Using Steriod Enemas

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fengshuisuey
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 7/2/2008 12:13 PM (GMT -6)   
Hi Everyone,
       I am a new user to this group and looking round i have found he topics useful.I have been diagnosed with Ulerative Colitis for 18monhs now and am having my second flare-up at the moment.My consultant as decided to get me to use Steriod Enemas and im quite scared at the thought.I just wondered if anyone as still worked and used the enemas due to having to use the toilet lots.What are the side effects and are they good to use.I have been very depressed and anxious due to the pain has you all probably feel from time to time.This disease is a total pain in the arse....lol.ANy info would be gratefully received.... sad

pupluv
Regular Member


Date Joined May 2007
Total Posts : 256
   Posted 7/2/2008 12:20 PM (GMT -6)   

 Hi, and welcome....I use steroid enemas when in a flare. In fact, I'm using them now. They can be a little difficult to retain, but you just have to try to keep it in as long as possible. I think the foam is easier, but I haven't tried those. I haven't had any side effects with the steroid enemas. They help me a lot.

Donna


Donna
Diagnosed with indeterminate colitis in 1992
current meds
4 asacol 3x's a day
Azathioprine
Rowasa enemas as needed
VSL3
Bunches of vitamins


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 7/2/2008 12:32 PM (GMT -6)   
Just curious....I have used the rowasa enemas and I have a horrible time keeping them in. I use the canasa suppositories with no problem at all. I was wondering if the steroid stuff comes in a suppository as well (should I ever need it at some point down the road).
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Asacol 2 pills 3 x/day, Canasa supps
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/2/2008 12:35 PM (GMT -6)   
I swear by cortifoam steroid enema (for me it works the best compared to any other rectal meds) the risk of side effects is so low because unlike taking oral steroids it doesn't get into your bloodstream nearly as much therefor super low risk of side effects...I've been on it at times for as long as a yr before tapering off of it and never had any issues...I only have used it at night just before bed as usually that is my least active time with IBD.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/2/2008 1:05 PM (GMT -6)   
I can not tolerate any of the other conventional 5-ASA rectal meds so when I flare, I have no choice but to use the steroid enemas. I have been on and off them for a while now. The only thing that happens to me is after being on them for any extended period of time is that I start getting the typical steroid side effects such as moodiness, food cravings, insomnia and moon face. But I'm talking 6 months to a year of being on them. Usually if you respond quickly to them, the typical course is anywhere from 3-6 weeks. So the side effects usually don't have a chance to accumulate. I believe that only around 5-8mgs of steroid actually enter your bloodstream. If you have left sided, proctosimoiditis or pancolitis, the enemas are the best thing to use since the foam doesn't go that far up into the colon. When I start on the steroid enemas, I usually respond fairly quickly - within a week.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7(?)~waiting for epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 7/2/2008 2:02 PM (GMT -6)   
I currently have to do three enemas a day (morning, afternoon, and night). In the morning, I wake up 30 minutes early, put in the enema and go back to sleep for a half hour. Then I get up and go to the bathroom and wait for it to come out (maybe 2-3 minutes). I do the same thing in the afternoon, and then in the evening I do my last one and just go to bed for the night. I usually wake up during the night to pee and just let the meds come out then (again, takes a couple minutes). I thought they would be a lot more inconvenient than they really are. The afternoon one would be difficult if I was working, but I'm a stay-at-home mom so I just do it while my son is napping. I don't know how anyone holds down a job with this stupid disease. My hat is off to those of you who do.
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil 2x daily, Disgestive Advantage (Colitis) 2X daily, Metamucil 2X daily, Yoga daily.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


fengshuisuey
New Member


Date Joined Nov 2006
Total Posts : 4
   Posted 7/2/2008 3:36 PM (GMT -6)   
Thanks for all the info u lovely people still dont know how i will be able to work and use enemas at the same time though.Having only had UC for nearly two yrs only had steriods orally and asacol like many people on this forum.Ive had three colonoscopys and a gastrophapy or summat like that.Its a nightmare living with this awful disease there is a group in England called NACC Group they have a website that might be useful to some f you.
Again
THANK YOUXXX

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/2/2008 3:48 PM (GMT -6)   
fengshuisuey,

I think you might be thinking of a different type of enema :) Usually when one hears the word enema, they think of the kind that you take to clear you out before a prep, the kind that makes you go to the bathroom 1,000 times in a night. The steroid enemas are different, since it is a medicine it is actually meant to STAY in the bowels, so it shouldn't make you go to the bathroom constantly and you'll be able to work and everything like normal. At first you might feel some pressure when you start using them and will feel like you have to go to the bathroom right away but that's just because of the inflammation, and once the medication starts working it will be easier to hold them in. Also, most people do their enemas before bed that way they can just lay down and go to sleep and let the medicine "soak in".

Hope that answers your question :)
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/2/2008 4:26 PM (GMT -6)   
Ok, possibly stupid question, but is there a liquid steroid enema? My GI has only talked to me about proctofoam and cortifoam.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery
 


Red_34
Elite Member


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/2/2008 4:29 PM (GMT -6)   
Yeppers, it's called Hydrocortisone enemas or Colocort :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7(?)~waiting for epidural injections
To help Healingwell - click here: DONATE
 
 
 
 

 
 


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1766
   Posted 7/2/2008 4:32 PM (GMT -6)   
Thanks, Sherry. I'll have to ask about that.
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, 1 DanActive, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery
 


ESM NYC
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/9/2008 3:51 AM (GMT -6)   
BOOO to cortenemas!  yes, they seem to helping my flare up (combined with cortifoam in the AM)... they are causing me severe insomnia.. it is 439AM in ny right now!  i am so annoyed.. i am calling dr tomorrow with this and will likely either stop using them or use them 1/2x per week.  it is ridiculous- also i am noticing slight face puffiness (not as bad as prednisone, but i've only been using for about a week- so it could get worse AND slight lip hair growth- not fun on a 24 year old girl!).. also i am on the generic of azulfadine (sp?)... i take about 5 or 6 per day and 100mg of the generic of 6mp... sleep is very important to me and i am so angry that i am wide awake right now.... remicade was also once my wonder drug but sadly when i tried another go of it (after using it at the 0, 4, 6 week dose) a year later it caused me a severe allergic reaction and had to to be stopped :-(- did that happen to anyone else?

tums
Regular Member


Date Joined Apr 2008
Total Posts : 128
   Posted 7/9/2008 4:18 AM (GMT -6)   
I have used the liquid steroid enemas in the past.  Have always managed to retain at night time but during the day different story. When I start to flare these seem to be good at keeping the inflammation at the level but if go into severe flare they don't really do any good for me. Also the more inflammation you have the harder to retain.

32 year old female
UC diagnosed 2001
Asacol 6 per day
Azathioprine 100mg started 4/08
Steroids 5mg per day

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