Have you tried this book/diet?

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Kiss520
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Date Joined Jun 2008
Total Posts : 742
   Posted 7/3/2008 2:56 PM (GMT -6)   
I recently got a book from the library called, "The Self-Help Way to Treat Colitis and Other IBS Conditions" by De Lamar Gibbons, M.D..  Its an older book, but the reviews on Amazon sounded very promising.  Has anyone tried this and found success?  This is the diet that eliminates fructose (and sorbitol, mannitol, and lactose) and wheat bran fiber. 
 
Any experience you can share would be much appreciated.   
Thanks!
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil 2x daily, Disgestive Advantage (Colitis) 2X daily, Metamucil 2X daily, Yoga daily.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


Kiss520
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Date Joined Jun 2008
Total Posts : 742
   Posted 7/4/2008 3:03 PM (GMT -6)   
I'm surprised.  Fifty viewings of this post, and no one has tried this?  Well, I guess I'll be the guinea pig for this experiment.  I'll keep you guys posted on any progress I have with it.  :-)
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil 2x daily, Disgestive Advantage (Colitis) 2X daily, Metamucil 2X daily, Yoga daily.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 30976
   Posted 7/4/2008 11:48 PM (GMT -6)   
Why be surprised....many read all threads and never reply.

Definitely keep us updated if you try it.

quincy


*Heather*Status: mini flare Dec 28... tapered to every 4th night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....zymactive 3 - 5x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 7/4/2008 10:59:08 PM (GMT-6)


Kiss520
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Date Joined Jun 2008
Total Posts : 742
   Posted 7/5/2008 7:01 AM (GMT -6)   
I guess you're right. I just figured if someone had tried it and had it work/not work, they'd speak up. I've been doing the diet for a few days and it seems to be helping (slowly). Its supposed to take a while, but I'll definitely let everyone know the results... whether they're postive or negative.
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil 2x daily, Disgestive Advantage (Colitis) 2X daily, Metamucil 2X daily, Yoga daily.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


lemonhead
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Date Joined Dec 2007
Total Posts : 1028
   Posted 7/5/2008 9:00 AM (GMT -6)   
Ahh, I have tried the diet. For 2 weeks.....that is the time I give everything to work. I eliminated all sugar from my diet, milk, did exactly what the book says. After 2 weeks I actually felt worse. I was already taking probiotics, and I think the whole thought behind the book was to starve the bad bacteria by not giving them a food source. Since I had been on the probiotics, I think my colon was already populated with "good" bacteria and therefore did not see any effect except for the sugar withdrawl and a lack of energy. Of course, these are just my opinions on why it didn't work for me, I could be way off. It is worth a try, but it is very hard to do. I would reach for a hard candy not really thinking, and they realize right before I popped it in my mouth that I couldn't have it. I have 2 kids and all the junk food was a real temptation, and eating out is very hard since you never know what they put in anything. Good luck with it.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 7/5/2008 12:59 PM (GMT -6)   
Thanks for sharing your experience. I also started Digestive Advantage (probiotics) at the same time and experienced terrible bloating. Wasn't sure if it was from the diet or the pills, so I stopped the pills and the bloating has subsided. I totally hate not having sugar - I never realized how many foods contain fructose. Its really kind of disturbing how food companies slip it in to SO many products. Because I stopped the Digestive Advantage, I started up with acidophilus and am not having the bloating issues.

I'm planning on giving this a full month for results, only because of a testimonial I read at the end of the book. One woman said that her bleeding stopped after 3 weeks and her diarrhea stopped at the end of a month. My results may be a bit skewed because I started new meds at almost the same time as the diet. Regardless, I'll be sure to share my experience...
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily, Fish Oil 2x daily, Disgestive Advantage (Colitis) 2X daily, Metamucil 2X daily, Yoga daily.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 7/8/2008 7:43 AM (GMT -6)   
What new meds did you start (all of the current treatment listed above or just part of it?) That may be part of the issue. I posted on your other thread too. I just want you to know that I understand how desperat e you are to find a way to control this dreaded disease. I am with you, but don't be discouraged if this is not your magic bullet. It may be, but if it isn't, you will find a way to manage your symptoms, it will just take a little bit longer.
I started to drink shakes in the morning (Absorbplus shakes). If you google it you will see the testimonials there as well. I will let you know how that goes. Best of luck to you.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 7/8/2008 8:30 AM (GMT -6)   
Hi Lemonhead! Thanks for the tip about the shakes, I will look into that. I started Rowasa enemas (2x daily - morning and night) and Cortenema (1x daily - afternoon). I also take acidophilus twice a day and calcium when I eat a fatty meal (suggested by diet book). This is all I'm doing for the time being. Sometimes I think I'm taking too much medicine. The enemas actually seem to upset my "gut" (for lack of a better word). Surprisingly, after I posted my sob story yesterday, things improved dramatically. This is one of the best mornings I've had in weeks, and last night was totally uneventful and actually symptom-free. I don't know what's causing the improvement, but I'm willing to stick with what I'm doing for the time being to get me through my vacation. Thanks for your help and advice. I really appreciate it! :-)
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily (as needed), Tylenol, and Acidophilus 2X daily.
Diet/Exercise:  No sugar (including fructose, sorbitol, mannitol, and lactose) or wheat bran fiber.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


pupluv
Regular Member


Date Joined May 2007
Total Posts : 256
   Posted 7/8/2008 12:25 PM (GMT -6)   
Hi Kiss520, I drink Absorbplus shakes when I am flared. It really helps when you don't feel like eating at all. I add Udo's oil so I can get even more calories. It has helped me keep my weight up during flares. It also tastes ok. However, it's very expensive and it keeps getting more expensive, but it really has helped.
Donna
Donna
Diagnosed with indeterminate colitis in 1992
current meds
4 asacol 3x's a day
Azathioprine
Rowasa enemas as needed
VSL3
Bunches of vitamins


