Is there always blood?

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sdaless
Veteran Member


Date Joined Jun 2005
Total Posts : 1396
   Posted 7/2/2008 11:11 AM (GMT -7)   
I have been reading some of your posts and have a question.  Is there always blood with UC and a flare?  I was diagnosed @ three years ago and really haven't had any blood I could see.  I do get diarrhea, joint pains, stomach cramps and pains and exhaustion!  Just curious.
 
Stacy
Current meds are:
 
Asacol 6 pills a day
Lexapro 20 mg once a day
Ativan .5 mg when needed
Canasa when needed
 
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23551
   Posted 7/2/2008 11:15 AM (GMT -7)   
Nope, not everyone bleeds from a flare. I know Quincy states that she has only bled for her first maybe second flare and that was it. I think it depends on the fragility of the colon. Some people bleed easier then others. For me personally, I have always bled. Even when my symptoms are non existant, I always have bleeding to some extent. I think I can count on one hand how many times I have NOT seen blood. I have brought this up many times with my GI and he said just to keep an eye on it - guess he figures I've had this long enough I know what to look for eh? lol :)
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair, Allegra
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections~bulging discs C5,C6&C7(?)~waiting for epidural injections
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sdaless
Veteran Member


Date Joined Jun 2005
Total Posts : 1396
   Posted 7/2/2008 11:42 AM (GMT -7)   
Thanks Sherry I guess that is one good thing for me! 
 
Stacy
Current meds are:
 
Asacol 6 pills a day
Lexapro 20 mg once a day
Ativan .5 mg when needed
Canasa when needed
 
 
 
 


Pooie1981
Regular Member


Date Joined Mar 2008
Total Posts : 274
   Posted 7/2/2008 11:45 AM (GMT -7)   
I only ever have blood on the tissue....
Jenn 26/female
Ulcerative PANCOLITIS diagnosed 2004
Asacol 3 pills once/day
Daily Vitamin for Women and Folic Acid
Currently in a flare since March 6 !!!!!!!!!!!!!!!!!!!!!!!


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 7/2/2008 12:16 PM (GMT -7)   
Some people don't bleed, some bleed like a faucet. I always have blood when I'm flaring but sometimes I don't notice it.... Like recently I had a little blood on the TP for awhile and I thought it had stopped, but then just now I went to the bathroom and happened to notice that have the stools themselves are actually red, so the blood is just mixing with the stool now. Man. I don't know, I get less freaked out when it's mixed in though- it's crazy when you go to the bathroom and the toilet water is red.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)
Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
 
 
 


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 7/2/2008 12:25 PM (GMT -7)   
I have NEVER bled. That's why we were all so baffled prior to my diagnosis. I remember when I first started posting on this board, someone told me I couldn't have an IBD because I wasn't bleeding. My GI never mentions it being strange so I don't think anything of it. I can only imagine what it would be like to see a toilet full of blood...
Sam
Diagnosed March 2005
Remission since January/April 2006 (incident with mono)
3200mg Asacol, 25mg Amitriptlyine, Ortho Tri-cyclen lo, Imodium when I need it
"If you don't like something, change it. If you can't change it, change your attitude"
Maya Angelou


sdaless
Veteran Member


Date Joined Jun 2005
Total Posts : 1396
   Posted 7/2/2008 12:38 PM (GMT -7)   

It is bad enough looking at your toilet all the time.  I can't imagine if it was always blood.  Wow. God Bless those who have that to go along with it.  Must be in pain also.

