2007
Total Posts : 320
   Posted 7/1/2008 4:40 AM (GMT -6)   
Haven't slept a night through for over 3 years... These days it happens on auto-pilot. Never found a way to stop or reduce it.
"We are dreamers, shapers, singers and makers..." - Elric, Technomage
  • 28yo male. Brisbane, Australia. Diagnosed at 16yo. Currently enjoying severe pan-colitis.
    - Participating in the Golimumab trial as of 1st May, 2008;
    - 2x Colazide, twice a day; 25mg of 6-MP a day; 1xAllopurnol;
    - 1x teaspoon of Metamucil 3 times a day;
    - 3x Garlic oil capsules & 7mL Olive Leaf Extract twice a day.


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/1/2008 6:13 AM (GMT -6)   
Welcome to Healingwell :) What other meds are you on at this time? Have you ever tried rectal meds? Fiber supplements? If you haven't tried rectal meds then I highly suggest them. They really do help. And fiber supplements can help bulk things up for you if you can tolerate them; which in turn may allow you to rest and not use the restroom as often. Another suggestion - though this should be used sparingly is occasional use of Immodium or if you are in pain at night you can ask your doc for Darvocet. Darvocet is a narcotic pain reliever which can help slow your colon down a bit allowing you to rest.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7(?)~waiting for epidural injections
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bap06
Regular Member


Date Joined Jun 2008
Total Posts : 57
   Posted 7/1/2008 9:16 AM (GMT -6)   
During my flares, I'm up most of the night, too. I used Canasa suppositories right before bed, and that usually got me at least a few solid hours of sleep before the hourly trips to the bathroom started up!
*Diagnosed 10/07 (6 months pregnant w/ 2nd baby)
*Asacol (4 pills 3x a day)
Canasa
Prilosec
Calcium, multivitamin, Metamucil


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 7/1/2008 11:00 AM (GMT -6)   

this happened to me too during my flare from hell last sept/oct.  I was up every hour or so or more.  Once the meds kicked in I was ok.

until that point, I had to sleep a couple of times, so I took some tylenol PM just a couple of times and it did help me, though I still got up once or twice.  Also, what really helped me too, but more w/cramping was a heating pad a big one it is about 15 inches wide and maybe a little longer. 

so sorry you are going through this!  I know how awful it is!! It took a couple of months to get rid of the black circles under my eyes I got from it.


Beth, 32 ~ small flare - hoping caused by aspirin - hydrocortisone e's
Major Flare Sept/Oct 07
UC dx'd 03/00 (Proctosigmoiditis); Pancolitis since 09/07
Azathioprine 200mg 1xday nightly; Calcium and Vit D 500mg 3xday, Multi Vit, Folic Acid 400mg 2xday, Prilosec, Probiotics.
Minimal Change Disease (Kidney Disorder) dx'd 09/07 - partial remission since 03/08
Prednisone 40mg 1xday, Simvastatin 20mg 1xday, Diovan 160mg 2xday. Tekturna 150mg 1xday, Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.  Do you have edema? If so, check your blood protien level!
 


Jellybean4688
Regular Member


Date Joined Jun 2008
Total Posts : 99
   Posted 7/1/2008 11:14 AM (GMT -6)   
I had the same problem. I would go 6 times throughout the night. It would actually be worse at night during the day. I just had to deal with it until the prednisone and remicaide kicked in. Last week was my first week not to wake up to go to the bathroom.

-Dx with UC at 17 years old and I am now 22 years old with a serious flare up.
-Medications I am on:
Prednisone
Asacol
Canansa
Oxycodone
Doctors are about to try me on Remicaide
Celexa ( Anxiety)
-Syptoms: 6 BM/day, heavy rectal bleeding, severe back and side pain, abdominal cramping, fatigue, low blood count,nausea,rectal pain 


PeanutMom
Regular Member


Date Joined Jun 2008
Total Posts : 197
   Posted 7/1/2008 3:20 PM (GMT -6)   
OMG I love this post! I too find sleeping on the right side makes it easier to stay in bed longer and eating earlier helps. If I eat later I start waking up about 1am for the bathroom trecks. . . .if I can get dinner in earlier I don't wake up until 3-5am may not seem like a big difference but when you are exhausted it helps.

lol "auto-pilot" to the bathroom . . .I wish I had a nickel for every time I've done that because I would be rich!
Kim ~ Mom of Nathaniel aka "Peanut" 18months old
========================
I'm a married 36 yr old mom and here's "The list "
- UC 1997 currently unmedicated was on Colozal from 2001-2007
- Stage 3 CKD (Chronic Kidney Disease) 2007 taking 7.5mg lisinopril
- Anemic - Ferolicit IV bi-weekly
- Ashermans Syndrome - no treatment
- Allergies - water - haven't been tested officially but pine suspected


stogieFL
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 7/1/2008 4:40 PM (GMT -6)   
I am a little confused with the original question and the responses. I took the question not as a BM because of the UC but rather a side effect that I had with Prednisone that made me go P numerous times each night. I apologize if I incorrectly understood this post.
 
