Mark & Megan--I'm currently 4 hours away from my college, so even if they do offer free counseling, it's not an option right now! Oh, and I couldn't get that video to work--I think it said the video is no longer available.
John--I'm glad that "Leo" and the bag are doing well for you! Your experience makes the bag sound less daunting.
GISGuy--I'm glad things are working out for you as well! I can't believe your GI let you skip Imuran and Remicade! My GI wouldn't even let me talk about surgery until after my first Remi infusion when I said that it hadn't helped much.
Severin--My GI said that he would not sign me off on Humira and that there are no trials in the area for any new UC meds anyway. And I don't know if I can wait 3 months on Remi either...I'm not able to do anything now and I start college in a month and a half. And if I'm not better, there's no way I'll be able to handle classes. And my insurance won't cover me if I'm not in school; it will, however, cover me if I have surgery that's recommended by a surgeon.
rdm--I'm with summerstorm. I don't think it matters how long I've had UC or how old I am--I'm considering surgery b/c none of the meds are working. I've tried everything but prednisone, which is a short-term therapy anyway that I would have to use w/ other meds. I have exhausted almost all of my options. And this is my second flare. My first flare went into remission just by 6 Asacol tablets/day (ah, the good ol' days!).
I know that the risk of lymphoma is small when taking Remi, but I've read cases of people getting lupus from Remi--how common (or not) is that?
Female, Age 19, Dx w/ UC August 2007
9 Asacol, Rowasa, 1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis), 1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (2nd infusion 06/26/08), 2.4 g Lialda
*exploring the option of surgery