???? Could doctors be missing UC

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gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 7/2/2008 1:31 AM (GMT -7)   
  I have been diagnosed with severe post infectious ibs since oct 2004; At that time I have high fever, wgt loss >10 lbs, vomiting severe diarrhea and horrific abdominal pain.  Lots of test ran, but surgeon ended up doing my colonoscopy not sure if biopsy was done.  Definately had gastritis he said and gerd.  Ended up with c-diff as well.  Gallbladder removed and a liver resection performed. Never got any better.  Dx with ibs - severe. Never has copious amounts of blood, but lots of mucous.
  Lately, I have had lots of mucous in my stool and a huge amt of thick white mucous, not clear, small amts of blood - very small.  I do have hemmrhoids though and I am mostly constipated from all the pain meds, but I still have to go and fast with the attacks = it turns in to loose stool after numerous bm's.  I have pressure in my rectum and itching and some pain there.  I feel like I have liquid expel sometimes and on toilet paper it is clear to yellowish mucous type stuff.  I have had increased nausea and abdominal pain and have had this off / on every since 2004, but this breaks thru oxycodone and fentanyl patch.  severe cramping with bm's and feel like i may faint and throw up.  Was dx with facet arthritis today and I have extremely dry skin and a chronic small sore like thing on my lower leg.  Several weeks ago, I had a fever of 103.4 and was very, very sick.  Vomiting numerous times and diarrhea, but no bloody stools. Abdominal pain as well.  I didn't go to the doctor, because I assumed it was viral; but in hinsight, I wish I had of; which to tell you the truth I was so sick, I couldn't go by myself and my husband and children didn't realize how sick I was.  My pain is always upper abdomen especially right side and epigastric area.  I stay extremely tierd as well.
  Anyway, I was wondering: do you have to have a lot of blood to have UC and also, I should have mentioned if I didn't; Up until 6 mos ago or so I always had diarrhea, but since pain meds; not as often and off and on I have extreme swelling of abdomen to where I look 8 mos pregnant.  I still have urgency and incontinence occassionally.  The rectal pain and expelling small amts of liquid ( very small ) is new and occassionally there is steaks of blood that is mixed in the stool as well as on it and it isn't bright red, it is more of a dull red color.
  I see my GI doctor in August again and she is aware, and she has mentioned another colonoscopy, but said since it hasn't been 5 yrs or more it probably won't show any changes, but she may do one anyway, she wasn't clear on that.
  Anyway, any advice I have just always felt as though they were missing something.  I can't work any longer due to all of this and its severity the GI doc and my primary doc have put me out of work indefinately and I am trying to get disability.
  Sorry for the long post, but I wanted to try and cover all the details.
  Thanks for any advice.

Have a wonderful pain free day, Anne.

IBS, fibromyalgia,arthritis, depression, anxiety, PTSD, GERD, migraines, past endometriosis, ovarian cysts, polyps in uterus = hysterectomy, gallbladder removal; liver resection

cymbalta, amitza, vivelle patch, fentanyl patch, oxycodone, levisyn, restoril, xanax, phenergan, mobic, fioracett, skelaxin


Red_34
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Date Joined Apr 2004
Total Posts : 23551
   Posted 7/2/2008 5:24 AM (GMT -7)   
I'm so sorry that you are having to deal with all this. To answer your question, no you don't have to bleed to have Uc. Not everyone bleeds though they are in the minority. It seems you have a lot going on and I'm not quite sure this sounds like Uc. Because one thing you mentioned is a high fever. Yes we do tend to get fevers with Uc but not high ones. Usually the people that have high fevers with their Uc tend to have something else going on such as an infection. I hope you get to the bottom of your pain and misery. There is nothing worse then NOT knowing what is wrong with you.


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AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 7/2/2008 8:45 AM (GMT -7)   
I suffered for 7 months with a doc telling me I had IBS and giving me IBS meds. He finally did a colonoscopy and most of my colon was a horrific mess. I agree with Sherry, fever is sometimes a sign of infection. They should try antibiotics for that and see if it helps. My mom has IBS and she has had a lot of the same things as you. I hope you get answers and feel better soon!
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prednisone 10mg (tapering), Prevacid, Sustenex, Lialda, Lexapro (anxiety), Synthroid, Iron, vitamins, Fish Oil
Expecting first child 12/08 via gestational surrogate!!!!


