Hi all. Just wanted to let you know that Bratcat is out of surgery and doing well. Her surgery was yesterday. Her sugeon said it went very well, exactly how he wanted it to go. Watching her go off to surgery was traumatic. She ended up getting an epidural so I wasn't able to go in with her. The OR nurse was great. She called us in the surgical waiting room about 45 minutes after we left Bratcat to let us know she was wonderful through the whole prep, and that the surgeon was about to start. 4-1/4 hours later, she was done. We were able to see her for a bit in recovery and then she was moved up to her room.
She is on the pediatric floor. Right now it is virtually empty so it is very quiet. Yesterday evening she was in alot of pain. She has lots of different tubes coming out of different places but they removed one today and will continue to remove them daily. She slept a little last night. Today she is sitting in a chair. She's going to walk a little later. Every doctor, intern, fellow, resident, etc has been it to check on her.
All in all, Bratcat is terrific. I know she is my daughter but she amazes me. She is alot tougher than I would be in her situation. And she still feels like this is the right decision.
Thanks again for your good wishes. I will check in as soon as possible.
--Mom of bratcat (17 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Asacol - 4 pills/3Xday, 15 mg prednisone, Remicade
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone. 3/08-another flare!