There was recently a post that triggered how complicated communicating pain and the reality of disease like UC/CD can be, especially when you look healthier than you feel. Communicating to family the type of sick UC meant was really hard, we learned people don't just understand chronic disease, but instead need to learn about
how to support those living with chronic disease.
Another webcast from Health Talk, but this one is excellent on http://ucstory.wordpress.com/2008/07/06/communicating-about-uc/
"Often when you’re suffering from painful Crohn’s disease or colitis symptoms,
you may look healthy and others may assume you feel better than you do.
So how do you ask for the support, understanding and help that you need?
Join us as our expert guests share tips for effectively communicating about
your Crohn’s disease and colitis pain and other symptoms with your family,
friends and others in your life. From informing a co-worker about a difficult
symptom to expressing your needs to a spouse or new love interest,
you will learn about techniques that will help you feel supported and empowered.
Plus, you’ll learn why it’s important for your emotional health that you speak up and seek assistance.” - HealthTalk
7 yrs UC to 1 year J-Pouch
Surgery Photo & Journal below: http://ucstory.wordpress.com/
We are updating regularly it isn't just the surgery photos but info all about UC, Surgery and IBD!