Stacy


Current meds are:
 
Asacol 6 pills a day
Lexapro 20 mg once a day
Ativan .5 mg when needed
Canasa when needed
 
 
 
 


bellski
Regular Member


Date Joined Apr 2008
Total Posts : 499
   Posted 7/2/2008 2:00 PM (GMT -7)   
I don't have blood right now and I am in a mild flare. Even when I was in a really bad flare, I didn't have much diareah, I think it is because I have Ulcerative proctitis, everyone is different. I'm glad you don't have blood. (O: Bellski
Lori (Bellski)-age 43 from Illinois
Diagnosed February 2008 with Ulcerative Proctitis,
Currently: mild symptoms / flare ?
Medications:  Asacol 400mg X 6, Canasa X 2 
Vitamins:  Calcium 600 + D X 2, Centrum, Citrucel caplets, Probiotics
High fiber diet
"I thank God that  I found this website!"
 


pupluv
Regular Member


Date Joined May 2007
Total Posts : 256
   Posted 7/2/2008 2:20 PM (GMT -7)   
I have only bled the very first flare before being diagnosed. And I bled a lot. I flare frequently, but I haven't bled since that first time. Weird....

Donna
Diagnosed with indeterminate colitis in 1992
current meds
4 asacol 3x's a day
Azathioprine
Rowasa enemas as needed
VSL3
Bunches of vitamins


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 7/2/2008 3:35 PM (GMT -7)   

I would always bleed during a major flare, and sometimes in between.  It was pretty miserable.  Thank goodness the bleeding and flares have stopped for going on 2 years now.  My bleeding always came with heavy cramping, which I know we have all experienced. 

 

------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily

 

 

 


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/3/2008 7:18 PM (GMT -7)   
hi
well, i always bleed and have always bled.
the toilet looks like dark red fruit punch.  like a horror movie.  its all over the toilet bowl and everything.  i can feel it coming out like a faucet was turned on.  gross sorry.
its like that all of the time. i go a lot as well and there is not even any poo, just blood and blood clots and tissue bits.
there has only been a handful of times when there is no blood.
 
i am also in lots of pain all the time too.  i wish it would stop cuz its killin me.
i puked yesterday while on the toilet cuz the pain was so bad.  here i am spoutin outta both ends just miserable.
 
so, i have never experienced UC without blood. 
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 7/7/2008 10:53 AM (GMT -7)   

kazy,

I would try the Haldi drinks, they have a formula that is supposed to activate the curcumin(the active form of turmeric) and make it more available or active or whatever.  I also used to take the turmeric capsules and got no results.   I know eveyone is different, but it made a difference in my life, and from what I heard, they have a pretty high success rate with IBD.  Good luck,

-----------------------------------------

yuckygut

diagnosed 1998

now off prednisone and colazal

drink 1 Haldi daily


MNBeachgal
Veteran Member


Date Joined Jun 2008
Total Posts : 867
   Posted 7/7/2008 12:05 PM (GMT -7)   
I think everybody is different - I usually feel pretty crappy before I notice any blood at all. Your colon can be inflamed without any actual blood coming out or being visible to you (aka in the toliet).  In my current flare, I didn't have any blood for over a week but just felt awful - now I'm seeing the blood. So it can all depend on how long the flare goes on and what shape your colon is in.
 
I also had a doc tell me that many people have flare-ups but don't see any blood for the whole flare.

mermaid
New Member


Date Joined Jul 2008
Total Posts : 2
   Posted 7/10/2008 6:28 AM (GMT -7)   
I bleed almost all of the time. The two times I stopped was on Pred. but now I have bone loss and I've vowed not to take it again. Kazygirl, I've also had so much pain that I have vomited....but only once. Were do you get Haldi drinks? Is it a perscrip or can I get it at my health food store? Lately, because I've been trying to relax my guts when I'm in the bathroom, my shoulders and neck have been really tight and I've been aching all over. ugggghhhh.

