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Disbooner
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 7/3/2008 9:15 PM (GMT -6)   
So earlier this week my GI confirmed I have IBD.  One test, Prometheus blood test, says Crohn's.  The GI's tests (I guess the sigmoidoscopy and blood work) show UC. 
 
At any rate, I've been on Prednisone for a couple of weeks now and was starting to do better.  Recently, Asacol has been added into my regimine of meds.  The past two days I have seriously regressed.  Is this a normal pattern for anyone else?  I'm wondering if I just need to give the combination of meds more time to work.
 
 

kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/3/2008 9:28 PM (GMT -6)   
good question.... i always seem to get a teeny bit better the first week or 2 of pred then go back to square one and it does nothign for me.
so far it seems that no meds do anything for me.
i was in a flare for year and half on eveyrthing you can think of and nothing worked. then one day it was gone completely.
now 6 months later, its back. darn it!!!!
and no meds are doing anything for me.
of course i will stay on them and see what happens. but, it seems im getting worse, not better.
and of course, feeling like crap and not getting better puts one in a crap mood which in turns makes everything crap. viscous circle.
steph - 32 - female - UC since 2000
currently flaring again..  grrr! (triggered by stress - grrr)
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
enteric coated fish oil -omega 3 (so they get all the way to my colon)
vitamin D3 x1 a day
prednisolone 25mg x1 a day (ick ick and did i say ick?)
tumeric capsules x3 a day
 
 
 


Disbooner
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 7/3/2008 9:36 PM (GMT -6)   
Sorry to hear that Kazy! Being new to this, I'm just not sure what to expect. It's amazing how fast the disease develops. No bleeding or anything and then boom, a month or two straight, all the symptoms just start. I guess everyone responds differently to the disease.

I'm curious, is anyone familiar with the major differences between Crohn's and UC? I know Crohn's can affect different areas of the digestive tract, but is that pretty much the only difference? Since my GI doesn't know which I have, I'm wondering how it ever gets diagnosed?

jujub
Elite Member


Date Joined Mar 2003
Total Posts : 10407
   Posted 7/3/2008 10:37 PM (GMT -6)   
Welcome to HealingWell, Disbooner.

There are several differences in UC and Crohn's. As you pointed out, UC is limited to the colon while Crohn's can affect any part of the GI tract. Another difference is that UC is almost always continuous, meaning the inflammation starts at point A and ends at point B and there is no uninvolved area between. In Crohn's, there may be patchy areas affected with healthy tissue between. A third difference is that UC affects only the innermost layer of the intestinal wall. Crohn's can affect the whole thickness of the intestinal wall; thus the much higher incidence of fistulas in Crohn's disease.

Regarding your symptoms, give the Asacol a couple of weeks. If you're still worse at that point, call your GI. Some of us are unable to tolerate Asacol and will get increased diarrhea and cramping with it. Usually we are able to tolerate other sorts of 5-ASA's such as Balsalazide.

Some people have indeterminate IBD, which means they have some features of Crohn's and some of UC. Generally speaking, the colonoscopy and biopsy findings are more reliable for diagnosis than the Promethius test.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from steroid therapy.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 7/3/2008 10:43 PM (GMT -6)   
Hang in there you'll get better.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/3/2008 11:29 PM (GMT -6)   
You should also be aware that if it's crohn's-colitis (CD affecting the colon) that the same meds are used to treat it as used for UC.

Regardless of which you have, fibre supplementation and a good probiotic are essentially a must for IBDers and I'd be strongly considering changing my diet...that's what I did, no more fast-foods, processed foods, animal fats, caffeine and refined sugar, sugar substitutes/artificial sweetners as these can all exacerbate IBD symptoms...exercising to the best of your abitlity is also highly recommended, just ajust it accordingly to how active your disease is, but something is always better than nothing, not just for the body but for the mind as well.

:)


My bum is broken....there's a big crack down the middle of it!  LOL  :)


Disbooner
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 7/4/2008 8:40 AM (GMT -6)   
Thanks for all the advice everyone!
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