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 7/2/2008 4:14 PM (GMT -7)   
Thanks for the replies. Again I see the GI specialist in August, so we will see what the new plan will be. It could just be ibs, mine is just sooooo bad, (which they are aware of), that has been the dx since 2004. I have just always been afraid there was something more wrong. Again, thank you for the support and info.

Have a wonderful pain free day, Anne.

IBS, fibromyalgia,arthritis, depression, anxiety, PTSD, GERD, migraines, past endometriosis, ovarian cysts, polyps in uterus = hysterectomy, gallbladder removal; liver resection

cymbalta, amitza, vivelle patch, fentanyl patch, oxycodone, levisyn, restoril, xanax, phenergan, mobic, fioracett, skelaxin


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 7/2/2008 8:29 PM (GMT -7)   
I didn't have time to read your whole post but I wanted to add that it is a lot harder to diagnose crohns for some weird reason. I was told it was IBS for 10 years and then finally, oh wait, you have crohns! I hope you find your cause and solution soon!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 7/4/2008 11:12 PM (GMT -7)   
I have heard that uc and chron's are sometimes hard to diagnose and often are told you have ibs because they miss it. I have really been sick since Oct 04. My cousin was diagnosed with ibs for years and we have a lot of the same symptoms; and she never had blood either, but recently they did another colonoscopy and diagnosed her with uc. It may very well just be ibs - severe post infectious, but I have just always felt like it was more. Other than my cousin, I don't know anybody personally that has ibs as severly as I do. Mine is disabeling and now I have been diagnosed with this arthritis in my back. I stay in pain daily and a lot of days I can hardly get out of bed and I lay around all day. Sometimes this lasts for two days at the time. I just get so sick of it and it is so depressing to me. My house is never clean anymore, I don't cook for my family like I use to and even when I get dressed and try to fix myself up really good, I don't look good anymore. I am just really depressed lately; I am going to discuss it with my doctor on the 10th of this month and hopefully he will have some ideas to help me; I want my life back or at least a portion of it like it use to be.

Have a wonderful pain free day, Anne.

IBS, fibromyalgia,arthritis, depression, anxiety, PTSD, GERD, migraines, past endometriosis, ovarian cysts, polyps in uterus = hysterectomy, gallbladder removal; liver resection

cymbalta, amitza, vivelle patch, fentanyl patch, oxycodone, levisyn, restoril, xanax, phenergan, mobic, fioracett, skelaxin


dakotagirl
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Date Joined Apr 2006
Total Posts : 3402
   Posted 7/5/2008 5:37 PM (GMT -7)   
Oh, do we ever understand! I hope your doctor is able to get you some answers.

Have you condsidered changing your AD (anti-depressant) dose while you are dealing with this?

It's really hard to keep up with the house and food when you're feeling so miserable. Then that fact starts weighing on you...

Will be thinking of you!
Pan-colitis and GERD diagnosed May 2003
Osteopenia (hip and spine) diagnosed Feb 2006
Status:  close to remission?!?!?
15mg Pred, Asacol 12 per day,  Azathioprine 100mg, Aciphex, Forvia, and Pro-Bio
1st Remicade infusion on 06/17/08:  Next infusion on 07/01/08
 
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gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 7/6/2008 9:58 PM (GMT -7)   
Yes, I have been wondering about changing anti-dep, I have been on this one at this dose for about 2 years now I guess. I will talk to him on Thursday and let him know what's going on, but last time I asked about it he said no, because I am on Cymbalta and that is suppose to be one of the good anti-dep for pain as well. This time he may feel different though, we will see.
Thanks for all the support and replies, I always look forward to hearing from you all, because I know you understand the overwhelming emotions and circumstances of chronic illnesses. Thanks again.

Have a wonderful pain free day, Anne.

IBS, fibromyalgia,arthritis, depression, anxiety, PTSD, GERD, migraines, past endometriosis, ovarian cysts, polyps in uterus = hysterectomy, gallbladder removal; liver resection

cymbalta, amitza, vivelle patch, fentanyl patch, oxycodone, levisyn, restoril, xanax, phenergan, mobic, fioracett, skelaxin

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