Hans C
Regular Member


Date Joined Dec 2006
Total Posts : 89
   Posted 7/10/2008 6:48 AM (GMT -7)   
I bleed fairly continuously when Im not in complete remission. I often don't have many other symptoms and I rarely experience much discomfort except for at the peak of a flare.
age 26
 
diagnosed 2004 (probable left sided)

Multi-vitamin
Aloe-gel
B12
Cinnamon sticks
Pro-biotic


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/11/2008 3:56 AM (GMT -7)   
hmmm interesting.. i will check into the drinks.
any other info you have on them would be appreciated.
thanks mate
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


mmbox7
New Member


Date Joined Jul 2008
Total Posts : 4
   Posted 7/11/2008 5:44 AM (GMT -7)   
I bleed every time I have a flare up. It is also accompanied by mucous. Other symptoms of my flare ups: body acne (arms, chest, sides, and back), dry eyes and mouth, back ache, and head aches. I tend to go along for a month or two, then I will have a flare up for 2-3 weeks. I am in the middle of a long flare up as I write. This one has lasted almost 6 weeks, but I had a sinus infection that may have contributed to my weakened immune system.

quincy
Elite Member


Date Joined May 2003
Total Posts : 30085
   Posted 7/11/2008 10:16 AM (GMT -7)   
Hi.....I had severe symptoms without bleeding about 2 and 1/2 years before diagnosis...I do wish my doc sent me to a specialist then.  After diagnosis, I only bled for the first 3 years with flares and most of them I did have bleeding, but eventually the symptoms got more obvious earlier and I treated earlier with the rectal meds.

I hadn't bled in over 15 years until last summer when I had stopped using the estrogen patch (hysterectomy). Wrongo decision..ugh! Anyway, the flare quickly got under control and I've stayed with the patches. What a wonderful summer compared to last year..lol!

I do attribute it to the consistent use of meds and treating earlier and earlier.....

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Blue220
Regular Member


Date Joined May 2008
Total Posts : 191
   Posted 7/12/2008 10:09 PM (GMT -7)   
I bleed every time when I'm feeling crappy. Lately I haven't as much though. I'm feeling better, but, there's still blood. It's either blood coated or there's specs. I can tell immediately when it's going to be really bad. It's like I can feel the inflammation. Very very painful. Up until I started taking my entocort I was unable to stand up straight because it hurt so bad. I was halfway hunched over unless I knew someone was looking at me for at least a couple years. It sucked.

And yes, I agree with those who said it's scary looking into the toilet and it looks like someone has been murdered. Gross.

I bled a lot all the time for a very long time which has made me severely anemic to the point where I couldn't stand up long enough to take a ten minute shower.

I'm a little better now. Still working at it.

I guess everyone's different, and it depends on what part of your colon is the problem.
21 years old

Diagnosed with moderate/severe UC June 2007(undiagnosed a while before that. It was terrible. I had to take most of my finals for that semester next to the bathroom).

Now taking Lialda 3x a day, and just started taking Entocort(3 pills in the morning) on 5/29/08. Now I'm down to just one a day for about a week then it's back to just my Lialda and iron.

Severely anemic, now taking 3 65mg iron tablets a day.


yuckygut
Regular Member


Date Joined Feb 2008
Total Posts : 214
   Posted 7/16/2008 4:09 PM (GMT -7)   
kazy,
 
for years I bled on and off, I would get some relief with prednisone but that was tearing me apart(at least that is the way I felt).  colozal helped but only minimally, herbal remedies helped but again only intermittantly, and I still needed steroids. I think the Haldi drinks helped both with my immune system and with the inflammatory process associated with my UC.  (I dont know if that is correct, but it sounds good).  Anyway, I got them at Whole foods markets while traveling on the east coast, I prefer their green tea flavor.  And now order from their web site.  It also has done wonders with my GERD, and I am not sure why??  I have not bled for going on 2 years now, not a drop.  good luck,  
 
-----------------------------------------------------
 
yuckygut
 
diagnosed 1998
 
now off prednisone and colozal
 
drink 1 Haldi daily  

marty1976
Veteran Member


Date Joined Nov 2005
Total Posts : 2045
   Posted 7/17/2008 11:06 AM (GMT -7)   
Yeah i bleed with every flare Stacey. Pretty major part of UC for the majority of us,
i hope life is treating you well
Marty
                                     keep the faith 

         asacol/proctifoam/Zoton (lansoprazole)/pred/colofac


       
            http://www.myspace.com/martybuzz1<FONT]

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