Age: 39
Diagnosed UC: Dec 1999
Remission Cocktail: Azulfidine, Prednisone, Paragoric Liquid
 
UC Flare: March 2008
Current Meds: 4 Lialda, 2 Purinethol, 5 mg Prednisone (tapering)
Other ailments: HBP, Gout


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/4/2008 5:39 AM (GMT -6)   
sigh. It's been awhile but the last two nights I've woken up after sleeping for some hours to sit in the bathroom with D for awhile. I'm waiting now for my bowels to calm down so I can go back to sleep. That's usually when I know my flare's getting bad, when I even have to go to the bathroom when I'm asleep.

(Also, I'm not on prednisone so it's not from a side effect for me, and I don't recall prednisone ever making me have to pee a lot or waking me up to pee)

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/5/2008 6:33 AM (GMT -6)   
omg i am in the same boat. i cant even move an inch either or im running to the can. if i even think about maybe moving, i have to poo.
left side, = bad
right side = kinda bad
back = kinda ok...
tummy = no way jose

problem is, that spending the whole night on my back starts to hurt and becomes uncomfortable.
i usually see each hour in the bathroom.
i have to put my space heater on the floor right in front of the toilet cuz its winter here and i would freeze to the toilet otherwise.
i have my sweatshirt close by to throw on on my way to the can as well.
it must look quite comical actually. hehe

but yea, nights are bad. i find myself sleeping in til 10-11am cuz the whole night i dont get any sleep. it finally comes about 5am - 10am.
sucky.
wish i knew how to make it stop, but im kinda used to it now... like posted before "auto-pilot" sums it up well.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/5/2008 8:13 AM (GMT -6)   
Kazygirl, try putting a pillow under your knees when you sleep on your back. That helps relieve the pressure on your back and may help the achiness.

When I was flaring, I was up to the bathroom every 1-2 hours. Apparently it's common, as it was one of the first things my GI always asked me. He seemed to use it to help gauge the severity of my flare. Since the flare went on for 5 years, my body trained itself to jump out of bed and go the the bathroom the instant I awakened, and if I wake in the night now, I sometimes still do that.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 7/5/2008 7:52 PM (GMT -6)   
Yup, night time BMs are one thing a doctor uses to guage the severity of a flare. Add some pred to the mix and I'm getting up to pee as well - sleep just doesn't work... I did try Ambien while on 40mg of pred - didn't wake up all of the time and when I did, I felt drunk... Neither was a good option, but sleep was necessary and the Ambien got me about 5 uninterupted hours. (That was at 10mg.) I started cutting the tablets in half (to get me 5mg of Ambien) and that helped a bit.

I have in the past used Darvocet to help me get a few hours of sleep. I know, not really what you're supposed to use it for...

Nap when you can!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
15mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion on 06/17/08:  Next infusion on 07/01/08
 
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kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/6/2008 12:31 PM (GMT -6)   
thanx judy, willl try that tonight.

its 3.30am and i just got done with one of my regular toilet visits for the night.
puked as well cuz it hurt so bad.
i think i might cry
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 7/7/2008 11:19 AM (GMT -6)   
So sorry! I know how awful that is. I sure hope you got a few hours a sleep!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
15mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion on 06/17/08:  Next infusion on 07/01/08
 
Co-Moderator for the UC forum:  Keep HealingWell running smoothly:  www.healingwell.com/donate


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/13/2008 12:29 AM (GMT -6)   
During my flares I will be up at least ten times a night. So annoying! I actually go each time too. Ugh.

When I was undiagnosed I counted how many times I went during a 24 hour period by making tallies.. Yup, it was a grand total of 48 times. I knew something was wrong then! Yikes and ouch.
21 years old

Diagnosed with moderate/severe UC June 2007(undiagnosed a while before that. It was terrible. I had to take most of my finals for that semester next to the bathroom).

Now taking Lialda 3x a day, and just started taking Entocort(3 pills in the morning) on 5/29/08. Now I'm down to just one a day for about a week then it's back to just my Lialda and iron.

Severely anemic, now taking 3 65mg iron tablets a day.


jars05
Regular Member


Date Joined May 2003
Total Posts : 297
   Posted 7/13/2008 10:15 PM (GMT -6)   
I don't have the problem of having to go at night...my bowel movements only get me in the morning hours between 7 or 8am to 12pm. Now the preps for the colonoscopies do keep me in the bathroom at night.
Age: 30
Location: Missouri
Diagnosed with UC in 1997.
Medications: 100 mg Azathioprine a day
Supplements: 2 Omega 3s, b-6, calcium, and multivitamin
No. of colonoscopies: I lost count at 6...LOL!
Last scope: 10/9/05-everything looked ok.
 
 

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