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 7/8/2008 2:41 PM (GMT -6)   
I just read up on Absorbplus, and I will keep that in my back pocket if this diet doesn't do anything for me. Sounds like a great way to keep weight on. Thanks!!!
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily (as needed), Tylenol, and Acidophilus 2X daily.
Diet/Exercise:  No sugar (including fructose, sorbitol, mannitol, and lactose) or wheat bran fiber.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


Got2Believe
Regular Member


Date Joined Feb 2007
Total Posts : 436
   Posted 7/8/2008 3:33 PM (GMT -6)   
Good Luck Kiss520! I applaud your interest in changing your diet. I personally don't have a particular diet, but I try to eat what I consider healthy. I hardly ever eat refined sugars. Refined sugars are stripped of all nutritional value and actually deplete the body of it's probably already low supplies of nutrients. I know that I want my colon to heal as best as possible and can sleep more comfortable at night knowing I am trying a more natural approach to healing. I have been doing a lot of work with my hands lately and have many small cuts and Its actually amazing how our body heals itself and I don't think that eating a candy bar is why that stuff happens...
                                                                                         
28/M/TX single parent of gorgeous 2.5yo girl (revised 5/8/08)
Severe Colitis (pancolitis) since January 9, 2005
currently:  6th week flaring;improving; 2bm/day; very little blood
RX/day:  Currently 10mg of prednisone per day. Lost job and insurance 10/2007 and stopped taking asacol and Imuran cold turkey
OTC: seldom use VSL#3, vitamins & other natural treatments
Diet: SCD helps tremendously, but am not strictly on it.
Other: food combos, enzymes, good posture, chewing more, etc.


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1028
   Posted 7/9/2008 7:40 AM (GMT -6)   
kiss 520
I have used the Rowasa enemas for a while, and just cut back to one every other night and every morning after I don't take on, I have the best poop. The morning after I do take one, very thin, mushy and not "normal". Not that any of them are "normal" but when I don't take one, It is much better. I was wondering if I have some kind of sensitivity to it. It does stop blood when I have it, but seems to swell things up in there. This disease is so confusing.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2 rowasa enemas nightly
35, female


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 7/9/2008 9:00 AM (GMT -6)   
I haven't tried that diet per se, but the way I currently eat - modified Specific Carbohydrate Diet - pretty much eliminates all the things you've mentioned and it has been very helpful for me. Those items are all common offenders for anyone with a sensitive gut.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 7/10/2008 7:06 AM (GMT -6)   
Lemonhead - I have the exact same thing happen after using Rowasa - icky poop follows. I discovered that I should only use it for 30 minutes at night and not fall asleep with it in. It really seems to upset my stomach if its in too long. Weird, huh?

Princesa - thanks for sharing! I've thought about doing the SCD but had heard that its pretty expensive. I'm glad to hear that some of these principles are the same. Its nice to make some connections between treatments!
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily (as needed), Tylenol, and Acidophilus 2X daily.
Diet/Exercise:  No sugar (including fructose, sorbitol, mannitol, and lactose) or wheat bran fiber.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2204
   Posted 7/10/2008 9:04 AM (GMT -6)   
I don't know why the SCD would be considered expensive. It is restrictive, though, and some folks aren't willing to give up some of the forbidden foods.

A couple of other books you might consider investigating are Listen to Your Gut and The New Eating Right for a Bad Gut. I found these to be helpful. LTYG offers different levels of dietary recommendations, depending on how severe your symptoms are and NERBG gives a lot of general guidelines for foods that are tolerated or not by large percentages of IBDers. It also has good information on omega-3 supplementation for decreasing inflammation.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal.
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 7/10/2008 8:48 PM (GMT -6)   
I've read "The New Eating Right..." and found that helpful. I've read some good reviews about "Listen to Your Gut" and wanted to check it out. That's the one by Jini Patel, right? At this point I'll try pretty much anything to make these symptoms calm down and/or go away. I have discovered that not eating sugar makes me... shall I say... less than pleasant. I really hate this diet, but if it continues to lessen my symptoms then I guess I'll just have to get accustomed to it. Phooey. :-(~
Female, 30.   Chicago 'burbs.
DX:  Ulcerative Proctitis (10cm) January '08
Current Treament:  Rowasa 60 ML 2X daily, Cortenama 100 ML 1X daily, Bentyl 20 MG 4X daily (as needed), Tylenol, and Acidophilus 2X daily.
Diet/Exercise:  No sugar (including fructose, sorbitol, mannitol, and lactose) or wheat bran fiber.  Daily yoga, walking, or cardio w/weights.
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Vitamins.
Status:  Flare (showing some improvement)
 
 

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