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Mouth ulcers anyone?

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Mouth ulcers anyone?  
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Posted 7/2/2008 2:02 PM (GMT -7)
Hi all,

Although I posted in the Introduce Yourself thread awhile back, this is the first time I've made a new post. 

Lately I've been having a difficult time with sores in my mouth.  One site said that they can be a complication of UC, but when I did a search at HealingWell, I only found Chrohns folks who mentioned them.  If anyone has had mouth ulcers, what did you do to help them heal and/or make them not hurt so much? 

The past few weeks I've had some dental work (a filling turned to a root canal and now a temporary crown), and at one point was on Amoxicillin, which seemed to start a bit of a flare.  The sores seem to pop up about then, in different places, above the temporary filling, on the inside of the cheek, and now the most painful one is on the inside of the cheek opposite the temporary crown. 

I started culturelle 3 days ago, so it seems unlikely it's thrush, but who knows with this UC(ky!) disease.   

I just want to say I admire you all for dealing with everything related to UC and giving so much concern and support to each other.  This forum has been invaluable to me.

Thanks to you all!

 

female, 58, dx mild to moderate ulcerative colitis 11/07

asacol 3 3x a day

culturelle

child's centrum

omprazole 2x a day

oxazepam (anti anxiety) prn

** flare Jan '08 because I quit my meds in Dec '08 ... what a mistake!   

Posted 7/2/2008 2:14 PM (GMT -7)
I get these all the time, especially when I'm flaring. Right now I have one on the inside of my lip and one behind my lower teeth on the gums and one on my top lip near my canine tooth. It's really frustrating and painful, for sure. I just got rid of one on my tongue that was the worst, I was talking with a lisp for days because if I tried to talk "normal" I would bite it constantly making it worse.

I've found what works best is to rinse a lot with warm salt water. It might sting some (though not nearly as much as it would with Listerine!!) but it really clears them up pretty well. Also, pick up some stuff for canker sores- make sure it's not for cold sores and it is approved for use IN the mouth- I can't remember what it's called but it works great. Tastes terrible but numbs everything right up so at least you can enjoy eating and whatnot.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)

Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine

4800mg Asacol (Four 400mg tablets, three times a day)

 

Posted 7/2/2008 3:30 PM (GMT -7)
Thanks edie,

I will try the warm salt water.  It makes sense, since that's what would be best to use on a skin wound, too, and probably even a sore throat. 

Just thinking about it is soothing.

 

female, 58, dx mild to moderate ulcerative colitis 11/07

asacol 3 3x a day

culturelle

child's centrum

omprazole 2x a day

oxazepam (anti anxiety) prn

** flare Jan '08 because I quit my meds in Dec '08 ... what a mistake!   

Posted 7/2/2008 5:46 PM (GMT -7)
I get canker sore or throat spray to help with mine, you're not alone, sweetie!
Jared

Pancolitis diagnosed in '99

Crohn's Disease diagnosed in '06

Currently on:

Medrol Dose Pack

Imuran 100 MG Daily

Asacol 1600 MG Daily

Flexeril 10 MG (four times a day for relaxation/stress relief)

Remicade

Slow release Iron

 

www.myspace.com/jtothenk

Posted 7/2/2008 6:14 PM (GMT -7)
I get them ALL the time! I had some dental work done a few months ago (2 crowns)...afterwards I ended up w/ a mouth full of agonizing sores. I gargled w/ lots of warm salt water. I believe there is also a rinse the dentist can give you.
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

https://www.healingwell.com/donate
Co-Moderator UC Forum

Posted 7/2/2008 6:49 PM (GMT -7)
Mouth ulcers can be an extraintestinal manifestation for IBD in general (CD or UC)...I used to get them terribly (I have crohn's) but since taking primadophilus reuteri probiotics made by natures way I haven't had one since.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)

Posted 7/3/2008 12:48 AM (GMT -7)
I get them all the time !! they can be so sore !!

Dunno if you can get it in the states but in Uk you can buy adcortyl in orabase over the counter in most pharmacies. It puts a protective layer over the sore and gets rid of it soooo quickly.

dunno what id do without it.
Pan-indeterminate colitis

Pentasa 2g bd

Pentasa suppository 1 nightly

Azathioprine 150mg

Posted 7/3/2008 2:54 PM (GMT -7)
Ya know, I also get weird little blisters in my mouth too, like blood blisters almost... They're small red bubbles inside my cheeks/lips and I usually only get one at a time, but I can pop it and it just has water/liquid in it but then there's a red spot where it was.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of the spine from long term prednisone use.

Current Meds:
10mg Lexapro (for depression/social anxiety)

Digestive Advantage: Crohn's and Colitis formula (2 pills per day, started 5/14/08)
125mg Azathioprine

4800mg Asacol (Four 400mg tablets, three times a day)

 

Posted 7/3/2008 4:03 PM (GMT -7)
I don't get sores or ulcers, but for some reason I bite my tongue or the inside of my mouth a lot. And of course, once bitten, it gets in the way and gets bitten over and over. The ones on my tongue can get really painful as they scrape on my teeth every time I talk, swallow or eat.

I get an antiseptic mouth wash from my dentist. He gives it after any kind of dental surgery to speed the healing. It's called Peridex, and I keep a bottle around all the time.
Judy

 

Moderate to severe left-sided UC (21 cm) diagnosed 2001.

Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.

Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.

 

Co-Moderator UC Forum

Please remember to consult your health care provider when making health-related decisions.

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