So, I was on Salofalk for just over a week (out of four weeks), and had to stop because I had horrible side effects - diarrheah, nausea, joint pain/stiffness, headaches....PLUS I got a urinary infection!! So, a dr (not my dr - a dr at a walk-in clinic) told me to go off the Salofalk for a week, put me on other antibiotics for the urinary infection, and within a day, ALL my symptoms were gone - which confirmed that it really was the side effects and not something else. So now the good news.....went to my own dr earlier this week, and explained everything to him. He also had the lab results from my colonoscopy/gastroscopy (biopsies were taken during the procedures). As it turns out, I DON'T have pancolitis at all - or even UC for that matter. Looks like just the sigmoid part of my colon is slightly inflamed, but they don't know what caused it. It's not chronic, and they don't think it will come back again. So, it looks like it's just a one-time thing. Not sure why the so-called "specialist" who did my procedure said it was pancolitis - maybe she's new to the whole thing. But, the rest of my colon and stomach are completely clear, so now I just have to take the Salofalk again for two more weeks (lower dosage as per my dr.....still not great with the side effects, but seem to be better than before). I go to see the specialist again in 2 weeks, so hopefully I'll be in the clear then! All my colitis symptoms seem to be gone (normal bm's for the first time in 2 months, no pain, etc...), so I'm starting to see a light at the end of the tunnel.
Thank you all for your advice!