is there ever a time when she will have a break from drs

jayce

Regular Member

Joined : Nov 2007

Posts : 401

Posted 7/1/2008 2:46 PM (GMT -6)

do things ever settle to the point where my daughter might be able to go months without a dr?
i know everyone is different.
thanks

Mom to 19 year old daughter diagnosed 11/07.
colazal 3 x3 daily
purinethol 6mp=50mg daily
culturelle probiotic 1 daily
chewable vitamin
xifaxan antibiotic 400mg 2x day soon to be weaned

suebear

Veteran Member

Joined : Feb 2006

Posts : 5698

Posted 7/1/2008 3:01 PM (GMT -6)

Yes, if your daughter gets into remission she should not have to see a doctor for UC on a more than annual basis.

Sue

dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

PeanutMom

Regular Member

Joined : Jun 2008

Posts : 197

Posted 7/1/2008 3:02 PM (GMT -6)

Depending on the severity there should come a time where you can go a couple months without a doctor. I never thought there would be but I currently don't have to see anyone GI related until September. . . .that could change but right now I'm hopeful it will stay as it is.

Kim ~ Mom of Nathaniel aka "Peanut" 18months old
========================
I'm a married 36 yr old mom and here's "The list "
- UC 1997 currently unmedicated was on Colozal from 2001-2007
- Stage 3 CKD (Chronic Kidney Disease) 2007 taking 7.5mg lisinopril
- Anemic - Ferolicit IV bi-weekly
- Ashermans Syndrome - no treatment
- Allergies - water - haven't been tested officially but pine suspected

jujub

Elite Member

Joined : Mar 2003

Posts : 10407

Posted 7/1/2008 3:16 PM (GMT -6)

I see my GI every 6 months.

Judy

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.

Colazal, Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.

Co-Moderator UC Forum

Please remember to consult your health care provider when making health-related decisions.

kb5

Veteran Member

Joined : Jan 2007

Posts : 1015

Posted 7/1/2008 4:24 PM (GMT -6)

There was one point where I didn't see my Gi for 5 yrs. I know this is wrong but i kinda missed him. He's really the only doc i've had that i really like, GI or otherwise. I'll now be seeing him every 8 weeks for remicade. Its nice, he makes sure that he is there everytime i get remicade so he can check on me. (well, not just me, he does this for all his remicade patience)

Kelly, 30

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, no more pred after two years!!!! Off imuran as remicade is working!
Prontonix once daily for acid reflux, zofran 8mg every six hours for nausea
Remicade started 3/1/08...just had 4th infusion

stogieFL

New Member

Joined : Jun 2008

Posts : 10

Posted 7/1/2008 4:28 PM (GMT -6)

I was diagnosed years ago by an "old school" dr. that placed me on azulfidine and tried rawasa which didn't work. The cramps got so bad that I called him one day to meet me in the ER. I was admitted for one week and placed on a Prednisone drip. I continued the Azulfidine and Prednisone Tabs for another couple of months which got me into remission. I didn't have to see a GI for another 7 years. So yes it can happen!!!

Age: 39

Diagnosed UC: Dec 1999

Remission Cocktail: Azulfidine, Prednisone, Paragoric Liquid

UC Flare: March 2008

Current Meds: 4 Lialda, 2 Purinethol, 5 mg Prednisone (tapering)

Other ailments: HBP, Gout

ediekristen

Veteran Member

Joined : Apr 2007

Posts : 1366

Posted 7/1/2008 4:36 PM (GMT -6)

Definitely! At first, it really seems like you're at the doctor every day, and sometimes it's like that when you're really flaring, but for the most part a lot of doctors really don't want to see us that often either! :) Usually if I'm doing well I'll see my GI at least twice a year and when I'm flaring it's more like once every three months or so for an actual visit but lots of phone calls and lab visits in between. Honestly, I wouldn't feel comfortable if I wasn't getting checked out at least once a year for a scope to make sure things are looking okay (meaning, non-cancerous). But I'm just paranoid I guess.

Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)

Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
~~125mg Azathioprine~~

~~4800mg Asacol (Four 400mg tablets, three times a day)~~

princesa

Veteran Member

Joined : Aug 2007

Posts : 2204

Posted 7/1/2008 5:31 PM (GMT -6)

Definitely. I haven't had to see a GI on any kind of regular basis for several years. But yes, when you're first learning to manage your disease and are flaring, it can seem like you live at the GI's office.

Diagnosed with ulcerative colitis spring 1999.

Maintenance dose sulfasalazine.

Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.

Old Hat

Veteran Member

Joined : Feb 2007

Posts : 5195

Posted 7/1/2008 8:10 PM (GMT -6)

I'm in Judilyn's camp-- 6 months between gastro visits. It gives me moral support & updates my gastro's records, feels right to keep in touch because this doctor saved me in times of crisis. / Old Hat (nearly 30 yrs with left-sided UC ... [etc.])

jayce

Regular Member

Joined : Nov 2007

Posts : 401

Posted 7/2/2008 8:53 PM (GMT -6)

thanks to all that replied- it's been a real rollercoaster ride since this began and i am her main support, no one understands what we are handling here, and "b" is a very responsible 19 year old, but this is too much for anyone at any age to go alone. tomorrow we await the results of the urine culture,see the gynocologist in the morning because she's not feeling right, and then off to the gastro in the afternoon. she had to tell her employer that she couldn't come in and of course they are not happy -it's a summer job- and believe it's because it's a holiday weekend.
she promised a drs note. i'm so worried that this will always be a pattern and one day when she no longer qualifies under our insurance i don't know what will happen if she isn't well enough to work and have her own insurance. insurance is costing more and more and we get back less and less.
thanks for listening

Mom to 19 year old daughter diagnosed 11/07.
colazal 3 x3 daily
purinethol 6mp=50mg daily
culturelle probiotic 1 daily
chewable vitamin
xifaxan antibiotic 400mg 2x day soon to be weaned

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