should i keep taking pro biotics?

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rob_uk
Regular Member


Date Joined Jul 2007
Total Posts : 32
   Posted 7/2/2008 11:32 AM (GMT -6)   
hi everyone, i could do with a bit of advice. i've read that when taking pro biotics they can make you bloated and have wind at first, well this hasn't happened to me. they just seem to make me feel worse, more bm's, more blood, stomach just doesn't feel right, but not bloated. i persisted with them for over 2 weeks. i've tried 3 different sorts and its always the same. its annoying because so many people do so well on them. i think i might try culturelle, they seem to be a popular choice. or should i just leave it and say they don't work for me? thanks

Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/2/2008 1:09 PM (GMT -6)   
You just need to find the right one that works for you and that can take several tries. There might be fillers in some probiotics so it's best to look at the ingredients and see if there is a common component. Personally I don't understand why some companies have to add all that extra junk in there! It took 3 or 4 different probiotics before I found the right one for me - Probio from Enzymedica. But if you think it's having an adverse affect on you, stop and try a different brand. Good luck :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7(?)~waiting for epidural injections
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Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/2/2008 1:10 PM (GMT -6)   
Forgot to mention too, especially if you are sensitive to them, it's best to start out slow with a probiotic and let your body adjust to it before upping the dose.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7(?)~waiting for epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/2/2008 1:48 PM (GMT -6)   
The one I use is called Primadophilus Rueteri made by natures way, I have not had issues with bloating/gas from it at all and I've been taking it daily for 4ish yrs now...it's important to take them indefinitely (even in remission)...I used to have issues with gas and bloat so my GI told me to take fibre supplements daily and indefinitely which once my system adjusted to it (gave me extra gas and bloat) all my gas and bloat issues went away (I have very minimal gas, like a regular person) there have been plenty of benefits from taking fibre supplements daily as well (it's part of my regime). So you may want to look into that as well once you've found a probiotic that doesn't cause you any issues...the primadophilus does not have fillers/additives/sugar/dyes or anything eles added to it, just a little potatoe starch for preservation but it must be kept cold (even at purchasing) at all times, one/day is all that's needed, makes having to keep it cold worth it and it also aids with lactose intolerance and high cholesterol if you have those issues.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 7/2/2008 2:34 PM (GMT -6)   
I am starting to second guess probiotics too. Maybe they help me, but I am not really sure. Not sure about anything really about UC. about the only thing I am sure of is that prednisone helps. But i read an article yesterday on the net when I was researching for my
"mouthwash" thread that there was a study of 300 people with digestive issues like Chrones, IBS, IBD and like 40 normal people and the study found that there were not much difference in types of bacteria in the gut, but the ones with digestive issues had more bacteria and there were even more when the diseases were more severe. They didn't get specific in what types of bacteria were found. I was trying to find more info about that stuff, but I didn't look too long. The article was interesting but I felt I still needed to know more about the stuff. I'll try to find the article again and post where to find it.
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 7/2/2008 2:56 PM (GMT -6)   

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/2/2008 4:31 PM (GMT -6)   
I'm also using Primadophilus reuteri and I haven't had any problems with bloating or gas. However, it has done nothing to help my flare. I just keep taking it b/c it hasn't had any adverse effects.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/2/2008 5:07 PM (GMT -6)   
ComedyDork said...
I'm also using Primadophilus reuteri and I haven't had any problems with bloating or gas. However, it has done nothing to help my flare. I just keep taking it b/c it hasn't had any adverse effects.
 
Could be the reason why I've noticed improvements from it is because it works in conjunction with the other naturals I take and I've changed my diet cutting out all junk and processed foods/beverages and I exercise regularly with cardio and weights.
 
Often it's a combination of things that make each supplement work that much better and everyone is different, what works for some doesn't necessarily work for all.
 
:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 7/2/2008 5:07 PM (GMT -6)   
There's a school of thought that probiotic supplementation may be counterproductive if you are in a severe flare with bleeding. If so, you would concentrate on healing the gut first, then take probiotics. But it is alot of personal trial and error. I'd recommend Natren's non-dairy Bifido Factor powder as an effective and gentle place to start, if you haven't tried it already.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/2/2008 9:07 PM (GMT -6)   
I started probiotics while under a severe enough flare and still had positive results, so keep searching for a probiotic that works for you rather than waiting till you're feeling better, afterall a study on VSL3 showed that while in flares it brought the majority of patients out of their flare, with the rest find at least some improvements.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


rob_uk
Regular Member


Date Joined Jul 2007
Total Posts : 32
   Posted 7/3/2008 12:19 PM (GMT -6)   
thanks a lot for all the replies. i'll try another one and keep searching for the right one

relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 7/5/2008 1:29 AM (GMT -6)   
I tried one that supposed to be a good one, according to a person in the store and it seemed like I had an increase in bleeding and it may have required patience, but I just dropped it. There is a possibility that even these "friendlies", or better, a particular version of them is similar enough in genetic makeup to a bacteria that our bodies are trying to fight off. For example, in celiac disease it is thought that glutten is very similar looking to candida, so the body is mistakenly attacking it. So yeah, during a flare there is a battle going on and mistaken identity may occur and either waiting or find a more neutral bacterium may be the best idea.

Florastor (the U.S. name) is very different from the rest and maybe you'd have some luck with it. Probio seemed to help me as well and general variety types. Not sure there is anyone specific. A lot of trial and error like anything else.
Pancolitis '04
Currently in a mild flare
Taking Lialda (2/dy), Probiotics, Fish Oil w/ Alpha Lipoic Acid, Iron, Folic Acid

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